I try to make sure I eat lower phos food instead of high, and so on and so forth... but each month my numbers remain high. Anyone else?Angela
Quote from: angela515 on November 05, 2006, 06:57:15 AM I try to make sure I eat lower phos food instead of high, and so on and so forth... but each month my numbers remain high. Anyone else?AngelaI have trouble with phos also. Mine is always on the high side. I take Renagel 800 5 with breakfast, 6 with lunch and 6 with dinner. I also just started on Sensipar. I had a talk with the dietician at my center and she told me they're adding phos to more and more foods every day. I was eating frozen chicken breasts, unbreaded and grilled and she told me they're loaded with it. ALso waffles, french toast that's the frozen kind are loaded with it. Processed chicken, turkey--especially Butterball turkeys so watch out this Thanksgiving for that. One good thing is that my albumin is finally up there but that's from eating more meat like chicken and turkey. Thus my phos is higher. She gave me a list of foods with hidden phos in it--I'll have to find it and post some of it. But what are we supposed to do? Eat crackers--which they say are loaded with hydrogenated vegetable oils and are very bad for you. We can't win. But I eat things in moderation, I basically eat what I like except for the obvious things. My bloodwork is pretty good excect for the phos which has been higher than normal.
Darn it, the renal diet stuff I've seen says waffles are a good choice for a renal diet. Do they only mean the homemade ones? Why don't the labels show phosphorus? I can make them myself with the waffle iron from now on, I suppose. Cuts down on the salt, too.
Great link Ny2Fl, very informative, thanks for posting that, and thank you for also telling us about the flavored water, it is so true what you said, even with clear fluids there can be phosphorus lurking... great post,
Quote from: goofynina on November 05, 2006, 04:05:14 PMGreat link Ny2Fl, very informative, thanks for posting that, and thank you for also telling us about the flavored water, it is so true what you said, even with clear fluids there can be phosphorus lurking... great post, I found this article in the Journal of Renal Nutrition:Conflicting Dietary Advice for Adhering to Low-Sodium and Low-Phosphorus Dietshttp://www.jrnjournal.org/article/PIIS1051227606001580/fulltextVolume 16, Issue 4, Pages 332-336 (October 2006) andHidden Phosphorus-Enhanced Meatshttp://www.jrnjournal.org/article/PIIS1051227605001196/fulltextIf you go to jrnjournal.org they have a lot of good articles and most are free or abstracts
Phosphorous/Calcium balance is the bane of every renal patient.I find it easier maintaining my balances by trying to keep clear of processed foods. Most preservatives are Potassium or Phosphorusbased. Just read the ingredients.Along with diet, the most important thing is, of course, Binders.If you don't think your binders are working...ask your doc to prescribe something else. Every year there are more and more choices.Also, might ask to try a different combination of binders. I have been working well with a combo of Renagel and a little Phoslo.
Quote from: jbeany on November 05, 2006, 02:54:19 PMDarn it, the renal diet stuff I've seen says waffles are a good choice for a renal diet. Do they only mean the homemade ones? Why don't the labels show phosphorus? I can make them myself with the waffle iron from now on, I suppose. Cuts down on the salt, too.Actually it is serving size that one needs to pay attention to. Many times the serving size they use is not alot.A commercial waffle is usually about 120 mg of phosphorus per waffle.A homemade one (2.6 oz) is about 130 mg of phosphorus per waffle.This is listed as being a medium phosphorus food. However was it worth it considering the bite it takes out of the allowed PO4 per day RDA PO4 for a healthy person is suppose to be 700 mg, (not like anyone follows that though).For many dialysis patients it can range from 800-1,200 mg a day. If one was at the 1,200 mg limit a day that one "plain" waffle is over 10% of your PO4 content for the day. to echo something Zach has posted in another post, one has to consider that protein intake eats up most if not all of allowed PO4 intake per day it allows very little leeway for anything else with PO4 in it to be eaten.
In other words, to follow all the parts of the renal diet recommendations perfectly is actually impossible to do. All you can do is try your best.
You might be eating something high and you do not know it or its possible you are eating too much PO4 at one time and causing an overload of it to where the binders cannot handle it.You can try eating smaller meals but more of them. Instead of 3 or so move to 6. This way it spreads the PO4 out more. Personally I take 1 binder for every 150 mg of PO4. This way I adjust from meal to meal just how many binders I take with each mealGo to dietpower.com and download the free software or order the free trial cd. It should be good for two weeks before it locks you out. It is very helpful.It sucks but measure/weigh everything you eat and then input it into the program. Throughout the day and at each days end you can see a rough amount of how much PO4 you are taking in.
You're right, jbeany, all we can do is try our best. But it's not impossible, just very difficult to follow all the parts of the renal diet recommendations.Just like NY2FL said, we need to wean ourselves away from regularly eating pre-made and/or processed meals. When we prepare and cook our own meals we have a lot more control over what is in it and what is not.I know this is not easy. Between dialysis and work, I don't have a lot of time for food shopping/cooking. But if we're ever going the beat this diet thing, we have to take responsibility for our actions
The hard part (at least for me) was breaking ones self from the convenience of processed and prepared foods and the fact that some of those foods are pretty darn tasty. That can be very, very tough.