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Author Topic: introduction  (Read 3630 times)
casper2636
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« on: August 22, 2010, 12:18:22 PM »
Hello,
I'm casper2636 and am 45 years old and female. I've been on dialysis for 2 and 1/2 years.
Casper
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Marsh
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« Reply #1 on: August 22, 2010, 01:34:20 PM »
Welcome!! :cheer:
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Dianejt
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« Reply #2 on: August 22, 2010, 02:05:46 PM »
 :welcomesign;
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
Poppylicious
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« Reply #3 on: August 22, 2010, 04:28:06 PM »
 :welcomesign; Casper!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
jbrock
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« Reply #4 on: August 22, 2010, 08:33:53 PM »
 :welcomesign; Casper!!!
 :flower;
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Save A Life....Be A Donor!
Liver Transplant Recipient ~ 5 Years Ago ~ Blessed :)
Diagnosed in Kidney Failure ~ March 2009
Fistula Placement ~ Upper left Arm ~ Aug. 17th 2010
PD Cath placement - 5 months ago
D started 3 months ago - Manual's 3x a day. Going to try the cycler in a couple of weeks :)
RichardMEL
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« Reply #5 on: August 22, 2010, 08:45:21 PM »
G'day Casper & Welcome to the friendly non-ghost!  :rofl;

 :welcomesign;
RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
looneytunes
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Wishin' I was Fishin'
« Reply #6 on: August 25, 2010, 07:44:12 AM »
Hi Casper and welcome to our group.  I have a fond place in my heart for ghosts since my birthday is Halloween.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
Jean
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« Reply #7 on: August 25, 2010, 02:21:22 PM »
Welcome to IHD Casper. Glad to have you aboard.
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One day at a time, thats all I can do.
Rerun
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Going through life tied to a chair!
« Reply #8 on: August 25, 2010, 04:18:34 PM »
Hi Casper the friendly ghost.  Where are you from.  Do you dialyze on the machine or PD?  In center or at home?  So glad you joined us.

Rerun, Moderator    :welcomesign;
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galvo
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« Reply #9 on: August 25, 2010, 07:11:57 PM »
G'day Casper and  :welcomesign;.
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Galvo
paris
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« Reply #10 on: August 26, 2010, 01:15:50 PM »
Hi Casper.  Welcome to IHD.  This is a great site for information and also for wonderful support.   I hope you tell us more about yourself and you read lots of posts and learn about some of the great members here.   Looking forward to more of your posts.    :2thumbsup;




paris,Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
thegrammalady
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« Reply #11 on: August 26, 2010, 02:31:05 PM »
 :welcomesign;  glad you found us
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
casper2636
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« Reply #12 on: August 26, 2010, 07:12:36 PM »
Thank you all for the wonderful welcome! I've been feeling so alone for so long, I'm so happy I found this site! I was delinquent in giving you more information about myself.
I am from Wilmington, Delaware and do in center dialysis. My kidney failure is due to anorexia, and uncontrolled high blood pressure. I carry a lot of guilt because I sped up the process of my failure, and I could have had more time without dialysis.
I thank you again for the warm welcome and hope I answered some of your questions.
Smiling in Delaware,
Casper2636
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paris
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« Reply #13 on: August 26, 2010, 07:30:51 PM »
Casper, you aren't alone now.   There are lots of us and someone is always here.  I come here at all kind of odd hours.  And the best part is, you don't have to explain because we are all in the same boat!    So glad you found us!!    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Zach
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"Still crazy after all these years."
« Reply #14 on: August 26, 2010, 08:58:02 PM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
RichardMEL
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« Reply #15 on: August 26, 2010, 09:43:41 PM »
phew Casper that must be hard having that guilt about your condition and speeding it along. I think there are a few in that boat out there. All I can suggest is to try to not look backwards - what's happened has happened and there's not much you can do about it. What you can do now is to make the most of what you have and take steps to keep yourself healthy and well enough to potentially receive a transplant in the future(if you're able to). So keeping to the diet, doing exercise etc, are all things that can help you maintain a healthy body(apart from the kidneys, of course!) and also active doing things other than just dialysis. I know, easy for me to say, hard for you to do. Hang in there!!

Hmm Delaware huh. A state I have not been to. I must add it to my list(my aim is to visit all of them in my life, I did about half before dialysis got in the way). Maybe I'll have to come visit you when I'm able and you can show me how friendly you are (wait, that sounds wrong...  :rofl;) and show me the state :)

Again, welcome to IHD!  :grouphug; :grouphug; :grouphug; :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Des
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« Reply #16 on: August 27, 2010, 03:07:59 AM »
Quote from: casper2636 on August 26, 2010, 07:12:36 PM
Thank you all for the wonderful welcome! I've been feeling so alone for so long, I'm so happy I found this site! I was delinquent in giving you more information about myself.
I am from Wilmington, Delaware and do in center dialysis. My kidney failure is due to anorexia, and uncontrolled high blood pressure. I carry a lot of guilt because I sped up the process of my failure, and I could have had more time without dialysis.
I thank you again for the warm welcome and hope I answered some of your questions.
Smiling in Delaware,
Casper2636
You are more than welcome.
Do not blame yourself anymore! You can now take a positive stand and your future is in your hands. 
You will never feel judged or alone with this crowd.
D
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
cariad
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What's past is prologue
« Reply #17 on: August 28, 2010, 05:02:37 PM »
Hi Casper, and :welcomesign;

Ah, someone else familiar with food issues! I was a long term anorexic myself, but feel I am entirely over that now - hope you are able to say the same. To be honest, I think the anorexia and troubles surrounding that were much more difficult for me than kidney failure, so congrats to you for making it this far. No need to blame yourself. There is no such thing as living a perfectly healthy life, we all do the best we can at the time. Please be very aware of your PTH, as with anorexia you would be at increased risk of osteoporosis anyway and kidney failure can be murder on the skeleton.

I am glad that you found IHD and look forward to getting to know you better! :flower;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cloud393
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« Reply #18 on: August 28, 2010, 05:22:59 PM »
welcome!
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May you live as long as you want and never want as long as you live.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #19 on: September 01, 2010, 06:59:38 AM »
Welcome to our community, Casper!   Really glad that our found us.  I have to reiterate many things that others have already said.
1.  Now you are never alone.  If you allow us, we will be with you all the way.
2.  Most of us have to admit that we were in some way responsible concerning speeding up our kidney failure.
Having said that, the good part is that you are now part of a wonderfully caring and sharing, genuine family  :grouphug;  Just keep reading and keep posting so that we can know how you are doing.
Looking forward to hearing from you.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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