Introduction

[Barb]

Hi everybody! I'm new to this site, although I have come across it a few times, I have never made my introduction. My name is Barb and I'm 56 years old and live in Florida. I was diagnosed with IGA Nephropathy about 13 years ago.My GFR at the time was about 17. I felt fine and was able to work as a kindergarten teacher with no problems. In 2007, I had a kidney transplant which was removed the next day because of clotting. (My sister had donated her kidney to me.) I had never been on dialysis to that point. I still felt pretty good even after the failed transplant.  In October 2009, my doctor and I felt it was time to start dialysis because my GFR was about 6, even though I still felt good. It was a hard decision to make. So I had the pertioneal access put in and have been on PD since then. I have finally gotten use to the routine and the time I need to do what I have to do each night and each afternoon. I'm still waiting for a kidney. I actually had to go to the transplant center for an update. They say I'm getting close to the top!
I think this site is a great support for us, and I hope to come back often!

[galvo]

G'day, Barb and   .

[Jean]

Glad you decided to introduce yourself Barb. Your story is very encouraging also. I am at GFR of 25 for over a year now, and hope it continues until I drop dead by being hit by a truck or something else easy. JK!!! So, anyways,    to IHD,

[Bajanne]

Welcome to our community, Barb.   Glad you took the time to introduce yourself. Looking forward to hearing more from you.  It's good that you are settling in to the routine.  Hope you get your transplant soon!   You will find that this site is an excellent place for all kinds of information and lots of support. In fact, it is much more than just a site - it is a genuine family.    Just keep reading and keep posting.




Bajanne, Moderator

[Rerun]

Hi Barb and I'm so glad you joined.  What a disappointment that your sister's kidney clotted.  I would like to know more about what they said happened.  Is that common? 

Hope you enjoy the site.

Rerun - Moderator      

[Barb]

They said it happens in about 1 in 200 cases. They don't really know why it happens. It was a great disappointment for me and my sister.

[jbrock]

  Barb!!

Joy