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Author Topic: Surgery Update/Complication  (Read 16126 times)
natnnnat
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« Reply #25 on: August 19, 2010, 07:42:36 AM »
When Gregory got his kidney, it leaked too, but that was because the urether didn't work.  At any rate once they'd sorted that out he's been going fine and you will too I bet.   I hope you heal now and this leaking business eases off.  Its okay to leak a bit while you're healing but then enough.    Are you still feeling well otherwise, like you said earlier?
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
BASSMAN
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« Reply #26 on: August 25, 2010, 03:00:34 PM »
I got the drain catheter removed yesterday.  I will have an ultra sound in two weeks to make sure that the leaking has stopped.  Fingers crossed!

Creatinine still 1.6.
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
paris
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« Reply #27 on: August 25, 2010, 04:55:44 PM »
I've got my fingers crossed for you, too!    Let us know when you have the ultrasound. 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
natnnnat
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« Reply #28 on: August 25, 2010, 10:16:07 PM »
fingers crossed, check!
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
BASSMAN
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« Reply #29 on: September 12, 2010, 02:08:58 PM »
I got the stint removed and I am a little sore from that but everything is looking good. I still have a small collection of fluid around the transplanted kidney but it is much much smaller and they will just watch it for now. It is not causing me any problems now. Colleen is doing great, she has kidney function as good as someone with two kidneys.
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
paris
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« Reply #30 on: September 12, 2010, 07:02:26 PM »
Playing catch up on posts-------so glad things are going a little smoother.  Not looking forward to the stent removal, but I think you guys have it worse!   Sounds like you doctors are on top of things and that is good.    :2thumbsup;     Keep healing, resting and renewing.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
BASSMAN
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« Reply #31 on: September 13, 2010, 05:11:13 AM »
Congrats on your transplant!  I was amazed at how much better I feel even though mine was preemptive too.

I could not believe the size of that thing!!  I thought it was a little stint but it is about 5 inches long and curled on the ends.  They squirted some lidocaine into my urethra and then clamped the end of you know what for a couple minutes.  I got to watch it all on the screen.  I was amazed at the clarity of that little camera they shove up inside you.  It hurt a little and it stung every time I went to urinate for the rest of that day but it was back to normal the next morning.  Felt like a bladder infection.  I asked about peridium but they did not want me to take it.  I guess they didn't want it going through the new kidney..
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
paris
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« Reply #32 on: September 13, 2010, 03:03:54 PM »
5 inches !!!  camera?????   Thanks Bassman for the visual!!!!    Mine comes out in October.  I'm not going to worry until then.

I am enjoying reading your posts.  Keep them coming.  You are helping me.   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
BASSMAN
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« Reply #33 on: September 13, 2010, 04:19:46 PM »
Check them out.

http://www.google.com/images?client=firefox-a&rls=org.mozilla%3Aen-US%3Aofficial&hl=en&source=imghp&biw=1024&bih=598&q=ureter+stint&btnG=Search+Images&gbv=2&aq=f&aqi=&aql=&oq=&gs_rfai=
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
paris
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« Reply #34 on: September 13, 2010, 05:31:25 PM »
Oh my!!!   I thought we were friends!!  Those pictures really didn't calm my fears!!    Just don't think about it, just don't think about it...........

I can do this!   I guess I don't have any choice.   My husband said they would have to knock him out.   :rofl;       You sure do lose all your dignaty during this, don't you.    :rofl;   :rofl; 

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It's not what you gather, but what you scatter that tells what kind of life you have lived.
chris73
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its me ...Chris

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« Reply #35 on: September 13, 2010, 07:20:45 PM »
Quote from: paris on September 13, 2010, 05:31:25 PM
Oh my!!!   I thought we were friends!!  Those pictures really didn't calm my fears!!    Just don't think about it, just don't think about it...........

I can do this!   I guess I don't have any choice.   My husband said they would have to knock him out.   :rofl;       You sure do lose all your dignaty during this, don't you.    :rofl;   :rofl;
Paris, i about worried my self crazy about the the stent removal,it was nowhere bad   as i thought it was gonna be.you will do fine, im sure you  are like me been through worse! dont worry  yourself  for nothing.hope you have positive thoughts :cuddle;
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
okarol
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« Reply #36 on: September 13, 2010, 11:02:13 PM »
Those pictures would scare anyone!
Paris, the distance is shorter for women.
Jenna's stent removal was a little tug, out it came, no pain.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BASSMAN
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« Reply #37 on: September 14, 2010, 05:24:38 AM »
I am sorry paris. I didn't mean to scare you, just prepare you.  I won't post one of the cytoscopy but I did read this.

