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Author Topic: back to the hospital?  (Read 4061 times)
gothiclovemonkey
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« on: August 15, 2010, 06:37:54 PM »

 :thumbdown; :thumbdown; :thumbdown;
I guess im headed back to the hospital... :rant;
Not getting hardly anything off on PD.... Ive gained ANOTHER 15lbs in 2 days.... a grand total of 33lbs in 2 weeks. now im not even getting enough off to weigh on the scale thing, and my tummy is so huge none of my clothes fit and i cant bend over at all. hurts like H*** I wonder if my doctor will actually listen to me now?  ??? :rant;
 :thumbdown; :thumbdown; :thumbdown;
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RichardMEL
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« Reply #1 on: August 15, 2010, 07:48:06 PM »

yikes. that's no good :( hope it wasn't my miniskirt comment!!!!

So you think something's wrong with your catheter or something? The fluid just not draining out? that's a bit scary! hope they can sort it out quick smart for you!!

 :grouphug; :grouphug; :grouphug; :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Jean
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« Reply #2 on: August 15, 2010, 11:41:13 PM »

Awww, sorry kiddo. That sounds horrible. Sure hope they get it sorted out soon and you can feel better, and lighter too!!!
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One day at a time, thats all I can do.
Marina
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« Reply #3 on: August 16, 2010, 12:51:39 AM »

There's  a high  possibility  that  you're  a  HIGH  transporter  and  need  shorter  dwell times.  that  was  happening  to  my  brother.   His  feet  were  so  swollen,  he  said    "walking  felt  like walking  on  jello"               

Hope your  problem  gets  resolved  soon  and you  won't  have  to  switch  to  hemo!!
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
Poppylicious
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« Reply #4 on: August 16, 2010, 03:59:10 AM »

Awww.  My Blokey wasn't getting anything off on PD despite them trying lots of different things.  They gave up on him in the end, but as soon as he went back to haemoD he felt much better (physically rather than mentally) and lost all that nasty weight that he'd gained.  I really hope that they can work out a solution so you can stay on PD.

*hugs*
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Dianejt
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« Reply #5 on: August 16, 2010, 05:13:02 AM »

I hope finally something is done to make you feel better. :flower;
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
natnnnat
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« Reply #6 on: August 16, 2010, 06:03:48 AM »

I'm glad you're going in again to get it looked at, hopefully you can get some answers this time.   ???
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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« Reply #7 on: August 16, 2010, 06:07:46 AM »

A possibility of 3 things .. 1) you need stronger fluid to pull it off (and many people dont restrict their fluid intake when on pd , i was told i was on a restriction just the same as hemo peeps are !

2) Your cath may have moved or you may have fibrin blocking it

3) Depending on how long you have been doing pd ..it may be coming to an end.

Anyway best of luck , hope they sort you out  :2thumbsup;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Stoday
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« Reply #8 on: August 16, 2010, 03:09:52 PM »

:thumbdown; :thumbdown; :thumbdown;
 a grand total of 33lbs in 2 weeks.

Wow! In 2½ years you'll weigh a TON:rofl;

Sorry, gothiclovemonkey, I couldn't resist it. Call me a rude name and get your own back.  :)
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
texasstyle
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« Reply #9 on: August 16, 2010, 06:11:06 PM »

I hope this gets straightend out soon. That must be horrible what you're going through. Geez.... Hugs,
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caregiver to husband using in-center dialysis 4 years
FindingNeverland
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« Reply #10 on: August 16, 2010, 06:32:18 PM »

Don't make my mistake and let it go too long, my fluid build up got to the point they had to drain me, they got 750ccs off and then unfortunately I suffered one of the side effects of being drained, a partial lung collapse. I was in the hospital from July 31st to August 9th, I still have fluid around the lining of my lungs and they said I need more dialysis to get the fluid off because it's causing too much strain on my heart. I'm on oxygen and my poor hubby has had to carry me up the stairs to bed. Any who, good luck, I hope they can do something for you. 
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Razman
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« Reply #11 on: August 16, 2010, 06:43:14 PM »

    I hope that everything will be OK.  We'll all be thinking about you.   :grouphug;
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Riki
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« Reply #12 on: August 16, 2010, 07:48:56 PM »

do you know what kind of tubing you have?  When I first started PD nearly 20 years ago, They put in a regular, straight tubing, and let it float (iow, it wasn't anchored).  It somehow flipped, and would fill, but would not drain.  What they had to do was order a special type of tubing, that's curled like a pig's tail.  It could flip and flutter around as much as it wanted to, and it would always drain and fill.

