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Author Topic: tip for insomnia after transplant  (Read 2573 times)
mk
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« on: December 18, 2009, 11:23:55 AM »

Hi - I've found threads before from others like me who can't sleep due to the post-transplant drugs. I have tried something recommended by a naturapath that my nephrologist was comfortable for me to try and I wanted to pass on the tip in case it helps someone else. Of course, you'll want to research it for yourself and talk to your own nephrologist.
I had trouble getting to sleep - would lie there wide awake, too wired, and end up staying up until 2 or 3am. Once I got to sleep I'd be fine. Anyway he recommended and I have used it for about 6 weeks now and it's helped. Reduced about 4 nights a week of trouble to maybe one night in 2 weeks. It's Melatonin SAP. 3mg, made by NFH. I almost didn't take it since it actually says on the container, not to use if you are taking immunosuppressants. But my nephrologist said it was OK, and it would not hurt me. It's commonly used for jet lag. Anyway helped me. It's so nice to sleep better again. Makes a big difference day-to-day. Let me know if anyone has tried it.
Cheers. Mary
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kellyt
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« Reply #1 on: December 18, 2009, 02:38:22 PM »

If you're on Prednisone, that will cause insomnia.  It will get better.  When I couldn't sleep I just got up and did stuff or watched TV.  When you can't sleep it's best not to just lay there.  I never took any medication for insomnia.  I was on enough medications already.  Good Luck.

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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: December 18, 2009, 02:52:30 PM »


I don't have ESRD but I know dialysis and transplant patients often suffer from insomnia (Jenna included.) I often cannot sleep and use Benadyl and/or Melatonine. Works great for me. Good advice to run it by your doctor before adding any over-the-counter meds.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BrandyChloe
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« Reply #3 on: December 18, 2009, 08:06:27 PM »

Interesting. I'll keep it in mind! Thanks.
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jbeany
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« Reply #4 on: December 18, 2009, 08:33:47 PM »

My saving grace for those nights is a low tolerance for pain killers.  Two extra strength tylenol and I'm out in 15 minutes.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

fluffy
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Fluff!

« Reply #5 on: January 19, 2010, 01:25:50 PM »

surprisingly, i find that camomile tea can help with insomnia a little bit if you steep it for a long time
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