The doctor will gently insert the tip of the cystoscope into the urethra and slowly glide it up into the bladder. The procedure is more painful for men than for women due to the length and narrow diameter of the male urethra. Relaxing the pelvic muscles helps make this part of the test easier. A sterile liquid (water, saline, or glycine solution) will flow through the cystoscope to slowly fill the bladder and stretch it so that the doctor has a better view of the bladder wall.

As the bladder reaches capacity, patients typically feel some mild discomfort and the urge to urinate.
Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
paris
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« Reply #38 on: September 14, 2010, 11:58:51 AM »
I'm ok Bassman!   Just the 5 inches and a camera !!   I did birth 4 children so I will revert back to my breathing techniques and "deliver" a stent!   :rofl;    :rofl;

Thanks Chris and Okarol -- Thanks for the comforting words.    :cuddle;    I will let you know when this happens so you all can think good thoughts that day   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #39 on: September 18, 2010, 07:49:55 AM »
 :2thumbsup; Please add to the Honor Roll!
http://ihatedialysis.com/forum/index.php?topic=18641.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BASSMAN
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« Reply #40 on: September 29, 2010, 03:00:10 PM »
My creatinine

7/23 day after transplant  creatinine 1.2           lowest creatinine level reached
7/28                               creatinine 1.4           prograf 4
7/30                               creatinine 1.59         prograf 6
8/03                               creatinine 1.75         prograf 10.1
8/06                               creatinine 1.81         prograf 14.4
8/09                               creatinine 1.57
8/12                               creatinine 1.6           prograf 10.1
8/17                               creatinine 1.65         prograf 7.9
8/30                               creatinine 1.65         prograf 9.8
9/16                               creatinine 1.8           prograf 10
9/24                               creatinine 1.49         prograf 13
9/29                               creatinine 1.41         prograf 9.3   lowest level since  7/28    5 days post transplant

currently 4mg Prograf bid       720mg Myfortic bid     10mg prednisone once a day


some labs are missing but a good log to show the progression of things.


Things are looking up!!!!
« Last Edit: September 29, 2010, 03:04:28 PM by BASSMAN » Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
MooseMom
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« Reply #41 on: September 29, 2010, 03:05:04 PM »
Outstanding!!!  It is always wonderful to hear good news around here!!!  Is Colleen still wearing her sparkly kidney?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
BASSMAN
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« Reply #42 on: September 29, 2010, 03:08:51 PM »
Every single day.   She doesn't take it off.  She sleeps and showers with it!

Good Idea!!!!   I actually planned on doing that even before the transplant.

I have never had a piercing or tattoo but I want a tattoo so bad.  I swore I would never get a tattoo unless it was to commemorate something really big,  but I don't want to risk the kidney.
« Last Edit: September 29, 2010, 03:15:52 PM by BASSMAN » Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
okarol
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« Reply #43 on: September 29, 2010, 03:38:36 PM »
 :yahoo; Great to hear you're doing well!
I hope Colleen is feeling fine too. Did she have any trouble in her recovery?
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BASSMAN
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« Reply #44 on: September 29, 2010, 04:37:05 PM »
Quote from: okarol on September 29, 2010, 03:38:36 PM
:yahoo; Great to hear you're doing well!
I hope Colleen is feeling fine too. Did she have any trouble in her recovery?

No trouble it was uneventful, just the usual discomforts.  Her creatinine is .9.
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
natnnnat
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« Reply #45 on: September 29, 2010, 08:08:34 PM »
 :thumbup; Good to hear you are both coming good. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
boswife
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us and fam easter 2013
« Reply #46 on: September 29, 2010, 08:45:32 PM »
this was great reading... Glad i got in on it late so i didnt have the worry with ya..Thats not so nice to say now is it.. I just mean, i would of worried, and it seems now, it would have been for nothing  :yahoo;  So happy for the both of you!!!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
ChickenLittle56
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Chickenlittle and Maria
« Reply #47 on: September 29, 2010, 10:48:26 PM »
Its good to hear good news. I am glad you and Colleen are in good shape. :2thumbsup;
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
BASSMAN
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« Reply #48 on: October 07, 2010, 06:43:04 PM »
LAB REPORT

Creatinine 1.45
Prograf 10.1
Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
MooseMom
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« Reply #49 on: October 07, 2010, 06:52:13 PM »
Quote from: BASSMAN on October 07, 2010, 06:43:04 PM
LAB REPORT

Creatinine 1.45
Prograf 10.1

I hope that's good...I haven't a clue! :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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