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Author Topic: I HATE THIS!$%^^  (Read 2768 times)
melody
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« on: March 22, 2010, 05:00:03 PM »

Muscle weakness is really bad today. I can barely type. I slipped out of my office chair today while trying to get up and couldn't get back up without help.

Usually I can lean onto my walker to help myself get up but not today. :(

I left work early since it just seems to be getting worse as the day progresses. Driving was scary since I had to use my arms to move my leg from the gas pedal to the brakes. :(

Stepping up onto my porch was hell. :( Took me 10 minutes to go up two steps, even with my walker's help.

I HATE THIS! I'm finally inside the house and just bawling. I'm so frustrated. :(

And yesterday, I felt great. :( Today, I'm just miserable. :(

Mel
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okarol
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« Reply #1 on: March 22, 2010, 05:44:25 PM »


Awww man that sounds awful. Driving like that must be terrifying - isn't there anyone who can give you a ride? What is different today? I hope you get some rest and check your labs. Please call your family or friends and let them know, maybe to check on you later?  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Living Donors Rock! http://www.livingdonorsonline.org -
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monrein
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« Reply #2 on: March 22, 2010, 05:49:39 PM »

Aw Melody that sounds simply awful.  I hope you can get some answers from your doctor.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
texasstyle
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« Reply #3 on: March 22, 2010, 08:23:37 PM »

I too am wondering if there is a particular difference in anything different from yesterday. That being said, I see how each day can be a totally different day for my husband. Usually it's nothing he's done different but just the way it goes unfortunately.Is the muscle weakness coming with any cramping also? Maybe from exhaustion? Oh it's so hard to say. Having dialysis sure takes a lot of of you. Being dehydrated can cause some muscle fatigue. I know you probably are on a restricted fluid intake but you don't want to remain dehydrated. Finding that balance is crazy. I DO hope tomorrow is much better for you. I wish I had a magic pill that could make you feel better instantly.
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« Reply #4 on: March 23, 2010, 09:32:34 AM »

Melody, have you had your parathyroid checked lately?  That could be the cause.  I know it is for mine.
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sullidog
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« Reply #5 on: March 23, 2010, 05:18:37 PM »

Yeah, see if they can check your PTH level at d the next day you go in.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
peleroja
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« Reply #6 on: March 24, 2010, 09:09:22 AM »

What causes your muscle weakness?  Six years ago, at 18% GFR, my neph prescribed Zocor for my high cholesterol.  One month to the day later, I was put in the hospital with rhabdomyolisis.  The only symptom was incredible muscle weakness, as the body starts consuming muscles to keep going.  If you already know the cause of your muscle weakness, ignore this post.
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calypso
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« Reply #7 on: March 24, 2010, 11:05:20 AM »

There are lots of causes of muscular weakness, unfortunately with  no medical history on you we really can't help much except tell you what possible causes there are so you can talk to your doctor about which one it may be. In addition to the cholesterol lowering meds that were already mentioned in this thread, you might want to look into how your potassium levels are as that can cause muscle weakness as well.
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"The very powerful and the very stupid have one thing in common. Instead of altering their views to fit the facts, they alter the facts to fit their views ... which can be very uncomfortable if you happen to be one of the facts that needs altering.
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melody
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« Reply #8 on: March 28, 2010, 02:55:44 PM »

It was really odd. It kept on getting worse till about 8:30pm, when it started getting better. I had eaten some candy at that point, so I wonder if it is somehow related to my glucose, but when I had checked that earlier, it was quite normal.

It's really disconcerting though. I know because of it, I keep on falling.

(just fell again about half an hour ago and now I'm resting on my bed since I twisted my ankle again)

sigh

Mel
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Quickfeet
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« Reply #9 on: March 29, 2010, 10:08:55 PM »

For me, high potassium does that. Well to be fair that's just one of the things that steal my strength. Like others have said, with CKD, there are a lot of things that can cause your symptoms. I will throw in anemia too.

If your hartbeat has changed, sped up, slowed down, irregular, get to the hospital. Don't mess around. If your potassium gets too high, your heart will stop.
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Lisa
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« Reply #10 on: March 30, 2010, 05:53:07 PM »

Have you had you albumin checked...low protein can cause muscle weakness.
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
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