But, this is a rare thing.. first things first, ask about heparin to get rid of any fibrin that could be blocking things.  You can sometimes see it in the dialysate, it looks like white strings.  Another thing you may need to do is check the dineal strengths.  It sounds like a fibrin issue to me, though.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
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HD - Dec 2008-present
gothiclovemonkey
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« Reply #13 on: August 17, 2010, 10:52:10 AM »

im at the hospitqal, they are running tests. So far we dont know anything. Except that he put me back on hemo for now...
i had some fibrin in my bags, so maybe its clogged, but the drs are baffled by my skin looking like this, all swollen and strange.
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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Dianejt
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« Reply #14 on: August 17, 2010, 01:13:58 PM »

hope they get you feeling better real soon.http://ihatedialysis.com/forum/Smileys/classic/new_flower.gif
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
gothiclovemonkey
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« Reply #15 on: August 17, 2010, 01:18:26 PM »

so far, all i know is pd isnt woking. i dont know what kind of tube i have, but i think its the curled one...
they did another catscan so im waiiting to find out the results of that.
that was this morning...its 330pm now... lol
idk i just know it hurts and i wish i didnt have to do hemo
thank you everyone ill keep yall informed...
 :thx;
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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Tabbygirl
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« Reply #16 on: August 17, 2010, 05:57:59 PM »

Aww, I feel so bad for you, it must be terribly uncomfortable and painful.  I'm wishing the best for you and I hope that they figure out what is wrong very soon.
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RichardMEL
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« Reply #17 on: August 18, 2010, 01:01:00 AM »

I have a cat scan every night when my kitty sits on my lap and stares at me......

(sorry just wanted to interject that to brighten up your day  :cuddle; :cuddle; :cuddle;)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
KICKSTART
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« Reply #18 on: August 18, 2010, 02:36:35 AM »

 :clap; RM that was just purrrrfect . GLM i hope your stay in hospital isnt too long  :2thumbsup;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
gothiclovemonkey
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« Reply #19 on: August 20, 2010, 09:02:18 AM »

lol @cat scans
surgery today. They are going to look at the pd cath, and fix or remove/replace it, and possibly remove hernia as well. When all is said and done, and this massive swelling goes down, i have to have more tests because i also have some mass growing on my ovary
they cant see due to the swelling (they saw it enough to know its there, but not enough to know what it is???? wtf?)
im special.
on my way to surgery now see yall when i wake!  :pray;
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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LISTED ACTIVE! 11/14/11 !!!
Poppylicious
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« Reply #20 on: August 20, 2010, 09:44:59 AM »

Hope it all goes okay. x
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Zog
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« Reply #21 on: August 20, 2010, 11:31:37 AM »

Sorry to hear PD isn't working.  Hope they can fix it!  Don't worry too much about the mass on your ovary.  My wife has gotten a few cysts on hers over the years.  She had one drained and the last softball sized one disappeared over the course of 4 months.
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My wife is JDHartzog. In 1994 she lost her kidneys to complications from congenital VUR.
1994 Hydronephrosis, Double Nephrectomy, PD
1994 1st Transplant
1996 PD
1997 2nd Transplant
1999 In Center Hemo
2004 3rd Transplant
2007 Home Hemo with NxStage
2008 Gave birth to our daughter (the first NxStage baby?)
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« Reply #22 on: August 21, 2010, 02:37:17 AM »

 :waving; Hi - hope everything went ok and you're healed soon!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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« Reply #23 on: August 21, 2010, 05:40:31 PM »

I have a cat scan every night when my kitty sits on my lap and stares at me......

(sorry just wanted to interject that to brighten up your day  :cuddle; :cuddle; :cuddle;)

Hey  Richard,   
 :secret;  I  used  to  have  those  kind of  cat scans  all the  time,,,,,,,,,I  miss  my  cats   :'(
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
Marina
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God Bless my donor family!! :)

« Reply #24 on: August 21, 2010, 05:42:21 PM »

im at the hospitqal, they are running tests. So far we dont know anything. Except that he put me back on hemo for now...
i had some fibrin in my bags, so maybe its clogged, but the drs are baffled by my skin looking like this, all swollen and strange.
 

Hope you  feel  better  real  soon, and hope they  find  that  cause of this problem  soon  too!   
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
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