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Author Topic: Positive Results with Renal Supplements  (Read 2517 times)
Stacy Without An E
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« on: March 28, 2010, 01:55:45 PM »

I've posted here and on my blog about how I've been feeling progressively worse over the past few months.

But just like I've fought off Dialysis for the last six years, I wasn't going to go quietly into the night and let Dialysis win.  Screw him and his bad oral hygiene and gaseous clouds of spewing verbal diarrhea.

A rather tasteless soup of extreme fatigue, dizziness, room spinning and terrible acne was combining to make me ridiculously miserable.

So after many hours of research online, here's what I did:

1) I started taking Powerdophilus (a powerful version of acidophilus) to help balance my intestinal bacteria.  As Dialysis patients, we take a ridiculous amount of medications that push our intestinal tract off balance.  This gives your digestion and general well being a fighting chance.

2) I started using lemon juice on my face after every shower.  Yes, it stings and makes your skin itch.  But it works better than any of these doctor prescribed medications and topical creams.  I wait five minutes, wash it off with cold water, and add a moisturizer afterward.  (being 39 with acne is soul crushing)

3) Most importantly, I started taking a renal supplement.  You can go to Renalabs.com and choose from one of three supplements.  Each bottle contains 120 tablets that you take once a day.  I ordered a year's supply for $30!  I also spoke to the gentleman on the phone, and he says a new version with Vitamin D should be out by the end of the year.

I've only been taking the supplement for a week and I have to say I feel much better.  I just recorded seven hours of radio and finished a great workout.  Finally getting back to the life I want and deserve.

I take the supplement right after Dialysis so it can replace the nutrients immediately.  On off days, I take it with my morning medications.

I hope what I've learned can help you as well.
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

The Adventures of Stacy Without An E
stacywithoutane.blogspot.com

Dialysis.  Two needles.  One machine.  No compassion.
monrein
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Might as well smile

« Reply #1 on: March 28, 2010, 02:09:21 PM »

Great info there Stacy!   Thanks.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sunny
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Sunny

« Reply #2 on: March 29, 2010, 01:48:20 PM »

Glad to know you found improvement.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Zach
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"Still crazy after all these years."

« Reply #3 on: March 29, 2010, 02:52:04 PM »

 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
paris
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« Reply #4 on: March 29, 2010, 03:48:38 PM »

Good for you, Stacy.  You have had a rough time lately.  Hope you continue to feel "good".   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
sullidog
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« Reply #5 on: March 29, 2010, 04:11:06 PM »

Are these safe for any renal patient?
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Stacy Without An E
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« Reply #6 on: March 29, 2010, 09:41:26 PM »

I would consult with your physician first, but usually they work for everyone.  They're specially formulated to return vitamins and minerals lost during Dialysis.

I'm not really sure why they have three different supplement versions.  But the 1-800 number on the site was answered quickly.  Their customer service was great on the phone and they arrived within 48 hours without a shipping charge.

I'm not saying this is a cure all.  But I am definitely feeling better and my skin is starting to heal normally again.
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

The Adventures of Stacy Without An E
stacywithoutane.blogspot.com

Dialysis.  Two needles.  One machine.  No compassion.
tito
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« Reply #7 on: March 30, 2010, 08:38:38 AM »

My doctor prescribed renalcaps for me - a powerful multiple vitamin supplement. With my copay, I pay $20 for a three-month supply. I have also just started taking fish oil capsules.

Can't say I feel any differently. I have been feeling pretty good since beginning PD about 8 mos. ago.

Good luck Stacy. Glad to hear about your good results.
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sullidog
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« Reply #8 on: March 30, 2010, 05:15:40 PM »

I take neprocaps and my dietition says they are working well, but if they stop may check into this.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
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