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Author Topic: Where is all the YOUNG CROWD !!!  (Read 9641 times)
jdwills83
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LOVE will fix ANYTHING.

« Reply #25 on: August 13, 2010, 11:03:48 PM »

im 27 and im not the youngest in my clinic... I think there is a guy there who is 24.  ANYWAYS, sucks to be young and on dialysis...but there are a few here....
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topazbeauty
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« Reply #26 on: August 14, 2010, 12:02:50 AM »

I was 22 when I started last year, and I had my transplant earlier this year. I actually kind of liked being one of the young ones. I liked that as I was going through the acceptance process to get a transplant that it got others deciding to try. I tried to keep a happy uplifting adittude at the unit and you could tell how much it meant to the other patients there. Try to make something good out of it. I would make a goal to meet one person each week. And whenever we had a new patient (no matter what age) I would introduce myself and try to help them along. Being young sucks, but use it to your advantage to raise the moral of the people around you.

It's not too bad. Believe it or not, I actually go back to visit after my transplant to see people and talk to them for a treatment.
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Jes 23
MPGN-1 '98
Remission for 10 years!
12/1/2009 - permacath placed and first round of Hemo
12/2/2009 - transplant center recieved all my documents! Waiting for appointment
2/2010 - approved for transplant
3/18/2010 - Dad not approved due to medial reasons
4/28/2010 - Living tranplant from Mom
carson
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« Reply #27 on: August 14, 2010, 02:56:41 PM »

I was 14 when I started PD, had a transplant that lasted until I was 30, then back on PD until I was 41, now I'm on HD  and at 43 I'm one of the youngest in the clinic....it's always been that way
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
brandi1leigh
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« Reply #28 on: August 14, 2010, 08:55:45 PM »

I'm 34. There's only one guy who's younger than me (I think--I haven't actually asked how old he is). I agree that all the literature is aimed at those much older! The financial coordinator and the social worker at my clinic don't know how to deal with me. In fact, the doctor doesn't seem to know how to deal with me. The questions I have are different than a lot of of the other patients. For example, will I ever feel like going back to work? Right now I'm on disability, but pretty soon I won't be able to live on that. Since almost all of the other patients are retired, I'm in a weird position.
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gothiclovemonkey
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« Reply #29 on: August 14, 2010, 09:15:50 PM »

the social worker at my clinic couldnt even help me figure out how to find child care for the times i was on treatments lol it was really bad because im too on disability, and cant afford child care on my own...
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Riki
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« Reply #30 on: August 14, 2010, 09:39:24 PM »

This is why the world thinks that kidney disease and kidney failure is an old person's disease, because there is so little information to help those of us who are younger.  It's obviously not an old person's disease, since so many of us were diagnosed and even dialyzed as children.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
RichardMEL
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« Reply #31 on: August 14, 2010, 11:46:21 PM »

I totally want to be in your unit when you wear a short skirt on the recliner!!!!!  >:D >:D >:D >:D >:D >:D >:D >:D >:D >:D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
gothiclovemonkey
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« Reply #32 on: August 15, 2010, 07:23:05 AM »

lol
i bet im not the only one that gives the staff trouble ;)
its fun you guys should try it. makes everyones life a bit more insteresting and fun! hehe
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
KICKSTART
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« Reply #33 on: August 15, 2010, 08:59:22 AM »

Dont talk to me about giving staff trouble .! hehe . Im sure im the youngest on my unit , i think the rest are OAP'S . My age ? well my mental age is far different from my physical age !  :rofl;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Zach
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"Still crazy after all these years."

« Reply #34 on: August 15, 2010, 09:27:59 AM »


 My age ? well my mental age is far different from my physical age !  :rofl;

:beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Dianejt
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« Reply #35 on: August 15, 2010, 09:53:13 AM »

  My age ? well my mental age is far different from my physical age !  :rofl;
Yeah mentally I'm 19, although somedays I feel 80 or my body does. Really I'm 54.
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
Riki
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« Reply #36 on: August 15, 2010, 01:54:04 PM »

Yep... Chronologically, I'm 32... but I"m sure my body is in it's 80s, but mentally, I'm 12..
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Beth35
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« Reply #37 on: August 15, 2010, 04:11:21 PM »

I'm in Jersey.  I live in Central Jersey near the Princeton/Trenton area.  I first started dialysis when I was 20.  It was hard not knowing anyone that was young and dealing with the same issues.  All of the folks next to me were really old and you can't really relate to older folks.  I understand that you would like someone your age to relate to.  Not like you are wishing someone to be on dialysis at a young age, but looking to find someone who you can relate to.  I wish I had that when I was younger. 

