PD Users - Describe your therapy..

[-Lady Noir-]

Hi, welcome to IHD gothiclovemonkey

I can understand how some terms & that seeming weird, it was the same when i first joined here.
So your on manual PD. My fiance had pretty similar routine to you when he was too.

[gothiclovemonkey]

I wonder if anyone has ever had a really firm tummy around the exit site? its freakin me out, i called pd nurse and asked her, she said as long as my bags are clear its not a concern

[chook]

Good on Henry P Snicklesnorter! I attempted one exchange whilst travelling but we had to stop to drain but were able t continue on for the fill. I haven't had another go but will do so now I know it can work.
I am on the Baxter overnight cycler. 4 fills of 1600ml 1.5%, about 1 and half hours each dwell and 200 mls in during the day for comfort. I have some drain pain but usually bearable. I set up around 6pm and go on around 10, for 9 hours. So far so good.

[chook]

So not to confuse anyone - when we travel just for an overnight stay, I do manual exchanges.

[Marina]

I've  been  doing  CAPD  for  the  last  6yrs  and  4 months.    4 Exchanges  2000ml  each  (8liters/day)
I'm happy  with this  decision, I  wouldn't want to go  on the  cycler  (unless I  had  no  other  choice)

I  love  my  nurses,  they  have  taught me how to  live  my  life  without  dialysis  getting  on the  way.
I  don't  have a  set  prescription.   I  always  check  for  adema  or  weight  gain  before  deciding  on which solution  to  use  for  that  particular  exchange.                I  also don't have  a set  exchange  schedule.  I  do  my  exchanges  when I  can  as long  as  I   get  4 exchanges  in a  24hr  period,  and  each exchange  must  be  at  least  2hrs  apart.
I  love the freedom  PD  gives  me. 

Henry,
during  PD  training  they  told  me  NEVER  do  an  exchange in a  bathroom,  especially  a public bathroom. They  also  don't  recommend  doing an  excahnge  outdoors  dust  can  get in  cath.

[*kana*]

Midday: Second exchange while having lunch or, while driving if I don't stop for lunch.

Henry P, could you please explain how you would dialyse whilst driving. TIA.

Oh my, I was told if I needed to do an exchange in my car to NOT drive!!!  They gave me an example of a person that did that and got into an accident.  The bag and person went in two different direction upon impact and their tube was ripped from their abdomen. 

[Restorer]

Oh my, I was told if I needed to do an exchange in my car to NOT drive!!!  They gave me an example of a person that did that and got into an accident.  The bag and person went in two different direction upon impact and their tube was ripped from their abdomen.

Solution: hang the bag using something that will break before your catheter gets pulled out, so the bag doesn't go along with the car when you don't. Maybe a weak shower curtain ring, or paper tape.

[komomai]

Aloha, I'm on the Baxter.

Presently set for using 1 PD-4 1.5, 5000ml  and 1 extraneal at 1500 for last fill.  Total time set for 7 hours, 3 exchanges of 1500 ml with 1:59 set for dwell and I carry the extraneal as final fill all day.  Been on it for about 2 weeks now, only issue is the low vol drain alarms while in drain cycle.  So my sleep comes in 2 1/2 hour segments which kind of leaves me tired during the day at work.

Aloha,
Komomai

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[komomai]

Aloha, I use the Baxter cycler and will be using one 5000 ml @ 1.5% and one bag @ 2.5% 2000 ml with final fill of extraneal of 1500 ml.  My time is set for 7 hours with 3 dwell times of 1 hour and  50 minutes.

Finally got my doctor here in japan to agree to the 2.5% solution.

Good luck with your PD.
Aloha,
Komomai

[Henry P Snicklesnorter]

.

