I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 25, 2024, 11:33:21 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Transplant Discussion
| | |-+  Joe Paul got a kidney!!
0 Members and 3 Guests are viewing this topic. « previous next »
Pages: 1 [2] 3 4 Go Down Print
Author Topic: Joe Paul got a kidney!!  (Read 15560 times)
paris
Member for Life
******
Offline Offline

Gender: Female
Posts: 8859


« Reply #25 on: January 16, 2010, 06:40:50 AM »

Hi Joe Paul!  This is the best news and I am thrilled for you and your family.  All that time waiting and then, with one phone call, life changes.  I have missed you here (you always had my back!)  and it is so good to see your posting.   Keep recovering and resting.  I will be saying lots of prayers of thanks and prayers for quick healing.   Sending you lots of love and gentle hugs   :cuddle;    :cuddle;    :2thumbsup;
Logged



It's not what you gather, but what you scatter that tells what kind of life you have lived.
Wenchie58
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1655


Always carrying the big silly grin!

« Reply #26 on: January 16, 2010, 08:48:46 AM »

I can't stop going between giggles and tears over this news!  I am SOOOOOO happy for you!  You gotta quit with the puppy sneaking stuff!!  It'ss not like she won't notice once you get them home!!  I bet Saint Shirley is waiting for you to feel well enough for a trip down the stairs (inside joke folks).  God bless ya JP....I couldnt be happier!!  Here's to feeling 100% very soon!!  Love ya!
Logged

Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840


« Reply #27 on: January 16, 2010, 09:38:22 AM »

Same here, Wenchie.  I was smiling and crying at the same time.  God Bless the 5-year-old and the family.  And God Bless you, JP!!!   Yahoo!!!

Did you get the meds worked out?  What did your clinic say last night when you called?
Logged

1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Joe Paul
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4841


« Reply #28 on: January 16, 2010, 12:04:58 PM »

Same here, Wenchie.  I was smiling and crying at the same time.  God Bless the 5-year-old and the family.  And God Bless you, JP!!!   Yahoo!!!

Did you get the meds worked out?  What did your clinic say last night when you called?
We used some of my old meds to cover till this morning, the coordinator called the transplant center to verify missing pills, then called my pharmacy and ordered them for me, all is well today. I'm having bouts with nausea this afternoon, so again I called the transplant center and they ordered pills for that. As I said, all is working out now, its just a matter of time till the kidney kicks in fully, then, LOOK OUT WORLD!!! love you all, Joe
Logged

"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
fc2821
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1224


Just another hamster on the dialysis W.O.F.

« Reply #29 on: January 16, 2010, 12:48:55 PM »

Fantastic news.   :clap; :clap; :yahoo; Hope all continues to go well for him.
Logged

In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #30 on: January 16, 2010, 02:51:57 PM »

Hey JP,
Glad your home and have a new puppy also. I take it that's what is in the pictures? I can't tell except for the last one maybe showing fur.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Joe Paul
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4841


« Reply #31 on: January 16, 2010, 03:32:48 PM »

Chris, the pictures are 1- the fluid bag from my cath. 2. my first pee after the cath comes out.3 is me
Logged

"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #32 on: January 16, 2010, 04:43:51 PM »

Chris, the pictures are 1- the fluid bag from my cath. 2. my first pee after the cath comes out.3 is me

Well I was way off then wasn't I.

Those drains are a nuisance aren't they? I had two.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
charee
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1176


« Reply #33 on: January 16, 2010, 08:44:54 PM »

OMG Congrats JP i just found this thread I'm so happy for you  :grouphug;
Logged

Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Romona
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3777

« Reply #34 on: January 16, 2010, 08:46:04 PM »

Joe, I am so excited for you. The weather has been so crappy until a day or two ago. As the little kidney grows, amazing things happen. Your story makes me want to cry, it is so similiar to mine. Best wishes and I hope we can get together sometime. Of course in Pennsylvania the snow might not melt until June. Enjoy the puppy, the new house and your gift.
Logged
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114


« Reply #35 on: January 16, 2010, 10:57:38 PM »

How wonderful for you Joe Paul. A new house, a new kidney and a new dog, and its only mid-January. Would have enjoyed chatting with you tonight, but I guess you had fallen asleep at the keyboard. Congrats and Best Wishes, on everything!!!! :thumbup;
Logged

One day at a time, thats all I can do.
RichardMEL
Member for Life
******
Offline Offline

Gender: Male
Posts: 6154


« Reply #36 on: January 17, 2010, 01:04:30 AM »

hey Joe have they (transplant folks) said anything regarding the new puppy? We all know new pets post transplant can be an issue in some situations.

