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Author Topic: What are they doing to me ?  (Read 2452 times)
KICKSTART
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In da House.
« on: January 29, 2010, 05:29:00 AM »
Im dreading going in to dialysis tomorrow. As you know i went in overloaded on tues (not through my own fault) Anyway they pulled loads off me and i felt great ! So when i went in yesterday they decided to do the same thing , no Loop , no Profile. Now if my dry weight was correct i had 2.2 to pull off. I went in with my USUAL high bp of 212/110 (nothing new) They put me on the machine and ....it took about 1.9 off and my bp went to 84/62 :o Well as you would expect i felt horrendous , i was light headed , my face was tingling so i told them to stop pulling the fluid off, even tho they wanted to keep going because i hadnt done my target !!!! How i drove home i dont know ! Ive fellt ill all last night , my eye pain is horrendous its kept me awake all night , i have the most terrific headache all day today. What on earth are they doing to me ?
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
looneytunes
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Wishin' I was Fishin'
« Reply #1 on: January 29, 2010, 07:24:19 AM »
Oh KS...I'm so sorry it has been tough for you.  Get your bat out and kick some a$$!    :Kit n Stik;    You know what's best for you!  I'll be thinking of you.   :grouphug;
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"The key to being patient is having something to do in the meantime" AU
Zog
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« Reply #2 on: January 29, 2010, 07:39:25 AM »
That's a crazy low BP!  Looks like they should have taken off half of that.  Punch them next time  :boxing;
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My wife is JDHartzog. In 1994 she lost her kidneys to complications from congenital VUR.
1994 Hydronephrosis, Double Nephrectomy, PD
1994 1st Transplant
1996 PD
1997 2nd Transplant
1999 In Center Hemo
2004 3rd Transplant
2007 Home Hemo with NxStage
2008 Gave birth to our daughter (the first NxStage baby?)
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: January 29, 2010, 10:51:58 AM »
 :grouphug;

I know this is NO FUN!  >:(

Hope you can get them to LISTEN!

 :banghead;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
sullidog
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« Reply #4 on: January 29, 2010, 04:24:41 PM »
Yeah they should of stopped. I think talking to these dialysis nurses sometimes is like talking to the wall.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
twirl
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« Reply #5 on: January 29, 2010, 04:28:22 PM »
I bled three times today before I got to leave the place --
the tech asked me what I was doing wrong --- I was making her whole day off schedule --
my jeans and blouse were covered in blood --
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kristina
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« Reply #6 on: January 30, 2010, 01:09:21 AM »
May I  just ask a question please (and this could be a general question as well...):
KICKSTART, are you the only NHS-patient who has been singled out and treated badly
or are there other NHS-patients who are similarly treated very badly
whilst there is another group of NHS-patients who are treated favourable?

I am asking because that is my problem with NHS-doctors:
NHS-doctors were very kind and very caring to one group of NHS-patients
whilst they treat - at the same time - another group of NHS-patients very badly...

Thanks for your answer, Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Jean
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« Reply #7 on: January 30, 2010, 08:32:47 PM »
Holy Crap!!!!! Does this never stop for you? It seems like no matter where you are going or what you are doing, you get these lunatics supposedly taking care of you. you do need, I think the big stick to take with you. Good luck KS.
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One day at a time, thats all I can do.
Mimi
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For any who do not like me I use - prayer.
« Reply #8 on: January 31, 2010, 12:22:07 AM »
They need their arses kicked.  You don't fool around with BP.  Whatever they are doing to you is wrong.  I would let them have the foot.

Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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