who woulda thought...??? a surprise not only to me but to many other young girls

[srg22]

Hello my fellow IHD friedns. my name is sophie g and i am 22 years old. about 6 months ago i was on my death bed not knowing why i was so sick..? come to find out my kidneys have failed.
who woulda thought a young girl with no history of it in my family, no diabetics in my family, and no major health problems would crash so hard..? and all because of what? me trying to protect myself.
about two years ago i started using yazmine birth controol so that i wouldn't become pregnant and now i really am paying for it. the doctors didn't know what was wrong with me over the past two years i had become so cold all the time i would shake while at work (and considering i am a hairstylist this was very scary for me),i was so anemic if you touched my arm i would bruise. i became so tired sleeping from 8 at night to 12pm and waking up so tired? i would wake up in the middle of the nights with painful cramps in my legs that would last for hours. all the doctor would say is you need to start drinking milk, you need to start eating better you need to stop working so much you need to take a multi vitamin,,(not one time did they recommend a blood test>>>?), after 2 years of you need to do this and do that i was at the peak of my life ,,, in a good relationship happy at work.. and all of a sudden i crashed  ended up in the hospital for almost a month on life support. i was scared to death before they told me what was going on i felt like my body was deteriorating and my days were numbered. when they told me my kidneys weren't functioning i thought it was just a bad dream that someone needed to wake me up from... truth is it wasn't a dream it was a nightmare that i would have to live with for the rest of my life.
at first i didnt know it was related to the bc but after doing research on my med history i was perfectly healthy prior to starting the pills and since taking them is when all the side effects came into place, many other young girls have suffered from these pills although they are still on the market and people are still taking them today. i am now seeking out legal advice and have someone to represent me in regards to this.

i see other people and they seem so positive and happy and i just don't feel that way i have fallen into this depression that i cant get out of i think of a lot of other people that are in much worse situations then this and i try to look at the bright side but i just feel like my life is being taken away from me and i feel like all my dreams are so out of reach due to my situation.
trying so hard to be thankfull that i am here but sometimes i wish i wasnt here so i wouldnt have to deal with all this.

sorry if my intro wasnt a happy 1 but im as real as they come and im not going to give any of you that are going through the same thing that i am a fake story...

[Bajanne]

Welcome to our wonderful community.  I am so sorry to hear what could happen to a perfectly healthy person with no unhealthy family history.  Thanks for sharing your experience with us.  All I can do is let you know that you have an entire international community with you now, a real family    We will be going it through it all with you.  There is a lot of information on this website.  Also tons of support, and loads of fun.  Please take advantage of all we have to offer.



Bajanne, Moderator

[srg22]

  so much for your support and welcoming message!

[monrein]

   Sophie.  Glad you found us and please don't feel that you have to be "happy" and "up" all the time.  Not realistic really even without kidney disease.  Read as much as you can here on the site and ask any questions you may have.  We are here to offer encouragement, support and sometimes just to listen.  I look forward to getting to know you better through IHD and am really sorry to hear of how you ended up with kidney failure.

[okarol]

Hi srg,
My daughter was 18 when her kidneys failed and it was awful. You have my sympathy - it's a lot to deal with for anyone, but when you're young it must be overwhelming. I hope you keep posting and find some hope here.
Welcome!

 

okarol/admin

[MooseMom]

Well, I'm old (52), and I know how wretched I feel because of suffering from CKD for no identifiable reason whatsoever.  I don't know what's worse...knowing what caused it (like you) or it remaining a mystery (like me).  It just sucks no matter what, but when you are young and previously healthy, it's truly awful, and I am so sorry that you have this in your life.  There are a lot of people on IHD who have a myriad of experiences with kidney disease.  There are those like you and me who are still struggling, and there are many more who have found their peace and have been able to live happy and pretty normal lives.  No one will chastise you for feeling as you do and for posting about it.  No one expects you to pretend to be happy when you are not.

[sullidog]

I also learned the same way, I crashed almost and I didn't have no doctor at the time so I went to an urgent care and all they knew was I was anemic so my advice don'tgo to an urgent care to try to figure out what's going on.
Troy

[srg22]

thanks every one... and troy... i didn't have medical insurance either so i had to go to an emergency room 2 times before they did a blood test. first time they said i had a bladder infection 2nd time i was having an anxiety attack. so on and so forth. the medical industry is terrible. 

[MooseMom]

thanks every one... and troy... i didn't have medical insurance either so i had to go to an emergency room 2 times before they did a blood test. first time they said i had a bladder infection 2nd time i was having an anxiety attack. so on and so forth. the medical industry is terrible.

Oh God...no insurance?  Do you have insurance now? 

[Romona]

You will learn so much here. It is scary what medications can do. You are not alone here. 

[Jean]

Oh, My God, what a horrible thing to happen. And this birth control pill was I assume approved by the FDA? I did notice on their commercials that they now say not for everyone, and do not use if you have kidney disease. I just cant believe the dumb Dr. never took any blood to have it tested. It is sad when this happens to some one so young. But, take heart, you are young. Learn all you can here and you are probably otherwise healthy, so maybe a transplant soon? I hope so. At any rate,  to IHD. Many many people here can help you. It is a great site.

[tyefly]

Sorry to hear that a medication caused your CKD......   that happen to me too.....   no fun...and you are so young..... learn all you can  and we are here to help with your journey.......

 take care  .....

[galvo]

G'day , Sophie. No denying it, kidney disease is a bummer BUT you can learn to live life with it. There are great people here and a ton of info. Go through the posts and post often yourself. There are no silly questions. BTW are you on Dialysis yet? What kind and how's it going?

And, most importantly, 

[Zach]

Real good to have you here!
 

[srg22]

thanks everyone... im so glad to have found this site... especially because i feel like i have no one to talk to well no one to talk to that understands what im going through...


and now i have medical and medicare but no primary...
i am on dialysis and have been for about 6months now...
waiting on a date for a transplant.
keeping my fingers crossed 

[Yvonne]

Your letter sounds just Like my husbands case but his happened at the age of 72. He didn't have a days illness prior to that age, so when he became ill visiting the Dr. about 7-8 times telling how ill he felt, it wasn't until I went with him and demanded something more be done he was admitted as an emergency with renal failure and them saying another 4 days and he would have died.
So I've come to the conclusion no mater where you live in this world the Doctors are all the same.
I wish you all the best of luck in finding a kidney Yvonne from the 

[nycrtst85]

22 that's the same age i started.Be strong and trust your instincts cause a lot of times doctors can be wrong.try natural medicine.Kidneys do regenerate if you take very good care of yourself also have Faith in God.A lot of healthy people die in accidents without ever expecting it.You are meant to live for a reason,just like everyone in here.being depressed does'nt help in any way,think positive.