I got a transplant when I was 25 and it has lasted about 12 years.  I am still handing onto it as long as I can but my kidney is failing me again.  I just had my second fistula surgery and I should be starting dialysis again now at 36.

So if you ever want to talk about it, you have another Jersey person here!
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Found out I had kidney disease when I was 15.
Started dialysis when I was 20.
Got a kidney transplant when I was 25.
Kidney failed at 37 and I began my second journey on dialysis.
gothiclovemonkey
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« Reply #38 on: August 15, 2010, 06:33:20 PM »

Im 26, my body feels older, and my brain.... well... heh... my 6 year old tonight told me.. "No no No mommy, do not play with ur food!"
If that tells u anything ;)
what is OAP? (as a guess... old BEEP people?)
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
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LISTED ACTIVE! 11/14/11 !!!
RichardMEL
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« Reply #39 on: August 15, 2010, 07:45:33 PM »

I have fun in my unit sometimes. I bring them mango hand wash from the body shop which they love. On Saturday I was naughty and brought extra "medicine" for myself (a hip flask full of vodka) because my crappy football team was playing, and they got their backsides handed to them as I knew they would. I needed to calm down. Hey, it worked my BP stayed in the perfect range and my pulse was normal... this is what a depressant does for you. Alas when I was leaving one of my exit sites started to bleed. I joked that the "medicine" had thinned my blood a bit and that's why it didn't clot very well (yes I know that makes no sense.. hey I was "medicated"  :rofl;).

The staff despite telling me it was against hospital rules blah blah blah had a laugh and let me be.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Stoday
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« Reply #40 on: August 15, 2010, 07:59:52 PM »

what is OAP?

Old Age Pensioner.

OAP is a term of abuse in the UK, equivalent to coffin dodger; wrinkley etc.  :laugh:
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
KICKSTART
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« Reply #41 on: August 16, 2010, 06:12:09 AM »

Aww come on its not a term of abuse, its what people over 60 are called here !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Stoday
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« Reply #42 on: August 16, 2010, 03:02:44 PM »

Well, a very weak term of abuse. I don't like being called an OAP even though I am one and I avoid looking in a mirror in case I see one...
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
FindingNeverland
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« Reply #43 on: August 16, 2010, 06:23:42 PM »

I'm 27, when I did PD nine years ago I was 17. I don't think I'm the youngest to go to my clinic but anyone who remotely looks my age is always leaving when I see them. I'm actually older than two of our techs, I find it kind of funny.
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~*Laughter is the Language of the Soul*~
-Lady Noir-
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Where's your will to be weird?

« Reply #44 on: August 16, 2010, 06:52:51 PM »

what is OAP?

Old Age Pensioner.

OAP is a term of abuse in the UK, equivalent to coffin dodger; wrinkley etc.  :laugh:

 :rofl;
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
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« Reply #45 on: August 16, 2010, 07:41:04 PM »

I have fun in my unit sometimes. I bring them mango hand wash from the body shop which they love. On Saturday I was naughty and brought extra "medicine" for myself (a hip flask full of vodka) because my crappy football team was playing, and they got their backsides handed to them as I knew they would. I needed to calm down. Hey, it worked my BP stayed in the perfect range and my pulse was normal... this is what a depressant does for you. Alas when I was leaving one of my exit sites started to bleed. I joked that the "medicine" had thinned my blood a bit and that's why it didn't clot very well (yes I know that makes no sense.. hey I was "medicated"  :rofl;).

The staff despite telling me it was against hospital rules blah blah blah had a laugh and let me be.

My nurses would have expected me to share
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
murf
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« Reply #46 on: August 16, 2010, 08:23:56 PM »

I get a little sad whenever I see younger people at the center. I am of a reasonable age and think I've had a pretty good life. But I do feel for youngsters. It is the age where they should be out clubbing, chasing the opposite sex, drinking with their mates. Not a time to be stuck in a hospital with a tube stuck out their arm. I'm on the transplant list but would happily give it up to a younger person.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
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