dizzy and nausea constantly

[The Noob]

ok, took DH in for high BP, to ER last week. got fixed more or less. he still has constant dizziness and nausea all the time. doing 5 TX daily or more of 2.5, PD route.
call clinic, they say go to primary, primary says go to Nephr.
he has no other issues with health than CKD. been on PD since january 2010.
my best guess is meds are causing, and/or not good enough dialysis. he is always weak and tired and feels sick all the time. who do i got to yell at to get this man some help?

[billybags]

I don't really know what to say, here in UK our first port of call is our renal nurse. Are you on CAPD or on an over night cycler? Does he have his bloods checked and BP checked every month . Have they done a K/V test to see if he is dialysising enough. It sounds like you are being passed around a lot. First thing first, get in touch with your neph, don't let people put you off, you need to see him. Explain what you are going through, it could well be the meds but it could also be as you say not enough dialysis. You need that blood test and soon.

[The Noob]

CAPD at home. labs looked decent in ER last week but creatnine is always higher. it was down to 7 so that was improvement. i am just going to call neph directly right now. he is supposed to be one of the best but for some reason clinic nurse seems to intervene between DH and doc?

update: just called doc directly, spoke to nurse who saw him first. she is calling doc now. will see where we go from there.

update 2: doc called, said DH BP was maybe too low for him? 148/98???
said to quit one of the meds. i doubt this is it and expect to see the BP start to climb again.
enema helped great deal. my best guess is build of urea. learning alot of biology.
hehehe

[billybags]

Do you feel happier now you have spoke to him? His BP looks normal to me, our nurse likes it between 130 and 140. Hubby had to change his BP tablet about 2 months ago. He had been on this particular one for well over a year and he was changed to Candesartan Cilexetil  and is doing well on it. Let me know when you get your PHD in renal, I think we all try to learn as much about this crap, we need to.

[The Noob]

LOL well, not really. according to doc he wants the BP higher?..so guess what? its on the way back up, last reading 168/104. but hey what do i know?

i mean, this is why we went to ER last week, as it was way too high.
truly? i think i may end up changing again, to the docs/hospital we should have gone to beforehand.

one thing i have learned and seen is that keeping the bowels moving frequent is one effective way to get rid of urea. wasn't trying to gross anyone out.

it was DH who spoke with doc.
DH is not getting good clearance, thus his joints and bones hurt from too much protein, this is what causes gout. his drains are good but seeing tissue, no worries use the heparin.

eventually i am thinking he just needs to go that most best of facilities and have a complete work up done. we have his transplant team meeting next week, trying to keep him stable till then. he is sleeping now.

[monrein]

148/98 seems high to me...especially the diastolic.

[The Noob]

its baseline normal for DH, but now doc says he wants it higher? eh? i foresee another trip to ER soon.

after DH went potty alot, felt much better and slept. then he had a very cloudy bag. uh oh.
we have meds here though to treat. few more cases of this and we got a full pharmacy!

[KICKSTART]

Whoa ...speak to someone else your neph is  To want a BP that high to go higher is total madness. I suffer from high BP and mine runs around the same as your hubbys and everyone goes mad saying it needs to come down ..its high risk. I take my meds so short of a miracle ..how?  But back to your hubbys bp . Get some action now ! Dont just brush aside the issues ..high bp /cloudy bag , your hubby could be starting with peritonitis . Please seek some advice from a different neph asap ..like today !  or it could well be another trip to ER !!!

[The Noob]

yep. right on. #6 infection. no pain thank God. have to run his next bag to lab in town. more meds come on monday. doc says back on BP meds.
round and round and round we go..

[billybags]

Does this doctor know what he is doing, did you pull him out of a hat .Have they rested his bag yet and given him antibiotics or have you got to wait till Monday. He should be on meds now. Even the thought of a cloudy bag sends shivers down my spine, once you have had peritonitis you do not want to have it again.

[The Noob]

actually he is supposed one of the top in the country. i am thinking i will take DH to see him next week, but that means missing the 5th transplant meeting. i have vanco and gave him one dose last night. more meds come tomorrow, got them to deliver out here in boonies. most likely it is a touch contamination, he touched the cath when he did the transfer. he tries so hard and i help him but sometimes in the wee hours i am asleep and he is so tired. i am hoping he will get the machine soon.

[billybags]

Hope hubby is feeling a bit better now and that the antibiotics have kicked in. Yes I agree when you are tired we have to be extra careful, them bugs are every where. Hope things get sorted quickly, have you got long to wait for the machine?

[The Noob]

hey thanks..
well got the new meds this morning. it was a long night and longer day. been at new clinic now i think coming up 2 months, no word on machine yet. man i am beat.

[natnnnat]

Not surprised.  Hope the man is somewhat improved? 
Rest yourself, Noob.  Here's some soothing music for your household: you, man and son alike.