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Hello from North Carolina
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Topic: Hello from North Carolina (Read 280 times)
kt_sue
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Hello from North Carolina
«
on:
February 07, 2010, 06:39:20 PM »
Hello everyone,
I am Katie, and I have PKD and Diabetes and only a small amount of kidney function left, but I have already started the transplant testing process and had to start considering what type of dialysis I will need in the near future. I have been reading your website since last year, but now that dialysis is so close, I felt it was time to introduce myself. I am 29 years old and currently working as a journalist and now have to contemplate what am I going to do if I have to start dialysis. Will I be able to continue to work? Will I have to go to part time or quit altogether? Anyway, I just wanted to introduce myself. I look forward to talking to all of you.
One other thing. I am the biggest George Clooney fan of all time.
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Just waiting for the next George Clooney movie
willowtreewren
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We are only as old as we think we are.
Re: Hello from North Carolina
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Reply #1 on:
February 07, 2010, 06:54:32 PM »
Hi, Katie,
Welcome (belatedly) to IHD. I'm glad you de-lurked!
Whether you will be able to work once you start dialysis will depend on many things. first there is the type of dialysis you choose (in center hemo, PD, home hemo). It will depend on your energy levels, how dialysis affects you, and of course, the demands of your schedule. Many folks are able to continue working but others are not. I hope you are one of those who can!
Let us know what is happening in your life so we cn cheer you on!
Aleta
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Caregiver to husband, Carl, who has PKD.
Partner for NxStage HD since August 2008.
looneytunes
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Re: Hello from North Carolina
«
Reply #2 on:
February 07, 2010, 07:44:54 PM »
Hi Katie and welcome to IHD!
It sounds like you have a great attitude and you'll be fine. So glad you joined the group and I'm looking forward to seeing your posts!
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"Don't let what you can't do overshadow what you CAN do"
galvo
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Re: Hello from North Carolina
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Reply #3 on:
February 07, 2010, 09:26:26 PM »
G'day Katie and
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Galvo
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
Re: Hello from North Carolina
«
Reply #4 on:
February 08, 2010, 01:56:23 AM »
Hi Katie and welcome. Yes, lots of people work full time and do dilaysis. I do PD with a cycler at night - and I work part time. Look forward to getting to know you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
Mimi
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For any who do not like me I use - prayer.
Re: Hello from North Carolina
«
Reply #5 on:
February 08, 2010, 02:20:44 AM »
Welcome to IHD Katie. Come right in and make yourself at home.
Oh and by the way I am the greatest fan of Brad Pitt there is.
LOL
Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Zog
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Re: Hello from North Carolina
«
Reply #6 on:
February 08, 2010, 08:18:28 AM »
You can work, go to school, have babies and live several decades on dialysis. Don't ever believe statistics. A lot of how you feel depends on you taking some responsibility for your healthcare. My wife is 28 on dialysis and we are NC too!
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My wife is JDHartzog. In 1994 she lost her kidneys to complications from congenital VUR.
1994 Hydronephrosis, Double Nephrectomy, PD
1994 1st Transplant
1996 PD
1997 2nd Transplant
1999 In Center Hemo
2004 3rd Transplant
2007 Home Hemo with NxStage
2008 Gave birth to our daughter (the first NxStage baby?)
fc2821
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Just another hamster on the dialysis W.O.F.
Re: Hello from North Carolina
«
Reply #7 on:
February 08, 2010, 10:28:48 AM »
Greetings Katie and
to IHD. There are several of us here who also live in NC. Hope you are not in the part of the state tht got more ice and snow this weekend. Sure dialysis is the big unknown and scary but you'll do well.
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In center hemo dialysis since Feb 14, 2007.
If I could type properly, I'd be dangerous!
You may be only one person in the universe but you may mean the the universe to someone else.
paris
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Re: Hello from North Carolina
«
Reply #8 on:
February 08, 2010, 10:35:13 AM »
Welcome Katie from another North Carolinian
We are glad you decided to join. You already know how helpful this site can be and it will be a great source of information as you continue this journey. Support is also a valuable part of IHD. Looking forward to reading more of your posts. Welcome to IHD
paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile
Re: Hello from North Carolina
«
Reply #9 on:
February 08, 2010, 12:54:10 PM »
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
Re: Hello from North Carolina
«
Reply #10 on:
February 08, 2010, 03:49:51 PM »
Sounds like you guys should have a NC get together!
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
fc2821
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Just another hamster on the dialysis W.O.F.
Re: Hello from North Carolina
«
Reply #11 on:
February 09, 2010, 12:11:19 PM »
Quote from: Hanify on February 08, 2010, 03:49:51 PM
Sounds like you guys should have a NC get together!
Good idea, Bern.
Now, if we can just squeeze it into our busy schedules
Actually, it really is not funny, more true than funny.
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In center hemo dialysis since Feb 14, 2007.
If I could type properly, I'd be dangerous!
You may be only one person in the universe but you may mean the the universe to someone else.
kt_sue
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Re: Hello from North Carolina
«
Reply #12 on:
February 10, 2010, 07:12:02 PM »
Thank all of you for the very warm introductions. Just knowing that I am not going through this alone is very comforting.
Katie
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Just waiting for the next George Clooney movie
Jean
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Re: Hello from North Carolina
«
Reply #13 on:
February 10, 2010, 09:33:00 PM »
to IHD and I just love George Clooney also.
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One day at a time, thats all I can do.
cloud393
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Re: Hello from North Carolina
«
Reply #14 on:
February 12, 2010, 10:33:32 AM »
Welcome Katie from another PKD patient. This is a great place to get information so ask all the questions you want.
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May you live as long as you want and never want as long as you live.
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