New to dialysis

stacyjop77

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« on: May 15, 2010, 10:02:11 AM »

Hello my name is Stacy im 32 years old a mother of 3 crazy kids, I was diagnosed with good pastures syndrome in sept of last year.It is a auto immune disease, that turns your anti body against you, and the disease goes after your kidneys and lungs. It has been a wild ride!! I had never been sick before, I thought all i had was a UTI. The ER I went to sent me to scott and white in Temple Texas and after several blood transfusions and 14 treatments of Plasma pheresis I was able to leave the hospital and I started dialysis at Devita. I dunno if my kidneys will ever come back, I HATE DIALYSIS it makes me sick every time I go i puke and feel awful!!


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monrein

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Might as well smile

Re: New to dialysis

« Reply #1 on: May 15, 2010, 10:11:38 AM »

to IHD and I'm so very sorry that we meet on this forum because of kidney failure. However, this is a great spot for both information and support and although everyone's journey is different you will most always find someone here who can relate to the issue of the moment.


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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges

Rerun

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Going through life tied to a chair!

Re: New to dialysis

« Reply #2 on: May 15, 2010, 11:35:13 AM »

Stacy I'm so glad you found us. Don't feel bad for hating dialysis; I do too. This site is a place to vent to us when no one around you understands. Come often!

Rerun, Moderator


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looneytunes

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Re: New to dialysis

« Reply #3 on: May 15, 2010, 11:52:34 AM »

Hi Stacy and welcome to IHD where we ALL hate dialysis. This is a great place to come for information, advice and support from others who are on the same crazy ride. There are some wonderful folks on this forum who will help you in any way they can and maybe have a little fun along the way.

I'm looking forward to getting to know you better on the boards!


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"The key to being patient is having something to do in the meantime" AU

cloud393

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Re: New to dialysis

« Reply #4 on: May 17, 2010, 08:45:36 AM »

Welcome to the site. Sorry to hear that you get sick with your treatments. Hopefully that will get better with time. Hope to see you post often.


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May you live as long as you want and never want as long as you live.

Bajanne

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Re: New to dialysis

« Reply #5 on: May 17, 2010, 11:06:25 AM »

Welcome to our community, Stacy. This is a good place for you to come to vent, rant, rage or rave. It is also a great place for information and some real support. Please let us know how you are doing. I know that it is going to get better after a time. And remember that you are now part of the IHD family

- a caring and sharing group.

Bajanne, Moderator


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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"

I LOVE my IHD family!

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