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Author Topic: Pain in ankles and feet when getting up  (Read 2895 times)
loopywinks
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« on: May 16, 2010, 01:15:05 AM »

Hello there,

I hope all are well and enjoying the spring wherever you are!

I have been on PD for 2 months now.  I started the cycler 1 month ago.  It is going ok except that I wake up most nights with some pain (probably placement of catheter or constipation- which I am always trying to work out it seems).. 

I have noticed that since the weather is warming, I am swelling more in my legs and ankles... I also notice that I have pain in my feet and ankles when I get up after sitting.  Does anyone else get this?  Is it common?

I remember the nurse at the transplant center asking me if I have pain in my feet and ankles when walking.. so I thought it might be related somehow.

Any input would be greatly appreciated!  I hope I am not repeating a topic.  I did look around here.. honest     :flower;

Take care!

Tracy aka Loopywinks
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GeeWillikers
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« Reply #1 on: May 16, 2010, 07:11:57 AM »

Hi LW!

I don't have that issue, but if I did I'd resolve my curiousity with a call to my PD nurse.  Give your center a call and see what they have to say about it.  I'd guess it is related to the disease and possibly the temperature change, but I'm no expert by any stretch of the imagination.
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loopywinks
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« Reply #2 on: May 16, 2010, 05:35:59 PM »

Thank you for the message! 

That question is on my list of things to ask my PD nurse.

I tried to look it up online, but I could not find anything.  It is the strangest sensation!

Take care!!
Loopywinks (Tracy)

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looneytunes
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« Reply #3 on: May 16, 2010, 05:40:31 PM »

Tracy...hubby had the pain in his feet and ankles with some swelling when he was on PD.  It seemed to resolve when he went back on hemo. No real explanation for it was given by our neph though we did ask.
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"The key to being patient is having something to do in the meantime" AU
george40
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« Reply #4 on: May 19, 2010, 10:52:08 PM »

Hello Tracy, the extra fluid could be from you drinking more since it is warmer out? and the pain sounds like calcium building up or something along those lines. Your PD nurse should have your latest labs, they will tell the story.
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8/2000 - Diagnosed ESRD / Hemo begins with perm cath
1/2002 - Transplant No. 1
4/2006 - Transplant failed due to CMV virus/ Back to Hemo
11/2008 - Moved to PD Modality
9/2012 - Transplanted!
Wallyz
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« Reply #5 on: May 19, 2010, 10:55:18 PM »

Uremia build up.  Uremic neuropathy happens when your Urea levels are elevated, and you have poor circulation to the feet. It can be pain, cold, numbness, or pins and needles.
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loopywinks
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« Reply #6 on: May 20, 2010, 09:43:47 PM »

Thank you so much for your responses!!  Interesting thoughts!  I will have to do some more research based on this new information.

The pain comes and goes... I guess I will figure out how to deal with it.. like I know most of us have had to deal with adjusting to dialysis   ::)

Thank you again!!!  ;)
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