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Author Topic: Intrduction from Big Sis  (Read 3522 times)
Big Sis
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« on: October 25, 2006, 11:51:27 AM »
Hi 

My name is Tasha. I have a Brother with steroid resistant FSGS (Focal Segmental Glomerulosclerosis )
He has been on Dialysis for 2 months now. He is not doing well and i have very little information to give him that is not regurgitated from doctors. Thats why I am here trying to be a good big sister.
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mallory
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« Reply #1 on: October 25, 2006, 11:58:33 AM »
Hi, Tasha, Welcome to the site!  You'll find lot's of good information here for your brother, and also information for you.  Glad you're here! :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
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goofynina
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He is the love of my life......
« Reply #2 on: October 25, 2006, 12:14:13 PM »
Hello Big Sis,  and Welcome to our wonderful community and support group :)   First of all, let me start off by saying how lucky your brother is to have a Big Sister that not only loves him but cares enough to do research for him, your awesome girlfriend.  There is so much info here but if you cannot find what you are looking for, please, dont hesitate to ask and someone will be more than happy to help you.  He has only been on dialysis 2 months,  hopefully it will get easier and better with time,  dont give up, we are here for you and him also  :2thumbsup;  Good luck and keep us posted on his progress, ok,   Hope to hear more from you soon...   :grouphug;
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....and i think to myself, what a wonderful world....

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Ohio Buckeye
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« Reply #3 on: October 25, 2006, 12:17:58 PM »
Welcome Tasha
I hope you find the information you are looking for here.
You sound like a great sister!
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« Reply #4 on: October 25, 2006, 02:09:31 PM »
 :welcomesign; 
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Joe Paul
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« Reply #5 on: October 25, 2006, 02:09:58 PM »
Welcome Tasha, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Sara
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« Reply #6 on: October 25, 2006, 04:04:28 PM »
What a great sister you are.  :)  Welcome to the board.
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
Rerun
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« Reply #7 on: October 25, 2006, 05:58:36 PM »
Hey Big Sister, tell your brother that it is okay to hate dialysis.  The Doctors and social workers try and play it up and that is very frustrating when inside you are hating it and they make you feel like something is WRONG with you for thinking that way.  Don't let anyone deny his feelings.  Dialysis SUCKS but it keeps us alive.  Say it like it is, and maybe he will feel better about how he is feeling.

Take a look at the options for dialysis.  There are a few.  Please read some of the posts here.  It will help you and him.

 :welcomesign;
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vandie
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« Reply #8 on: October 25, 2006, 06:05:19 PM »
 :welcomesign;
You have come to the right place for answers and support for your brother and for yourself.
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
Jill D.
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« Reply #9 on: October 25, 2006, 06:14:51 PM »
Hi Tasha,

I have FSGS also (diagnosed in 1990).  This is a great place to get help and advice on dialysis and all things kidney. If I can be of help with info on FSGS please let me know. You might want to check out www.nephcure.org

Thanks for being a good big sister. I have one, too - she is giving me a kidney in December! :cuddle;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Epoman
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« Reply #10 on: October 25, 2006, 06:40:29 PM »
Quote from: Big Sis on October 25, 2006, 11:51:27 AM
Hi 

My name is Tasha. I have a Brother with steroid resistant FSGS (Focal Segmental Glomerulosclerosis )
He has been on Dialysis for 2 months now. He is not doing well and i have very little information to give him that is not regurgitated from doctors. Thats why I am here trying to be a good big sister.



Wow, you are a GREAT sister, want to be my big sister? I just lost my brother.  :'(

But before I forget, WELCOME to the site.

- Epoman
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Zach
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"Still crazy after all these years."
« Reply #11 on: October 25, 2006, 09:07:11 PM »
Hey Tasha, welcome to the community!!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
angieskidney
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« Reply #12 on: October 26, 2006, 04:11:38 AM »
 :welcomesign;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
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« Reply #13 on: October 26, 2006, 10:55:02 PM »
Welcome to our community!  My own brother died after 10 years on dialysis.  I continually regret that I never asked him exactly what he was going through.  He used to share a bit with me but now I realise that there was a lot that I didn't even understand.  I moved to another island his second year of dialysis.  He died in 2004 and I was diagnosed with ESRD in 2005.  So I commend you for your involvement in your brother's challenge. This is the place to get answers.  Keep reading, keep asking.
Welcome again.  :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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