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Poppylicious
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« on: February 24, 2010, 02:20:53 PM »

Whilst I was visiting family in Prague last week my Blokey became the proud owner of what seems like thousands (but is, in reality, much less than that) of boxes.  I became the proud owner of a very messy house, but that's by-the-by because I managed to do a lot of tidying today, plus we had a shed put up in the back garden this morning (courtesy of the hospital where he receives his dialysis/care).

Blokey will spend tomorrow and Friday training on his own machine with a view to starting PD over the weekend.

But do you ever get used to the boxes?  There just seem to be so many of them!  Still, the Baxter chap who delivered a few more today was nice; he tried to explain everything to me but it went in one ear and straight out the other.  At the moment it just seems to be taking over our house and our lives ... once we get into the PD routine will we get control again?! 

Sorry, this is a very random post and I'm tired.  It just all looks highly complicated (I'm assured that it isn't) and I suppose I'm trying to get my head round it all. ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
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Everything was beautiful, and nothing hurt.
jbeany
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« Reply #1 on: February 24, 2010, 04:35:47 PM »

Eventually, you will find a system to organize it all that works for you, honest!
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peleroja
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« Reply #2 on: February 24, 2010, 06:09:05 PM »

I've got boxes everywhere.  Every time I turn around we changed my prescription, and now I have old stuff getting ready to expire out in the garage, one set of colors in the living room, another set of colors in a different part of the living room, and the majority of what I use in the computer room.  I break down the boxes every week and recycle them.  It seems like it's never ending.  Once a month I get to see the one wall in the computer room that I almost never see.  Life goes on!
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KICKSTART
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« Reply #3 on: February 26, 2010, 01:11:42 AM »

I guess i was lucky ! i had a spare bedroom , i kept all my stock in there and did all my treatments in there , so at the end of the day i just shut the door on it and that was that !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
billybags
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« Reply #4 on: February 26, 2010, 01:50:02 AM »

As you say "boxes boxes "every where. We are lucky, we got in touch with our local council and explained that we had loads of cardboard due to dialysis and they provided us with an extra bin at no extra cost. We get them emptied once a fortnight. We also keep on top of them, when one is finished we flatten it.
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phyl1215
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« Reply #5 on: March 06, 2010, 09:39:35 AM »

Hi, I'm new to PD and I just got a recyclin :clap;g bin for the boxes....I hated throwing them out.  Yes, we were lucky to have a big enough closest to hide the boxes in!  :yahoo;
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« Reply #6 on: March 06, 2010, 11:16:31 AM »

I totally understand the frustration!
We have a full house as it is, and my poor brother, who lives in the garage, has to live with all the boxes in there too, so because we don't want to disturb him all the time, we have emptied out drawers in our room to store the cassettes & drain bags, and have 1 pile of 1.5%s & 1 pile of 2.5%s stored in the hallway outside our room.
But hey, having spare boxes all the time does sure come in handy for storage etc!  :laugh:
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

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Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
Poppylicious
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« Reply #7 on: March 08, 2010, 07:26:42 AM »

Thanks for your replies, and apologies for taking so long to come on here and read them!  Blokey finally started his PD this past Saturday (a week late because of complications) and lack of sleep is currently the In Thing in our house. 

I guess i was lucky ! i had a spare bedroom , i kept all my stock in there and did all my treatments in there , so at the end of the day i just shut the door on it and that was that !
We do have a spare room but it's full of junk.  As is the computer room.  And our bedroom.  Is it true you can claim for a reduction in Council Tax if you give up a room to PD? 

As you say "boxes boxes "every where. We are lucky, we got in touch with our local council and explained that we had loads of cardboard due to dialysis and they provided us with an extra bin at no extra cost. We get them emptied once a fortnight. We also keep on top of them, when one is finished we flatten it.
Oh, I am such a numpty!  Last night I was grumbling about the boxes because they're a pain to flatten and I started panicking about how they're going to fill the recycling bin (they collect fortnightly) up too quickly.  I shall contact the council about an extra recycling bin!  I was actually going to ask you (or anyone else who might be in the UK and on PD) is it the local council who arrange collection of your yellow NHS 'medical rubbish only, must be incinerated' bags?  Nobody has told us and they're filling up fast.  I hope you know what I'm talking about!

But hey, having spare boxes all the time does sure come in handy for storage etc!  :laugh:
See, I hadn't been thinking of the positivities surrounding this!  They will come in most handy for all the stuff I need to take to the charity shop. 

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
billybags
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« Reply #8 on: March 08, 2010, 08:16:22 AM »

Ok Poppylicious.Get in touch with your local council and ask for the "clinical waste dept" explain your hubby is on home dialysis and they will collect your waste once a week and leave you the yellow waste bags. Have you been in touch with the water board to get priority help if there is a service cut in your area, also get on the priority electric list, this is encase there is a black out.You will be at the top of the list if things go wrong. So you have your box's sorted, your waste sorted, electric and water sorted. Hows Blokey doing, have you had any alarms yet, when Alan first went on it I sh** my self when the alarms went off, he used to get wrapped up in the line because he suffers with rest less leg and I would end up unraveling him. He doing CAPD at the moment I dread him going back on to PD, I will have to decamp to the spare room, does the noise of the machine bother you, I know I sound a bit, well a lot negative but what with the alarms, the noise and him wrapping his self up like a mummy it did my head in. I hope you have better luck if not a spare bed. Lol
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paul.karen
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« Reply #9 on: March 08, 2010, 12:32:20 PM »

What i do is use the Cassette box to store all the PD solution boxes in.  Once i open a PD solution box i flatten it and they fit nicely into the cassett boxs.  Then i have only one box of (cardboard waste) to deal with. 
I also bought a 55 gallon trash can with large liners just to put used cassets and PD solutions bags into.

Hope all works out fine for you both.  In time you will come up with a system that fits you both.
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Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
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