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Author Topic: Las Vegas "Convention" ?  (Read 7450 times)
crickiepoo
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« on: July 15, 2010, 10:40:46 AM »

I found the "Las Vegas" thread and read some posts.
Will there be a LV meeting this year?
Or next year? HA
I am extremely financially challenged so I would need to save up WAY ahead of time. haha

I wasn't sure where I should post this...hope it's ok to post it here.





EDITED: Moved to Off Topic Section - Sluff/Admin





« Last Edit: July 16, 2010, 05:36:11 PM by Sluff » Logged
okarol
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« Reply #1 on: July 15, 2010, 10:43:02 AM »

We had hoped to do a meeting this year but many of us are in similar financial situations so it's been on hold for now.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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« Reply #2 on: July 15, 2010, 11:21:56 AM »

aww boo!
Okay, well if people decide to go ahead with the meeting I hope they will let me know WAY in advance about it. haha
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RichardMEL
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« Reply #3 on: July 16, 2010, 12:00:05 AM »

I am totally aiming for next year, transplant willing. Damnit I have the finances, just not the kidney!!!

All good looking young ladies are definitely encouraged to attend!!!

 :shy;
 :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sluff
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« Reply #4 on: July 16, 2010, 05:34:19 PM »

I think we will be able to plan on next year. 2011
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lola
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I can fly!!!

« Reply #5 on: February 13, 2011, 12:37:42 PM »

I am totally aiming for next year, transplant willing. Damnit I have the finances, just not the kidney!!!

All good looking young ladies are definitely encouraged to attend!!!

 :shy;
 :rofl;
:bandance; :bandance; now you have the KIDNEY!!!!!!!!!! OMG now I need to save :banghead;
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Sluff
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« Reply #6 on: February 13, 2011, 03:08:28 PM »

Vegas or LA California
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RichardMEL
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« Reply #7 on: February 13, 2011, 08:03:03 PM »

Current plans have me visiting the US hopefully early June (Seattle), and obviously Oct for VEGAS BABY!!  :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl;

obviously dependant on Danny, docs and the like, but yeah the planning is in full swing!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
rsudock
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« Reply #8 on: February 14, 2011, 04:34:20 PM »

yes let's meet up!!!!  waahooo!!   :clap;  i'm game!!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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« Reply #9 on: February 14, 2011, 04:44:01 PM »

woohoo a vegas date already!!! I am so there!!  :rofl; :yahoo; :yahoo; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
thegrammalady
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« Reply #10 on: February 15, 2011, 09:20:30 PM »

woohoo a vegas date already!!! I am so there!!  :rofl; :yahoo; :yahoo; :yahoo;

who, what, when, where....what i miss??????????????????????????
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
YLGuy
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« Reply #11 on: February 15, 2011, 09:55:51 PM »

Paris:

I desperately need to be at a meet up this year!  I need to see some of my friends again soon!  Las Vegas, LA, or San Antonio are all great.   I did like where we stayed in Vegas because those who couldn't get around easily could still have all of Freemont Street to explore.  And I will always see Goofynina walking through the casino with her tiara and boa.  I was sitting with Jill Dimmitt and turned to see Goofynina make her entrance. What a sight!    I believe we choose October because it gave people a 3 day weekend with Columbus day.  This year is would be Oct 8,9 and 10th. 

I don't care where we meet.  Shall we start getting an idea who wants to go where and get the ball rolling?  Some of us need to save up a little for this.           I'm already excited           
http://ihatedialysis.com/forum/index.php?topic=10518.msg361561#msg361561
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Chris
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« Reply #12 on: February 15, 2011, 10:09:31 PM »

Never been to either place, but the last time I planned to go to a meet, something gets in the way. I might just show up on a whim.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
RichardMEL
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« Reply #13 on: February 15, 2011, 10:51:40 PM »

Never been to either place, but the last time I planned to go to a meet, something gets in the way. I might just show up on a whim.

I'll bring a Mars Bar for you!  :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Chris
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« Reply #14 on: February 15, 2011, 11:19:59 PM »

Never been to either place, but the last time I planned to go to a meet, something gets in the way. I might just show up on a whim.

I'll bring a Mars Bar for you!  :rofl;

An IHD picture for sure, but that bar is gonna have a long string attached  :rofl; :rofl; :rofl;
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
KarenInWA
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« Reply #15 on: February 16, 2011, 05:36:11 AM »

Is this really happening Oct 8, 9, and 10?  I need to know so I can request time off!!!
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
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« Reply #16 on: February 17, 2011, 05:02:31 PM »

Well if it might be in Califonia, that would be great since Virgin Airlines is going to fly out of Chicago and offering $77 dollar flights
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
RichardMEL
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« Reply #17 on: February 17, 2011, 05:14:15 PM »

CA could work for me. Hey it's a 15 hour flight from Melbourne vs. 15 hours plus another hour to get to Vegas  :rofl; Either way makes little difference!! As long as I have a hot date(or four) at the end of it... it's all good!!  :rofl; :rofl; :rofl; :rofl; :rofl; :waving; :urcrazy;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paris
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« Reply #18 on: February 17, 2011, 05:33:34 PM »

Paris:

I desperately need to be at a meet up this year!  I need to see some of my friends again soon!  Las Vegas, LA, or San Antonio are all great.   I did like where we stayed in Vegas because those who couldn't get around easily could still have all of Freemont Street to explore.  And I will always see Goofynina walking through the casino with her tiara and boa.  I was sitting with Jill Dimmitt and turned to see Goofynina make her entrance. What a sight!    I believe we choose October because it gave people a 3 day weekend with Columbus day.  This year is would be Oct 8,9 and 10th. 

