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Author Topic: prayers/wishes for my grandma  (Read 17338 times)
Adam_W
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Me with Baron von Fresenius
« on: May 23, 2010, 02:56:08 PM »
For the last month, my grandma (IHD member "Phurball") has been in very bad shape . It started with some breathing problems which required a few days hospitalization. Not too long after she was released, she fell and broke her ankle, which required surgery to fix. A few days after she was sent to a rehabilitation centre for therapy, she got a bowel obstruction, and peritonitis (she did PD) She had to have surgery to remove the obstruction, and although the surgery itself went well, she has never fully woken up, and she hasn't been able to breath on her own. She has been that way for almost three weeks, however we've seen some improvement in the last few days. She actually responded to us today, and her ventilator was turned down because she was breathing more on her own. She's still got a long way to go, and we know that she still might not get better, so we all need prayers for strength as well. I've been very close to my grandma my whole life, and this has been very hard on me.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
glitter
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« Reply #1 on: May 23, 2010, 03:02:05 PM »
I am sorry your going through this with your grandma, it sounds like you love her very very much. You and your family will stay in my thoughts, I hope she continues to improve every day. :grouphug; :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Henry P Snicklesnorter
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« Reply #2 on: May 23, 2010, 03:21:13 PM »
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« Last Edit: October 23, 2013, 04:47:37 PM by Henry P Snicklesnorter » Logged
st789
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« Reply #3 on: May 23, 2010, 04:12:58 PM »
Prays.....
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lola
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I can fly!!!
« Reply #4 on: May 23, 2010, 05:38:36 PM »
 :pray; and lots of :grouphug; :grouphug; :grouphug;
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paris
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« Reply #5 on: May 23, 2010, 06:42:45 PM »
Oh Adam, I am so sorry to hear this.  You have talked so lovingly of her many times and I remember reading some of her posts, especially the ones about her grandson.   Grandmothers hold such a special place in our hearts.  I will keep her in my prayers.  I'll keep you in my thoughts and prayers also, because I know how much your heart is hurting.  Please let us know how she is doing.    :pray;
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Jean
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« Reply #6 on: May 23, 2010, 07:06:50 PM »
So sorry that you and she have had to go thru this. I most definitely send good wishes and keep her in my   :pray;
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One day at a time, thats all I can do.
Adam_W
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Me with Baron von Fresenius
« Reply #7 on: May 25, 2010, 06:23:01 PM »
I saw her again today (5/25), and I have very good news, and some bad news. The bad news is she wasn't responsive at all today. She squeezed my hand once, but it didn't seem voluntary. However, the good news is she was off the ventilator temporarily when we were there. They are turning the vent off for up to four hours at a time to let her breath on her own with just an oxygen line. She was breathing fairly strong, but her breathing rate was kind of fast. She is showing some other signs that she's getting a little stronger, such as being able to cough. She has a long way to go, but she's a fighter, and, Lord willing, she'll come through this.

Adam
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Sluff
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« Reply #8 on: May 25, 2010, 07:27:24 PM »
Adam I will keep your Grandma in my prayers.
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galvo
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« Reply #9 on: May 26, 2010, 12:58:31 PM »
My best wishes are with the both of you.
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Galvo
Darthvadar
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« Reply #10 on: May 26, 2010, 01:11:30 PM »
Thinking of, and praying for your gran....

I know how scared I was when Mum had peretionitis!...

Hope your gran continues to improve...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
monrein
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Might as well smile
« Reply #11 on: May 26, 2010, 04:33:47 PM »
Adam, I'm so sorry to hear about your Grandma and I wish her better health and recovery very soon.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Adam_W
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Me with Baron von Fresenius
« Reply #12 on: May 26, 2010, 05:50:32 PM »
Thanks, everybody. We unfortunately found out today that she is aspirating fluid into her lungs and they can't stop it. So now, even though she's off the ventilator most of the time, they don't expect her to make it. They've tried everything they can do to try to stop the fluid, but her lungs keep filling up. It's now just a matter of time.

Adam
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
glitter
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« Reply #13 on: May 26, 2010, 06:28:10 PM »
Oh honey, my thoughts are with you,  :grouphug; :grouphug; :grouphug; :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
natnnnat
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WWW
« Reply #14 on: May 27, 2010, 04:39:07 AM »
I'm sorry to hear about your Grandma, Adam_W.  I lost my grandma last year, and its not easy.   :cuddle;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Darthvadar
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« Reply #15 on: May 27, 2010, 05:13:50 AM »
Oh Adam...

I'm so sorry to hear this!... It must be SO difficult for you....

I'll be thinking of and praying for you, your gran, and your family...

May God bless you all.....

Love and hugs.... :grouphug;

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Adam_W
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Me with Baron von Fresenius
« Reply #16 on: June 23, 2010, 02:18:55 PM »
Sorry I haven't given an update for awhile. She is now off of dialysis, and today she was transfered to a hospice unit. We've been visiting her almost every day, sometimes twice a day, and it sure doesn't get any easier. The only consolation I have is that soon she will be at peace. Thanks for all the support.

Adam
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
cariad
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What's past is prologue
« Reply #17 on: June 23, 2010, 03:19:48 PM »
Sad to hear this, Adam. I hope that she may pass painlessly. Hugs to you. I am so sorry. :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
natnnnat
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« Reply #18 on: June 23, 2010, 05:53:54 PM »
Love and peace to your Grandma.  Your visits to her are important and valuable, even though they are hard sometimes.   :cuddle;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #19 on: June 23, 2010, 06:42:22 PM »
Adam sorry to learn of your grandmother's condition.  You have my best wishes and prayers.  :pray; :grouphug;
« Last Edit: June 23, 2010, 06:46:42 PM by fc2821 » Logged
In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
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« Reply #20 on: June 23, 2010, 09:22:55 PM »
I hope she improves Adam, sending her prayers and love and some BIG HUGS for you.  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Adam_W
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Me with Baron von Fresenius
« Reply #21 on: June 25, 2010, 08:12:26 AM »
My wonderful grandmother passed away last night in her sleep. She is at peace now, but I think I've cried more in the last 12 hours than I have in the last 20 years. I will miss her terribly but I'm glad she's not suffering anymore. Again thank you all for your support.

Adam
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Darthvadar
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« Reply #22 on: June 25, 2010, 08:35:46 AM »
Adam, I'm very sorry to hear this....

May your much loved gran rest in perfect peace...




God looked around his garden
And He found an empty place.
And then He looked down upon the earth,
And saw your tired face.

He put His arms around you,
And lifted you to rest.
God's garden must be beautiful,
He always takes the best.

He knew that you were suffering,
He knew you were in pain,
He knew that you would never
Get well on earth again.

He saw the road was getting rough,
And the hills were hard to climb,
So He closed your weary eyelids,
And whispered"Peace be thine."

It broke our hearts to lose you .
But you didn't go alone,
For part of us went with you,
The day God called you home.
Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
lola
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I can fly!!!
« Reply #23 on: June 25, 2010, 08:47:37 AM »
 :grouphug; :grouphug; :grouphug;
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cariad
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What's past is prologue
« Reply #24 on: June 25, 2010, 11:51:22 AM »
My condolences, Adam. Please take care of yourself and continue to visit for emotional support. :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
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