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Author Topic: The Old Transplant Diet Switch  (Read 2048 times)
renalpenguin
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« on: June 29, 2010, 12:42:43 PM »
I'm so confused... three months ago my phosphorus was 8.8. I got so used to no milk, no cheese, no icecream... that now I don't even want to eat those things! Then I get my new kidney Ned from my cousin, and overnight my phosphorus is dangerously low (0.5!) I've dreamed of this day forever, the day they make you eat cheese and milk and peanuts all day long... I was so excited when my dietician gave me pizza with extra cheese! But now that it's here, it's so hard!  :rofl; It's so funny, but it's getting a little scary because no matter what I do (24 ounces of milk a day, the gross high dose of Nutri-Phos, and IV phosphorus) it keeps dropping. Any ideas? I've been told if I get much lower I could get really sick. I never thought it would be this big a problem! Isn't life with kidney disease strange? My family just got used to the idea I couldn't have most dairy, and now they're so confused!
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August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
Zach
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"Still crazy after all these years."
« Reply #1 on: June 29, 2010, 12:54:14 PM »
Maybe your new kidney is "leaking' phosphorus.
http://ndt.oxfordjournals.org/cgi/content/full/16/2/378
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jbeany
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« Reply #2 on: August 07, 2010, 12:47:47 PM »
My first month after, my throat kept closing up on me when I started to chug down water.  A nearly 4 year habit of tiny sips is hard to break!  Ahh, but I do love my cheese now!  "Cheese, Gromit, cheese!"
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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