[KevinSherwin]

Ive been on PD for 6 months.  I use the Baxter cycler and my prescription is:  9 hours total dry during the day   I use one 6L yellow bag on the warmer and one 3L green bag on the side.  I do 4 cycles 1500 ml ea.  I actually sleep more then 9 hours so its not that big of a deal but Im so ready for a transplant Dialysis sucks.
Kevin Seattle WA

[JustDee]

Henry P.....can you lend me some of your gumption and very positive outlook of life on Dialysis?  I'm predialysis, it's just around the corner...and to say I'm scared would be a total understatement.  I want to go with the PD method, sounds like the easiest to add to my daily routine however I'm getting fearful about the possibility of becoming Diabetic.  I'm border line diabetic now and with the added glucous I fear I will treat one disease while developing another.  Do you happen to know if there is any treatment to offset the extra glucous that will be going into my system with PD?  I feel like I'm on an neverending rollercoaster (and I love rollercoasters but NOT full time) with my weight.  I lost 25 pounds, then I quit smoking so I can get on the transplant list, that added 10 pounds to my already Big Mama Look, and now I'm thinking I'll be fighting weight gain due to the fluids I'll have dwelling within.  What the heck is an Old Hippie, emphasis on the Hippy, to do???

[KarenInWA]

I'm pre-D, currently living life with 18% kidney function, thinking of doing home hemo.  What scares me about PD, besides perotinitis, is being attached to a machine *every* night for 8 to as high as 12 hours???  I already know I couldn't do that!!! I would slip into such a huge state of depression that I don't know what could drag me out of it.  How does one come to terms with that?  I like home hemo because it's not such a big time commitment like PD is.  Or at least, that's what it seems to me.  Can someone please explain?

KarenInWA

[Henry P Snicklesnorter]

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[Henry P Snicklesnorter]

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[chook]

For me, being attached to a machine overnight is a simple thing. Six months into PD and I don't even think about it - just do it. I prefer the cycler to CAPD. After the first two weeks or so, we don't hear "Polly's" clicks and sighs anymore. Honestly, if I had to do this for the rest of my life I would be okay with it. I find not being able to lift things - like my granddaughters - more restricting. Obviously, I would rather NOT have dialysis but the reality so far with PD has been far less traumatising than we expected.

[KarenInWA]

For me, being attached to a machine overnight is a simple thing. Six months into PD and I don't even think about it - just do it. I prefer the cycler to CAPD. After the first two weeks or so, we don't hear "Polly's" clicks and sighs anymore. Honestly, if I had to do this for the rest of my life I would be okay with it. I find not being able to lift things - like my granddaughters - more restricting. Obviously, I would rather NOT have dialysis but the reality so far with PD has been far less traumatising than we expected.

Part of my problem with it is I generally don't sleep that long every night!  Even on the weekends, I will sometimes go to bed at Midnight to 2am and wake up earlier than I want to.  During the week, I don't sleep very long.  I probably need to change that... (that's to me, btw)

[murf]

Part of my problem with it is I generally don't sleep that long every night!

I found my renal insomnia has improved with both APD and CAPD. Once you get used to the cycler, I sleep more than before. On the manuals, I also sleep well. Before hand , after 4 years on hemo, I would barely get one hour a night. Can't explain why.

[KarenInWA]

Part of my problem with it is I generally don't sleep that long every night!

I found my renal insomnia has improved with both APD and CAPD. Once you get used to the cycler, I sleep more than before. On the manuals, I also sleep well. Before hand , after 4 years on hemo, I would barely get one hour a night. Can't explain why.

My lack of sleep isn't due to insomnia.  It's from not wanting to go to bed!  Either staying up to watch tv, read, surf the net, chat on computer/talk on phone, sometimes finishing chores, other times I'll go out until late.  I'm more of a night person, but have a daytime job.  Right now, I'm working 10-hr days when I can so I can pay off my car before my kidneys officially kick the bucket.  I still like to go out and play, though...

[chook]

Karen, that is a bother - I find bedtime rolls around all too soon. I used to be able to 'catch up' on jobs by staying up late but can't do that any more. I feel a bit naughty if I'm not in bed by 10:30.But you do adjust - and jobs always wait!