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Author Topic: I have a Date  (Read 2550 times)
tyefly
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This will be me...... Next spring.... I earned it.
« on: January 11, 2010, 01:29:27 PM »
   I have a date to start training with Nxstage  which is next Monday.....    I am excited ,,,, nervious,,, scared,,,, and going in a new direction....  I will miss my center,  they were very good to me....... but I need to move forward to gain more freedom......   So.... here we go...   Next big accomplishment will be Self Cannulation....

   Wish me well........   and yes I will have lots of questions......   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #1 on: January 11, 2010, 01:30:16 PM »
Sounds great!  And scary too!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
HubbysPartner
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Our first New's Year's together - A new beginning
« Reply #2 on: January 11, 2010, 02:28:29 PM »
I will be thinking of you, Kathy.  It was a bit overwhelming when we first started training, but it didn't take long for things to make sense.  Just hang in there and don't be discouraged.  Take a deep breath and say, "I can do this."  You'll do fine.  Once you get used to doing your own needles it should actually be easier cuz you will be able to tell when they are going in right.  I think you will like the flexibility.   :grouphug;
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Caregiver to husband, Lou, diagnosed 2/2008
4/2009 - Fistula
10/2009 - Started NxStage training
112009 - Finished training; at home with nxstage

Our family - husband, Lou; me, Marge; sons, Marc & Keith; daughter, Liz
Be still and know that I am God. - Psalm 46:10
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: January 11, 2010, 03:43:15 PM »

You may want to read Meinuk's Nxstage training journal here http://ihatedialysis.com/forum/index.php?topic=5229.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
petey
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MEMBER BANNED
« Reply #4 on: January 11, 2010, 03:47:26 PM »
...scary at first because it's all new, there's a lot to remember, and you don't want to make any mistakes.   But, you'll make a mistake or two, and realize it's still okay.  BEST thing Marvin and I ever did (will be three years this summer on NxStage!!!).  Good luck.  Let me know if you have questions.
Petey
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willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: January 11, 2010, 05:08:41 PM »
You can do this! Take your time.

And you'll be going back into your clinic about once a month so you get to keep up with your buds there!  :2thumbsup;

Ask plenty of questions and realize that it will all come together and become routine and BORING after a while.
 :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #6 on: January 11, 2010, 08:18:54 PM »
Congrats Tyefly
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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