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Author Topic: Kidney korner  (Read 4170 times)
Des
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« on: March 21, 2010, 07:53:49 AM »
Hi,

Just wanted to let you know that I have been a member on KK for more than a year . I am also on the Davita forum and on FB.

I value my friends on each of these sites.

I do not judge or choose sides.... I just wanted to tell you all expecially Okarol, Paris, Richard and Chris that you will always be my friends. You mean a heck of a lot to me.

Just thought I'd let you know as I believe some people think I left or something. I am just at more places now.

I am really going through a tough time at the moment. (won't mention anything Dialysis here)
 
Lovies
D
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
iketchum
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« Reply #1 on: March 21, 2010, 08:48:55 AM »
I am glad we finally found you again, no matter how hard you tried to hide on us.
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #2 on: March 21, 2010, 10:48:16 AM »
Thank Des, I always check your facebook. Wish things were going better. Take care and stop in anytime.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #3 on: March 21, 2010, 02:49:40 PM »
  :flower; :grouphug; :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Jean
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« Reply #4 on: March 21, 2010, 02:57:08 PM »
I go there too Des ( Well, I guess you know that ). But it just is not as good as IHD, so I never read the posts, I just go to chat. Hope things get better for you soon.
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One day at a time, thats all I can do.
paris
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« Reply #5 on: March 21, 2010, 03:20:52 PM »
Hi Des, I look for you on facebook, too.  I have been a member on other forums since I first was diagnosed, but this is my home.  I check the other sites once in awhile.   I hope things start getting better for you, Des. We all care about you.    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
looneytunes
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Wishin' I was Fishin'
« Reply #6 on: March 23, 2010, 04:30:41 PM »
Des.....I see you around and I'm wishing you better days ahead! 
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"The key to being patient is having something to do in the meantime" AU
del
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del and willowtreewren meet
« Reply #7 on: May 28, 2010, 05:01:04 PM »
I am on other sites as well but haven't been on much anywhere those days.  Lot of difficult family things going on. Hopefully things will start to settle soon and things will get back to some sort of normal.
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Don't take your organs to heaven.  Heaven knows we need them here.
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #8 on: May 28, 2010, 09:59:05 PM »
 :waving; Hi del, good to see you! Please tell your hubby I am sorry it's been so hard with his mom.  :grouphug;
Best wishes to you both!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."
« Reply #9 on: June 18, 2010, 02:36:39 PM »
Is Angie's site still up?  I can't visit as a guest anymore.  ???

The message I received was:
403 Forbidden
« Last Edit: June 18, 2010, 02:38:30 PM by Zach » Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
BigSky
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« Reply #10 on: June 18, 2010, 02:41:59 PM »
Quote from: Zach on June 18, 2010, 02:36:39 PM
Is Angie's site still up?  I can't visit as a guest anymore.  ???

The message I received was:
403 Forbidden

Must have been a glitch.

Its still up and can be viewed as a guest.
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Jean
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« Reply #11 on: June 18, 2010, 11:56:33 PM »
I tried to go on today and got the same error message Zach did. Same thing for Hanify.
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One day at a time, thats all I can do.
monrein
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Might as well smile
« Reply #12 on: June 19, 2010, 06:20:48 AM »
I got the same thing.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
BigSky
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Posts: 2380
« Reply #13 on: June 20, 2010, 08:52:21 PM »
Hmm,  I was just on that site as a guest and had no problems.
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paris
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« Reply #14 on: June 21, 2010, 06:38:59 PM »
I just got the same message 5 minutes ago.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #15 on: June 21, 2010, 07:15:30 PM »
Angie just has to do some simple maintenance in her Admin interface and the problem will go away. or  She needs to upgrade her disc space at her hosting. Sometimes the limit fluctuates day to day.
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BigSky
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« Reply #16 on: June 22, 2010, 03:39:39 PM »
Here is a email about some problems why some were not able to view the site.




After much looking into this it seems the problem was that our host did not like how the new security worked and felt it was being DDOS attacked and blocked all IP's. I do not understand at this point why some members were able to visit while others were unable to but after speaking to the host I have decided to stop beta testing the new security and to disable it completely (a 2 step process). I have completed the 2nd step and all members who were getting the dreaded 403 forbidden error should NOW be able to get onto the site and forums no problem!

If you still have an issue, please tell me what your IP is so that I can tell the host that we go through to unblock it as it is not blocked on the forums. To check go to http://whatismyipaddress.com and tell me the numbers (they look like 192.168.1.1 or any variant of numbers like that separated by the periods). Tell me not on the forums but by contacting me via this form: http://formsmarts.com/form/8rj

Thank you for your patience through me telling you I was looking into this and your understanding on how long it took.

Sincerely,

Angie of KidneyKorner.com
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