Unhappy with drain pain

[jeannea]

I've often had a little pinching sensation when draining.  A few weeks ago I had this terrible pain with my initial drain.  I bypassed the initial drain and did the rest of the night ok.  In the morning I took a sample of my drain bag to my PD nurse because I was sure that the bad pain meany peritonitis.  She tested it and said I was fine.  She said my tube had probably moved against a nerve and the fill moved it so then the pain went away.  Well last night it happened again.  I had the terrible pain with the initial drain and then almost as bad with the next drain.  It took til the second fill to really move enough.

I am just really frustrated.  I've experienced so much pain in the last year with CMV and cdiff and I thought my pain was done.  Just needed to vent and rant. 

Did everyone see that study about a month ago that said cursing reduces pain?  Well it does help.  Good thing I sleep alone since I'm up cursing at 1AM.

Jeanne

[girliekick]

Hi-
welcome Jeannea!

Please Do a search for lou and a post titled pain in privets, I believe its called.
You can read my journey w this problem in a post called pain and pd...?

A good place to start is to take stool softener and or laxative, that may help.
And I am sure people have told you it my be positional, sometimes standing or getting on all fours helps.

If you just started then maybe a cath manipulation by the radiologist may be good for you. They are not supposed to be painful, but I find them excruciating and were unhelpful for me.

Are you on the cycler? if so ask about doing tidal.

I hate that you are having this pain and hope it can be resolved, but if not I promise you will find a way to cope and/or manipulate your dialysis so that it works well for you.

Girl

[murf]

During my training, I was advised to sit down and cross my legs whenever I got drain pain.

[rookiegirl]

When I was on PD, I always had drain pain at the end.  Because I did manual, I timed it just right before it start and close my transfer set and begin my fill.  Reason for my drain pain is that the cath suction against the wall of my peritoneum.

[-Lady Noir-]

Mike gets drain pain more often than not lately. Right throughout the night, but mostly with initial drain.
He is dry during the day & often finds it extremely uncomfortable too.

 

[KICKSTART]

If you are on the overnight machine you need to set it to Tidal. If you are doing manuals you just need to close the clamp off as soon as it starts. I did 5 years of PD and always had pain drain ! This was the only way of solving it !

[-Lady Noir-]

Excuse my ignorance, but what exactly is tidal?

[sico]

Excuse my ignorance, but what exactly is tidal?

Nik, tidal is when the cycler doesn't try to completely drain you at each drain cycle before the next fill.
As usually get the most pain at the end when it's trying to turn your guts inside out.
I have never done it, so don't know exactly.

[-Lady Noir-]

Thanks Brad 

[loopywinks]

Hello,

I think I know what you mean about the drain pain.  I just had my catheter placed almost two weeks ago and finally had it flushed today.  I was sad to feel the cramping because I worry it will always be there.  Do you think we will get used to it or maybe it will go away?

I typically feel almost nothing most of the day.   As the evening begins and I am home from work or my busy stuff, I start to feel cramping and it is hard not to be ornery. 

Can someone tell me if this is typical and I am just healing?  I am also afraid to eat much because I worry about becoming constipated (another reason to be ornery .. LOL).

Anyways.. I really hope that your drain pain starts to lessen and you feel better.

Take care and warmest regards,

Tracy (aka Loopywinks)

[girliekick]

describe what ur feeling, im a lil confused. But camping is normal as all the fluid is drained from u, and from what i have heard people get used to it relatively easy.  tell us more and we will be better able to help u.
Girl

[Hanify]

Loopy you'll still be sore from the operation.  You don't normally have any pain with PD unless you are draining.  Occasionally if I am going empty for a while it's a it crampy too - if I'm draining out for a while (say I was going out for the evening ) I would cut the drain a little bit earlier so I didn't feel uncomfortable all night.

[Red from Canada]

As Girliekick said, take stool softeners!  I take colace twice a day now and it does make a big difference to drain pain.  Even if you don't feel constipated, the bowels hold a lot more than you would think and that can be a cause.  Also tidal can help immensely.  Good luck.

[loopywinks]

Thank you for your responses..and thank you for letting me jump in on this ongoing conversation.

The cramping is just a bit sharp and probably normal.  I am just ultra sensitive and anxious

I will be sure to take plenty of stool softeners... it sounds like that is important and key to comfort 

I think you are right.. it has been less than two weeks and once I heal and get used to it, it should be fine.

I am very thankful for this site!!  THANK YOU!!!

Loopy