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Author Topic: New to this site, but not dialysis  (Read 4151 times)
noahvale
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« on: July 30, 2010, 08:49:26 PM »
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« Last Edit: September 16, 2015, 02:03:18 AM by noahvale » Logged
MooseMom
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« Reply #1 on: July 30, 2010, 08:59:01 PM »
I'm so glad you found us.  We are always grateful for new members who are willing to take the time to tell us about their experiences; we all have so much to learn from each other, so thank you for taking the time to post.  You must have seen a lot in all of your years on dialysis.  Gee, since 1978!  That's impressive.  I'm eager to hear your thoughts on plasmapheresis as you decide on your next step.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
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Going through life tied to a chair!
« Reply #2 on: July 30, 2010, 09:41:55 PM »
Hi Noah and welcome to IHD.  You story is so similar to mine.  I started dialysis at age 24 in 1987.  My transplant lasted 17 years and I returned to dialysis in 2005 and my antibodies are high since 25 years ago they gave me 5 rapid blood transfusions as part of the transplant work-up.  I am really looking forward to your posts and I hope you stick around.

Rerun, Moderator       :welcomesign;
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Zach
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"Still crazy after all these years."
« Reply #3 on: July 31, 2010, 09:25:18 AM »
It's great to have you join our community.
And let's hear it for optimal hemodialysis (and no reuse)!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Sax-O-Trix
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« Reply #4 on: July 31, 2010, 04:35:47 PM »
Welcome!  It's always encouraging to hear from "old-timers".   What is "reuse"???
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Preemptive transplant recipient, living donor (brother)- March 2011
Riki
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« Reply #5 on: July 31, 2010, 04:53:02 PM »
reuse is when dialyzers and needles are cleaned and used a second time, instead of only using them the one time.  I don't think it happens much anymore.  I remember when I was a kid on dialysis, a girl with me went to Children's Wish and went on a trip to Florida.  Her mother had to force the unit she was at to use new needles every time
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
noahvale
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« Reply #6 on: July 31, 2010, 05:46:34 PM »
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« Last Edit: September 16, 2015, 02:03:52 AM by noahvale » Logged
noahvale
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« Reply #7 on: July 31, 2010, 05:58:14 PM »
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« Last Edit: September 16, 2015, 02:04:12 AM by noahvale » Logged
Bill Peckham
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« Reply #8 on: September 23, 2015, 03:01:19 PM »
You went through and deleted nearly all of your posts?!? That is a shitty thing to do it, undermines the cohesion of the board.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Simon Dog
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« Reply #9 on: September 23, 2015, 04:21:59 PM »
Quote from: Riki on July 31, 2010, 04:53:02 PM
reuse is when dialyzers and needles are cleaned and used a second time, instead of only using them the one time.  I don't think it happens much anymore.  I remember when I was a kid on dialysis, a girl with me went to Children's Wish and went on a trip to Florida.  Her mother had to force the unit she was at to use new needles every time
Smart move.   Re-use didn't work out so well for those Columbians who picked up HIV back in 1991-1993: http://www.cdc.gov/mmwr/preview/mmwrhtml/00037163.htm
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: September 23, 2015, 11:41:45 PM »
Quote from: Bill Peckham on September 23, 2015, 03:01:19 PM
You went through and deleted nearly all of your posts?!? That is a shitty thing to do it, undermines the cohesion of the board.

I agree. The last person that did that was banned, so they could do no more damage to the forum.
And you were a mod too! It's treason.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #11 on: November 23, 2015, 09:26:33 PM »
THREAD LOCKED-kitkatz-Admin
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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