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| | |-+  Down the river with a cycler - NxStage conquers the Rogue
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Author Topic: Down the river with a cycler - NxStage conquers the Rogue  (Read 3585 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: August 04, 2010, 04:49:16 PM »

July 25, 2010
Down the river with a cycler -
NxStage conquers the Rogue


By Bill Peckham

The trip was a 100% success. The only disappointment was that one of the dialyzors, Jim, wasn't able to go due to illness in the days before the start. We were able to fill Jim's two spots at the last minute; Megan and Sasha didn't know they were going until three days before they found themselves running rapids on the Rogue. Dan and Connie drove in from Salt Lake City on Sunday, both he and I dialyzed the night.....

To read the rest of the story go to: http://www.billpeckham.com/from_the_sharp_end_of_the/2010/07/nxstage-rafting-the-rogue.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."

« Reply #1 on: August 04, 2010, 08:11:21 PM »

 :beer1; :beer1; :beer1; :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Bill Peckham
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« Reply #2 on: October 25, 2010, 07:35:48 PM »

Dan who was the other dialyzor on the trip down the Rogue trip put together this video together for the Las Vegas NxStage meeting earlier this month - it's about 15 minutes


http://www.youtube.com/watch?v=l0rgiXWEVQM


And there is KidneyTalk about the trip posted too
http://www.rsnhope.info/programs/kidneytalkshows/Peckham_Bill/Peckham_Bill_082410.php
« Last Edit: October 25, 2010, 07:38:02 PM by Bill Peckham » Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Hemodoc
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« Reply #3 on: October 26, 2010, 12:09:33 PM »

Great video and KidneyTalk Bill.  You and Dan really pushed the envelope and broke it with your trip down the Rogue.
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Peter Laird, MD
www.hemodoc.info
Diagnosed with IgA nephropathy 1998
Incenter Dialysis starting 2-1-2007
Self Care in Center from 4-15-2008 to 6-2-2009
Started  Home Care with NxStage 6-2-2009 (Qb 370, FF 45%, 40L)

All clinical and treatment related issues discussed on this forum are for informational purposes only.  You must always secure your own medical teams approval for all treatment options before applying any discussions on this site to your own circumstances.
boswife
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us and fam easter 2013

« Reply #4 on: October 28, 2010, 06:50:32 PM »

WOW!! how increadably encouraging is that!!  For me, it takes the 'sting' out of dialysis hearing how it's just a part of your lives not your LIFE... That was great to see.  Im excited to get into the NxStage club  :2thumbsup;  (wow, thats kinda weard isnt it..lol)  I mean, if we gotta dialysise, and it works for us,  we're going to be some people with more freedome.   So glad you all share these things..  THANKS :-)
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
kitkatz
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« Reply #5 on: October 29, 2010, 05:33:21 PM »

You have such great adventures. Thanks for sharing one.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
greg10
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« Reply #6 on: November 07, 2010, 06:15:28 AM »

Very nice trip.  We almost got to find out if Dialysis Dan floats at 4:04 in the video; very impressive :bow;

We didn't get to find out whether the NxStage cycler and hard case floats though  :)

Most NxStage users could use the help of that guy loading the case into the raft to move their NxStage cycler and supplies, he made it looked easy.  :bow;
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Newbie caretaker, so I may not know what I am talking about :)
Caretaker for my elderly father who has his first and current graft in March, 2010.
Previously in-center hemodialysis in national chain, now doing NxStage home dialysis training.
End of September 2010: after twelve days of training, we were asked to start dialyzing on our own at home, reluctantly, we agreed.
If you are on HD, did you know that Rapid fluid removal (UF = ultrafiltration) during dialysis is associated with cardiovascular morbidity?  http://ihatedialysis.com/forum/index.php?topic=20596
We follow a modified version: UF limit = (weight in kg)  *  10 ml/kg/hr * (130 - age)/100

How do you know you are getting sufficient hemodialysis?  Know your HDP!  Scribner, B. H. and D. G. Oreopoulos (2002). "The Hemodialysis Product (HDP): A Better Index of Dialysis Adequacy than Kt/V." Dialysis & Transplantation 31(1).   http://www.therenalnetwork.org/qi/resources/HDP.pdf
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