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| | |-+  Planning on going to Disney World in Orlando! Need advice
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Author Topic: Planning on going to Disney World in Orlando! Need advice  (Read 5350 times)
karen547
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« on: January 12, 2010, 01:21:47 PM »

I am hoping to be going to Disney World for the first time this year with my parents! I have traveled before while being on dialysis but have any of you gone to Disney World while being on Dialysis?? Any stories, tips, advice you can give is appreciated!
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #1 on: January 12, 2010, 01:23:51 PM »

I went to Disneyland last year - they're all pretty much the same I think.  I'm on PD and they had a room I could use to do an exchange and were really helpful.  Also I hired a scooter to get around on - I can't do tat much walking.  They are really helpful in any way they can.  Yay, how exciting for you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
*kana*
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« Reply #2 on: January 16, 2010, 05:31:40 PM »

I am also on PD and will be taking my first vacation since starting dialysis.   We are going to DisneyWorld Jan 28th and so far everything seems to be pretty simple.  Scared to think that way, but I am determined to have a great time.  Make sure the hotel is in your name or they wont deliver supplies.  Makes sure you call your vacation team 2 weeks or more before leaving.  Have fun!
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
*kana*
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« Reply #3 on: January 24, 2010, 07:00:19 AM »

I just wanted to add that if you are with Fresenius, they have a warehouse in Orlando just incase you have any last needed stuff or run into trouble while there. 
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
karen547
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« Reply #4 on: January 24, 2010, 07:20:09 AM »

I should have made it more clear- I'm on HEMO not PD.
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glitter
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« Reply #5 on: January 24, 2010, 09:57:31 AM »

If you tire easily I would recommend renting a scooter, Disneyworld is spread out much more then Disneyland (I have been to both numerous times). Disneyland is in the middle of downtown-Disneyworld is on the edge of Orlando. I hope you get a chance to see Epcot while your here too. I just love Disney!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
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