I don't care where we meet.  Shall we start getting an idea who wants to go where and get the ball rolling?  Some of us need to save up a little for this.           I'm already excited           
http://ihatedialysis.com/forum/index.php?topic=10518.msg361561#msg361561

Hi Marc,- not sure if you meant to leave a post with mine.  I noticed you highlighted 8,9 and 10.  Isn't that Columbus Day weekend?  It looks like it on my calendars. I'm a little confused (happens often!!)  so let me know if I have done something or if my post is wrong.  Thanks Marc  Oh I did notice I put is instead of it. Must have forgotten spell check. 
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YLGuy
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« Reply #19 on: February 17, 2011, 05:43:16 PM »

woohoo a vegas date already!!! I am so there!!  :rofl; :yahoo; :yahoo; :yahoo;

who, what, when, where....what i miss??????????????????????????

Paris, I re-posted your post based on thegrammalady's post.  Your post was the only one I recalled that actually mentioned possible dates. 
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thegrammalady
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« Reply #20 on: February 18, 2011, 09:15:28 AM »

ok mods, get together and decide if we're going to do this sometime later this year. i was extremely disappointed when the last one was cancelled. no i admit i was one who had said i couldn't afford to go, but i also admit that if i had already bought my ticket i would have been extremely.....well yes. even my daughter has asked if there is something this year. apple and i had so much fun with everyone. especially with bajanne and llilbajanne. and then to find bajanne was my secret santa, well that just made my year. i fully admit i get a big green streak of jealousy when i read that okarol and kit katz have met up for lunch. i so want to go too. we might even have the time to manage to drive this year. i just love road trips. at least until they've started.......so let's make a plan, stan.........i'll even help
« Last Edit: February 18, 2011, 09:16:59 AM by thegrammalady » Logged

s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
paris
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« Reply #21 on: February 18, 2011, 10:31:41 AM »

Thanks Marc!!  I told you I am confused a lot!!  But now it is because I think too much and not because I am full of toxins!  That's my story..........

I agree, Grammalady, admin and mods needs to talk and set a date.  I mentioned the Oct dates based on what the first two meet ups were.  I'll volunteer to help too.       Another thought about Vegas is how easy it is to get to and from the airport and to all the Casinos on the strip.   Any one have more suggestions, thoughts?

I'm also on the need to save list!  So, I'll just start putting my pennies away and assume we will  get together.  Kelly, are you saving too?
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
KarenInWA
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« Reply #22 on: February 18, 2011, 11:29:23 AM »

Question for those who have been on D - my kidneys are failing at a faster rate then they have before.  On/around Dec 1st, gfr was 19.  Now it is 14.  I know I need to get my fistula access placed (I just can't see myself doing PD - to me, it sounds like pure hell).  My question is, if D starts for me around the time of this trip, would it be feasible for me to go?  How far ahead does one have to plan for the D appointment?  Will I feel like too much crap to even want to go?  My neph likes to start D at 10%.  So far, I'm still feeling okay.  I work 10 hr days lately, because I want to pay things down, and I do okay with that.  Ideas?

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
thegrammalady
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« Reply #23 on: February 18, 2011, 01:01:10 PM »

Question for those who have been on D - my kidneys are failing at a faster rate then they have before.  On/around Dec 1st, gfr was 19.  Now it is 14.  I know I need to get my fistula access placed (I just can't see myself doing PD - to me, it sounds like pure hell).  My question is, if D starts for me around the time of this trip, would it be feasible for me to go?  How far ahead does one have to plan for the D appointment?  Will I feel like too much crap to even want to go?  My neph likes to start D at 10%.  So far, I'm still feeling okay.  I work 10 hr days lately, because I want to pay things down, and I do okay with that.  Ideas?

KarenInWA

social workers like to know as soon as you do that you're planning on traveling. in actuality they can't finalize arrangements till 30 days before you plan on traveling. since i buy any plane tickets 90 to 60 days before i go anywhere i just tell her then, give her the dates of travel and when i want dialysis and let her go from there. since i almost always use the same center (i'm always going to my family in oregon) i often deal directly with them after everything is pretty much set, they are usually willing to try to get me what would work best for me. but then we have a pretty good relationship.  i didn't do dialysis last time we were in vegas. we left denver after a friday morning dialysis and i was back in town for my monday session. there were people who did though and i don't remember hearing that they had any problems. it's not difficult in an area that caters to tourists. it's hard to say how you will feel, everyone is different.

paris, you and kelley better start saving, it wouldn't be the same without you guys. i miss both of you!!!!!!
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
kellyt
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« Reply #24 on: February 18, 2011, 02:45:48 PM »

Oh, I'm going for sure - no matter where it is!   :2thumbsup;     I want Paris to fly to S.A. and I'll meet up with her here and fly the rest of the way with her.  Then we can have some uninterupted visit time, and introduce our kidneys!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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