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Author Topic: Call me Mogee  (Read 2620 times)
mogee
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« on: August 07, 2010, 08:14:31 PM »
I've been on home nocturnal dialysis for nearly six years.  It is the only renal replacement therapy I have ever used.  I'm 53 years old, married and with a teenage daughter.  My wife is profoundly disabled from multiple sclerosis.  I live in Toronto, Canada.  In 2002 I discontinued my law practice and have not worked since.  Nocturnal hemodialysis has been very effective for me, and as a result I am not eager for a transplant.  I maintain my eligibility on the transplant list, but I'm very ambivalent about actually having a transplant.
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PKD and IgA Glomerularnephritis
Nocturnal Home Hemo since 2004
Deceased Donor Transplant November 6, 2012
Zach
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"Still crazy after all these years."
« Reply #1 on: August 07, 2010, 08:22:23 PM »
Good to have you here, Mogee!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
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Going through life tied to a chair!
« Reply #2 on: August 07, 2010, 08:44:04 PM »
Hey Mogee.  I'm so glad you found us.  I think you will find this site interesting.  Lots of new things everyday.  Yes, you do have the best replacement therapy "home Nocturnal"..... in my openion.  I've had a transplant and it lasted 17 years and it was great, but I'm not standing in line for another one.

I hope you are active on this site.

Rerun, Moderator        :welcomesign;
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jg
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« Reply #3 on: August 07, 2010, 09:09:57 PM »
Mogee:

I am your age and just started home nocturnal hemo  8 hours x 6 nights per week. I grew up in Toronto and originally was diagnosed with kidney disease there.
Now I am living in Calgary, struggling with dialysis while waiting for a transplant.
Feel free to check out the Dialyzing in Canada thread in the General Discussion section.
 :bestwishes;
 jg      :canadaflag;
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Jean
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« Reply #4 on: August 07, 2010, 11:54:22 PM »
 :welcomesign;
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One day at a time, thats all I can do.
galvo
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« Reply #5 on: August 08, 2010, 04:39:41 AM »
G'day Mogee and  :welcomesign;.
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Galvo
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« Reply #6 on: August 08, 2010, 05:48:21 AM »
Hi Mogee....

Good to see you, and you're very  :welcomesign; ti IHD....

Visit regularly, and post often....

We're a friendly bunch, but you'll find that the others aren't nearly as quiet, and shy, and retiring as I am!!!... :shy;..... I'm a real shrinking violet!!!!.... What are the rest of you horrible lot laughing at?????.... I AM quiet... When I'm asleep!.... :rofl;

Love....

Darth.....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
MyssAnne
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« Reply #7 on: August 08, 2010, 06:16:51 AM »
Welcome, Mogee!  I'm ambivalent about a transplant also, am on HD for 2 years, PD for 3 before that.
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carson
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« Reply #8 on: August 08, 2010, 09:07:18 AM »
Welcome!
 I used to live in Toronto before moving up to the Collingwood area 9 yrs ago. Lovin' it!!
I am with Dr Chan at TGH and have been doing nocturnal home hemo for almost 3 yrs after being on PD for 10 and transplanted for 15 prior to that!
I wish I could have another transplant but I'm not eligible at this time...maybe down the road though.
In the meantime I'm doing very well on hemo, though I've become an addict and dialyze 7 days/wk most weeks.
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
Razman
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« Reply #9 on: August 08, 2010, 10:11:08 AM »
  Hello from another Canadian member.  I'm not on D yet but I have been dealing with IgA  for years and I now see my doctor at the hospital.   It's great that you joined and I trust that you will visit often.    :welcomesign;
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takamore
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« Reply #10 on: August 08, 2010, 12:40:47 PM »
glad to see you found AND enjoying the site!!! 
i think you have a lot to offer.
and judging from your posts, you've jumped right in with both feet!!!
see you at group thurs and say hi to bebe for me
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monrein
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Might as well smile
« Reply #11 on: August 08, 2010, 06:48:25 PM »
 :welcomesign;  another Canadian here.  I'm a few years older than you and also a TGH patient in Toronto, although I'm now on my second transplant.  Dr. Cole is my primary neph but while I was back on dialysis between transplants I was with Dr Richardson. 
See you around IHD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #12 on: August 10, 2010, 12:05:59 AM »
Welcome to our community, Mogee.  I really like the idea of nocturnal dialysis, but sadly, the only kind of dialysis offered here (British Virgin Islands) is the 3 day a week, 3 - 5 hours dialysis.  But, it is keeping us alive!  Please take advantage of all this site has to offer - information, support and a place to rant, rave, rage and vent.  Looking forward to hearing from you.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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