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Author Topic: Cycler Drainage Problems  (Read 18032 times)
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #25 on: March 19, 2007, 06:03:55 AM »

Sorry to hear that you're  having so many problems with the cycler. Have you had the position of the catheter checked out?
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Ken
hephziba
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« Reply #26 on: March 19, 2007, 06:11:37 AM »

I went this morning and they sent me for an xray, and as a result have been given stronger laxatives. they still dont know why I have high blood pressure as I am not medically overloaded and am taking the full compliment of Bp Tablets...

oh well lets see if this works......
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God who comforts the downhearted comforted me again by your visit.
rimbo74
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My older brother and me (I'm on the right)

« Reply #27 on: March 19, 2007, 08:54:44 AM »

Hey Heph,

My BP was out of control as well, taking all sorts of BP medicine.  Now I'm taking Doxazosin 4mg.  Since then my BP has been around 140/80.  It got as high as 199/120. 

I tried vasotec, norvasc, but none of those worked.
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1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
goofynina
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He is the love of my life......

« Reply #28 on: March 19, 2007, 04:33:57 PM »

Hi Heph,  It is so nice to see you come and post, we miss you and the little lady, i am sorry your still having trouble with your dialysis and i wish you Godspeed my friend, hang in there, get will get better, it has to right?   dont be a stranger ;)
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....and i think to myself, what a wonderful world....

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hephziba
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« Reply #29 on: March 20, 2007, 02:22:37 AM »

hey friends. last night I had no alarms, and I drained 215 hardly life changing I know, about a cup of tea, but at least its progress. yeah I am taking doxasozin, ramipril, and amlodipine, for my bp havent checked it yet this morning hopefully its come down some..

still no alarms was a nice improvement.

hey goofynina. good to hear from you as well. my little lady is fine, we are very busy with hobbies..will continue in offtopic..
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God who comforts the downhearted comforted me again by your visit.
goofynina
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He is the love of my life......

« Reply #30 on: March 20, 2007, 06:19:29 AM »

Woohooo, Right on,  i'd rather have little improvement than no improvement at all right? right! ;)  Glad to hear you had a good night and hopefully there will be more to come, and i sure hope your blood pressure goes down as well, have you ever tried Minoxidil (sp)  That was the one medication that really helped with my b/p BUT it also gave me facial hair like you wouldnt believe,  :o (can you say Chewbaca)  :P  so needless to say i stopped that one and got on Norvasc and Metropolol (which seem to be working for now)   :thumbup;
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....and i think to myself, what a wonderful world....

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hephziba
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« Reply #31 on: March 20, 2007, 07:53:35 AM »

I dont mind having more facial hair, if it doen't improve I can ask my consultant for that one. my bp was still high when I took it this morning, 170 over 125 .....

but having a wonderful day nevertheless..
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God who comforts the downhearted comforted me again by your visit.
kitkatz
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« Reply #32 on: March 20, 2007, 01:34:47 PM »

The Wookie speaks over here.  I am on Minoxidil and yo boy do I have hair growth! However the BP is down to almost normal levels for me!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
rimbo74
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My older brother and me (I'm on the right)

« Reply #33 on: March 23, 2007, 09:56:59 AM »

MY DRAINING PROBLEMS HAVE BEEN RESOLVED!!!

We increased the amount that I put in from 2,000ml to 2,600ml (4x a night) in hopes of "floating" my catheter out of wherever it was hiding.  This appears to have helped because I no longer get the pulling pains. 

Also, I carry 500ml during the day.  I found that if I only drain 100ml on the initial drain, it keeps the alarms from occuring.  Meaning I'm starting off with an extra 200-300ml since I didnt drain it out completely when starting.
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1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
Chicken Little
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« Reply #34 on: March 27, 2007, 09:18:11 AM »

I'm having the same problems, Heph.  I've been on the cycler for a 8 days.  The first night I had alarms all night, but got off 850.  The second night we changed the machine to tidal and I only alarmed on the first and second drains and got off 1600.  Since then, it's been all downhill.  It's taking me about hour+ to drain, it's sucking the life outta me and I'm still -400, -600 each night.   :'(  My feet are so swollen and my stomach is hard a distended, even when I'm empty.  I'm not constipated, we've tried heparin, moved the machine and nothing has helped.   I just put in a 2.5 manual, but what's the point of doing CCPD, if I'm still going to have to do exchanges during the day too.  I'm so depressed.
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carson
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« Reply #35 on: April 02, 2007, 07:06:38 AM »

chicken little, I've always done one exchange during the day. Don't get discouraged.  It's no biggy.
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
Chicken Little
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« Reply #36 on: May 16, 2007, 05:20:18 PM »

chicken little, I've always done one exchange during the day. Don't get discouraged.  It's no biggy.

Thanks.  I'm back on the cycler now with no daytime exchanges, after serving a fun filled 5 week sentence in a hemo.  I actually had bigger issues than inadequate UF.  I had torn my peritoneum.   
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carson
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« Reply #37 on: May 17, 2007, 06:44:00 AM »

yikes! I hope all's better now!
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
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