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Author Topic: Nephrologists Have Used Kayexalate for Decades - But Does It Really Work?  (Read 2682 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: May 25, 2010, 12:24:04 PM »
New Questions on Old Drug for Hyperkalemia

May 2010 | Vol. 2, Number 5

Nephrologists Have Used Kayexalate for Decades—

But Does It Really Work?

PDF file: http://www.asn-online.org/publications/kidneynews/archives/2010/may/KN_may2010.pdf
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #1 on: May 25, 2010, 02:44:54 PM »
I don't know!!!  It blew out my intestines and I ended up with a colostomy for 9 months!  I'll never touch that shit again!  Literally!

                                      :Kit n Stik;
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Chris
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« Reply #2 on: May 25, 2010, 06:20:25 PM »
Everytime they gave that stuff to me, it did not do anything most of the time or very little, which could be due to iet, dialysis and fluids. That stuff is nasty tasting even with flavor added to it from the pharmacy. :puke;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Lisa
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« Reply #3 on: May 25, 2010, 08:30:35 PM »
It always took so much to work for me I ended up vomitting first!!!
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
Zach
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"Still crazy after all these years."
« Reply #4 on: May 25, 2010, 09:30:02 PM »
Yes it did work for me.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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