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Author Topic: Ups and downs after my Transplant 11/09  (Read 2301 times)
sandgroper
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« on: May 03, 2010, 06:25:20 AM »
It has now been 6 months after my transplant and I have had my share of ups and downs and now I'm going through one of those downers  :(

About 6 weeks ago I had 2 ops, the arteries to my new kidney had narrowed and I had an Angioplasty procedure to widen both the arteries, the next day I had a stent re-inserted. After the initial transplant my creatinine steadily kept on rising but went down to 135 after the Angioplasty.

Soon after I was put on to Sirolimus and I never felt better on it however being a diabetic and history of high cholesterol there was a side effect to this new medication......my fats in the blood has risen to dangerous levels so I was put back on to Tacrolimus and now I feel so tired especially after a days work.

I'm due to have my stent removed very soon.

sandgroper
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monrein
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« Reply #1 on: May 03, 2010, 01:32:04 PM »
Did they put you on statin drugs by any chance to help control the lipids? 

So sorry to hear of the continuing roller coaster.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: May 03, 2010, 02:09:30 PM »

 :grouphug; I am sorry it's been so tough, here's hoping things improve soon!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
sandgroper
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« Reply #3 on: May 04, 2010, 01:36:49 AM »
I was put on Rosuvastatin & have been taking up to 10 fish oil tablets a day and this has had an improvement in the fats in my blood but it's still very high, sad thing is I felt great on Sirolimus than I am on Tacrolimus currently.

I wonder if any other diabetics who have been put on Sirolimus have had such a side effects?
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st789
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« Reply #4 on: May 04, 2010, 08:13:13 AM »
Wish you things improve.  Sandgroper why are you on fish oil ?
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sandgroper
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« Reply #5 on: May 05, 2010, 02:05:41 AM »
My Neph today indicated my Cholesterol level has come down quite a bit and it's mainly due to the fish oil tablets, they reduce triglyceride levels and also have the effect of lowering blood pressure although I have yet to see it myself.
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RichardMEL
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« Reply #6 on: May 05, 2010, 02:14:48 AM »
Good stuff Sandgroper! We all know cholesterol levels go up post transplant, so this is a great thing.

You must be feeling pretty good even with this stuff - do you find your life that much more free, with more energy etc, now that you're transplanted?

Can you jump as high as Nic Nat?!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
okarol
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« Reply #7 on: May 22, 2010, 10:06:44 AM »

How are you doing sandgroper?  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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