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Author Topic: Nephrectomy tomorrow. (12 Jan)  (Read 11166 times)
Des
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« on: January 11, 2010, 03:49:06 AM »
I will be missing for only a few days.  (don't cry Dan  :rofl;)
Please keep me in your prayers/hearts/thoughts.
My daughter will be updating Okarol.

Iam not scared , just not looking forward to it.   

Miss ya all.  :flower;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
galvo
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« Reply #1 on: January 11, 2010, 04:03:49 AM »
All the best!
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Galvo
monrein
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Might as well smile
« Reply #2 on: January 11, 2010, 05:08:17 AM »
You'll be on my mind Des.  Surgery is always a lets-just-get-this-over-with thing for me and I hope that things go smoothly today for you.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
dwcrawford
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Getting the heck out of town.
« Reply #3 on: January 11, 2010, 05:30:37 AM »
Oh Des, I can't help but to cry... and to worry.  Even though I know you'll be just fine and that your husband and kids will be there taking care of you.  One of them  should get online and keep us informed what's going on. 
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
YLGuy
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« Reply #4 on: January 11, 2010, 06:28:49 AM »
Of course you will be in our thoughts and prayers Des!   :grouphug;
Marc
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paris
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« Reply #5 on: January 11, 2010, 09:43:47 AM »
Surrounding you with lots of good thoughts, prayers and love.  I'll be looking for updates from Okarol.  We all love you very much   :grouphug;
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #6 on: January 11, 2010, 09:51:24 AM »
   Des    wishing you the best for a speedy recovery.......   we all will miss you while you away......kathy
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
cariad
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« Reply #7 on: January 11, 2010, 10:40:22 AM »
Best of luck, Des. I am thinking of you and hoping to hear positive updates soon. Thanks for taking steps to keep us informed.

 :flower;  :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Des
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« Reply #8 on: January 11, 2010, 12:14:07 PM »
thanks all. :cuddle;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kellyt
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« Reply #9 on: January 11, 2010, 12:36:47 PM »
Here's hoping for a quick recovery.  I'll be thinking about you tomorrow.   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #10 on: January 11, 2010, 01:03:07 PM »
Thinking of you
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Malibu
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« Reply #11 on: January 11, 2010, 01:35:29 PM »
I'll be thinking of you!
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: January 11, 2010, 03:34:32 PM »

 :flower; :flower; :flower; I hope all goes well and your recovery is swift and painless! Be sure they give you some good pain meds (with a stool softener chaser, of course!) Hope to hear from you soon!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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My two beautifull granddaughters

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« Reply #13 on: January 11, 2010, 05:17:38 PM »
Oh, Des,
I was gone today and just saw this. I'll have you in my thoughts.  :cuddle;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Jean
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« Reply #14 on: January 11, 2010, 06:41:26 PM »
Best wishes Des, will be thinking of you.
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One day at a time, thats all I can do.
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Going through life tied to a chair!
« Reply #15 on: January 11, 2010, 07:26:20 PM »
Des, I'll be sending you "white light" (whatever that means)  Just trying to be open minded!!!

Best of luck!          :waving;
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Chris
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« Reply #16 on: January 11, 2010, 08:02:16 PM »
Hope it went well Des and sorry rerun had the bright light in your eyes  :shy; :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #17 on: January 11, 2010, 08:25:37 PM »
Hoping for an update thinking about you Des.
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HubbysPartner
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Our first New's Year's together - A new beginning
« Reply #18 on: January 12, 2010, 04:15:57 AM »
You are in my prayers today, Des.   :pray;
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Caregiver to husband, Lou, diagnosed 2/2008
4/2009 - Fistula
10/2009 - Started NxStage training
112009 - Finished training; at home with nxstage

Our family - husband, Lou; me, Marge; sons, Marc & Keith; daughter, Liz
Be still and know that I am God. - Psalm 46:10
draven
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« Reply #19 on: January 12, 2010, 09:13:05 AM »
Will be thinking of you Des
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cloud393
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« Reply #20 on: January 12, 2010, 09:42:39 AM »
 :pray;  Best wishes for a speedy recovery.
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May you live as long as you want and never want as long as you live.
YLGuy
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« Reply #21 on: January 12, 2010, 09:57:46 PM »
Still thinking about you.  Hoping all went well and wishing for an update.
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Chris
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« Reply #22 on: January 12, 2010, 10:06:48 PM »
Hoping she has some good pain meds :2thumbsup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
del
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del and willowtreewren meet
« Reply #23 on: January 13, 2010, 06:26:47 AM »
I'll be thinking of you Des.  :flower; :flower;  All the best.  :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
dwcrawford
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Getting the heck out of town.
« Reply #24 on: January 13, 2010, 06:33:34 AM »
Des, You know from reading that horrible other thread that you are NOT in my prayers.  You are, however, as always in my heart and my thoughts.
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
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