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Author Topic: Wow... its all about Twirl...  (Read 3610 times)
dwcrawford
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Getting the heck out of town.
« on: January 19, 2010, 04:12:42 PM »
Did you hear? :bump;
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: January 19, 2010, 04:13:39 PM »
Nope, whazzup?  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #2 on: January 19, 2010, 04:24:45 PM »
Yeah - really exciting...
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: January 19, 2010, 04:29:51 PM »
Twirl, if you are here,

I have missed you, missed you, missed you!

 :flower;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MIbarra
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Stopping to smell the bluebonnets
« Reply #4 on: January 19, 2010, 04:53:33 PM »
me too! and I hope you are doing well Twirl.. and your little dog too.
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Cadaver transplant April 29, 2007
Rerun
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Going through life tied to a chair!
« Reply #5 on: January 19, 2010, 05:15:19 PM »
Twirl Girl, come check in.

               :yahoo;
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thegrammalady
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« Reply #6 on: January 19, 2010, 05:38:04 PM »
she was online today, but apparently didn't see this.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
kitkatz
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« Reply #7 on: January 19, 2010, 06:57:47 PM »
Calling Twirl. Come check in with us.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bub
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« Reply #8 on: January 20, 2010, 11:34:54 AM »
We all want Twirl to check in, but gosh darnnit people you need to get this right.

It's not all about Twirl, its all about me!
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #9 on: January 20, 2010, 11:59:54 AM »
Sorry Bub - you'e wrong.  it's all about me!!!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
kellyt
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« Reply #10 on: January 20, 2010, 12:40:55 PM »
Enough about ME.  Let's talk about YOU.  What do YOU think about ME?   ;D
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
pamster42000
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« Reply #11 on: January 20, 2010, 03:33:54 PM »
Ok I didn't hear....what happened?
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Chris
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« Reply #12 on: January 20, 2010, 08:37:58 PM »
I was hoping to hear something about Twrl. And I think kelly is saying in her head "You like me! You really, really like me!"  :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jean
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« Reply #13 on: January 20, 2010, 11:19:38 PM »
Well, where is she? Any one called her?Does she not love us any more?
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One day at a time, thats all I can do.
Chris
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« Reply #14 on: January 20, 2010, 11:25:14 PM »
The last time I called her, she didn't remember me. :oops;  :urcrazy; :rofl; But I haven't called her to give her space
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
twirl
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« Reply #15 on: January 21, 2010, 03:12:23 AM »
I did remember you CHRIS ---- my father-in-law just passed away --
and I have been worried about you --
are you staying out of the hospital??????
eating your protein ??
and the Christmas card made me laugh and it is still up in the computer room ---
but then our Christmas tree is still up   :shy;


ps   I have a couple of ex-students named Chris who sometimes call me so I did not know which
      Chris I was talking tooooooooo ---
« Last Edit: January 21, 2010, 03:15:57 AM by twirl » Logged
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #16 on: January 21, 2010, 04:05:21 AM »
Quote from: Chris on January 20, 2010, 11:25:14 PM
The last time I called her, she didn't remember me. :oops;  :urcrazy; :rofl;

I called too, but never heard back.  :waiting;
Good to see you twirl.  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #17 on: January 21, 2010, 04:33:58 AM »
 :waving;  Hi Twirl.  Sorry to hear about your Dad-in-law.  Hope you're OK.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #18 on: January 21, 2010, 04:47:43 AM »
Soooooo glad to see you posting! Been worried about you Twirly
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #19 on: January 21, 2010, 05:54:37 AM »
Twirl,  I am so very sorry about your father in law.  Your family has had some tough times lately.  We've missed you   :grouphug;   Post when you can and tell us about the new grandbaby, Bubba, the dogs -- catch us up on everyone.    :2thumbsup;   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #20 on: January 21, 2010, 07:18:20 AM »
So glad to hear from you, but so sorry to hear your news about your Father-in-law.  Hurry back!  We miss you and your posts.   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
dwcrawford
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Getting the heck out of town.
« Reply #21 on: January 21, 2010, 08:30:50 AM »
OK, Twirl, fess up.  Did you come back because of my fake post... hehe.  Guess it worked for something then?
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22 on: January 21, 2010, 08:31:18 AM »
 ???
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Bub
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« Reply #23 on: January 22, 2010, 11:38:44 AM »
Twirl, so glad you are back, now we can get the main topic of conversation back to ME.

If it takes boycotting this board for a week or two to get attention.  I will, I swear I will.
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MandaMe1986
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« Reply #24 on: January 23, 2010, 12:57:07 PM »
Twirl just thought Id add my  :twocents; and say I love ya.  Do miss talking to you but I understand I haven't been on IHD much either.  Hope things are better and Im so sorry to hear about your father in law.  Take care of yourself.

~Amanda Marie
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
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