Just curious more than anything :)
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Joe Paul
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4841


« Reply #37 on: January 17, 2010, 01:57:07 AM »

hey Joe have they (transplant folks) said anything regarding the new puppy? We all know new pets post transplant can be an issue in some situations.

Just curious more than anything :)
Their main concern was if I had any cats at home, I told them no, because of Wife and Tiffany's allergy's, we do not own any cats, just a long hair Chihuahua puppy. They didn't say anything either way, so I am assuming all is well. Good question Richard  :thumbup;
Logged

"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
RichardMEL
Member for Life
******
Offline Offline

Gender: Male
Posts: 6154


« Reply #38 on: January 17, 2010, 06:15:25 PM »

uh oh.. I have a cat at home :(
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sunny
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1501


Sunny

« Reply #39 on: January 17, 2010, 06:35:45 PM »

Congratulations. What a wonderful story on how you got your transplant. I'm glad to know you are doing well now.
Logged

Sunny, 49 year old female
 pre-dialysis with GoodPastures
Joe Paul
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4841


« Reply #40 on: January 18, 2010, 02:11:28 AM »

Congratulations. What a wonderful story on how you got your transplant. I'm glad to know you are doing well now.
Thanks Sunny!
Logged

"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #41 on: January 18, 2010, 02:40:04 AM »

uh oh.. I have a cat at home :(

RM, you don't need to worry, you just have to take extra precautions when changing litter box and after she uses it. You may want help for the first few weeeks post, but after just wear gloves, eye protection and a mask. Then clean up and change clothes afterwards when cleaning her box. You'll be fine when you get yours.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Joe Paul
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4841


« Reply #42 on: January 24, 2010, 03:58:45 PM »

Well folks, another unfortunate update. Last Tuesday, I started having severe pains above, and to my right of the belly button. At discharge, I was instructed, by my transplant co coordinator, to call her with any problems I my have, and get instruction from her, on what to do next. I started making calls to her office around 8 am Wed. morning, with no return calls all day. My Wife Shirley finally took over, and called the manager of the coordinator and requested that she get Emily, my coordinator, to call immediately if not before hand, that we had an emergency and needed attention. She called back about 4 O'Clock Wed evening, and I was then told to go directly to the ER. I go to the ER, tell them my pain problem, and was sent directly to the ct scan, to have a scan done on my lower belly. When they got the results, I was immediately admitted again, problem was with my gull bladder. I was sent up to my room, where within 15 minutes, was on my way down for an immediate operation on removing my gull bladder. I woke up around 2 am, and about 20 minutes later, met my surgeon who told me the bladder was totally in-cased in some sort of bubble, and was totally gangrened, and that if it had burst, I probably would not have survived the operation, but thanks to the surgeon, and my guardian angel, I am here to tell you all about my never boring life. Thanks for looking, Joe P.S. They couldnt  do laparoscopic surgey do to the size and condition of the gull bladder, so I now have another 9 inch scar with 30 staples.
« Last Edit: January 24, 2010, 04:07:02 PM by Joe Paul » Logged

"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #43 on: January 24, 2010, 04:01:21 PM »

Ohm my gosh! How scary. I am so glad they caught this in time. Good thing your wife was persistent, Huh?

Keep getting better!

Logged

Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
aharris2
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1394


Volcan Pacaya, Guatemala

« Reply #44 on: January 24, 2010, 04:17:01 PM »

I second that, Joe. Thank God for your wife and her persistence. I hope you heal easily quickly!

(Cute puppy!)
Logged

Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #45 on: January 24, 2010, 05:05:31 PM »

Sorry to ear JP, glad you made it through. :beer1;
 
I guess one thing to learn from this is if no one calls back, go directly to the ER
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840


« Reply #46 on: January 24, 2010, 06:47:58 PM »

Glad you/they caught it.  I hope you're back on the road to recovery.   :cuddle;
Logged

1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Hanify
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1814


Hadija, Athol, Me and Molly at Havelock North 09

« Reply #47 on: January 24, 2010, 06:48:15 PM »

Thank goodness you're OK!
Logged

Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #48 on: January 24, 2010, 08:52:47 PM »


I am so relieved you got through the surgery ok! Please heal up and get better!!
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
Member for Life
******
Offline Offline

Gender: Male
Posts: 6154


« Reply #49 on: January 24, 2010, 09:14:17 PM »

I find it amazing that the transplant co-ordinator wouldn't call back in minutes or a couple of hours to someone who had only had their transplant less than a month ago! Yikes. Of course maybe they were away or something, but you'd think that her messages or whatever would be monitored. Good on your wife for calling her boss and getting things going along. I think this is a reminder to us that if you call and they don't get back to you in a timely manner - go higher!
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Pages: 1 [2] 3 4 Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!