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Author Topic: Marvin  (Read 29207 times)
okarol
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« Reply #50 on: November 22, 2009, 03:06:08 PM »

How cute that Marvin thinks of it as a date.  :)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
billybags
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« Reply #51 on: November 24, 2009, 07:37:18 AM »
That sounded like a wonderful date to me. keep well both of you.
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Jean
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« Reply #52 on: November 26, 2009, 01:30:46 AM »
Petey, you two are just amazing. I am so glad he is improving.
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One day at a time, thats all I can do.
pelagia
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« Reply #53 on: November 30, 2009, 07:45:32 PM »
You two are so sweet together.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
HubbysPartner
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Our first New's Year's together - A new beginning
« Reply #54 on: December 09, 2009, 10:29:17 AM »
Petey, you are amazing!   I know Marvin is going to be 100% because of all your great care!   :cheer:  Try to get some "you" time so you can recharge.  You are in my thoughts and prayers.   :grouphug;
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Caregiver to husband, Lou, diagnosed 2/2008
4/2009 - Fistula
10/2009 - Started NxStage training
112009 - Finished training; at home with nxstage

Our family - husband, Lou; me, Marge; sons, Marc & Keith; daughter, Liz
Be still and know that I am God. - Psalm 46:10
harley08
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« Reply #55 on: December 10, 2009, 10:31:12 AM »
I think that in alot of cases the person will recover better in and around places they are happier at and with the one's they know and love.... it certainly proved correct for you and Marvin. Wonderful news that he is doing so much better and improving daily. You are a saint :grouphug;
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dwcrawford
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« Reply #56 on: December 10, 2009, 10:52:46 AM »
Ok people, Petey is a strong, wise and fabulous person  BUT  SAINT?   Come on now!   Hehe
Not exactly a term I would apply.  Do you know how Marsha came to be called Petey in the first place?

Love you, Petey.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
petey
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« Reply #57 on: December 11, 2009, 02:57:37 AM »
....oh, no you don't, Dan!  You wicked, wicked boy!!! And if the others want to call me a saint, you shut your trap, Danny Boy!!!  lol lol lol  :rofl;  :rofl;  :rofl;

But, seriously, Dan's right -- I'm not a saint.  I'm just doing what I have to do.  I'm just doing what all the other caregivers here would do.  I'm just taking my vows of "...for better, for worse -- through good times and bad -- through sickness and health..." very seriously.  I'm just doing for Marvin what I would want him to do for me.  I'm just your ordinary, average, loving wife.  (But I will agree that Dan's right about my being strong, wise, and fabulous  :2thumbsup; )

Marvin gets better with each day.  He can walk around the house without his cane or his walker.  His speech is perfect, and his left arm is getting stronger and stronger.  We've been out almost every day on some kind of excursion.  He's back to about 90% of what he was before the stroke.  His spirits are good, and he still laughs a lot.  Today, we're headed back to Duke for a check-up; I'm sure the docs there will be shocked at how well Marvin is doing (they haven't seen him since we left the hospital on Nov. 13).

Thanks to all my friends here who sent me messages and cards to say "Hang in there!"  and a BIG, BIG, HUGE  "I love you" to dwcrawford!!!!!!!!!  If I had met you before I met Marvin, you would have been my pick, Dan!!! (Just not sure YOU would have picked ME back  :rofl;  :rofl;  :rofl; ).
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petey
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« Reply #58 on: December 11, 2009, 03:00:47 AM »
...and I love your new avatar picture, Dan!  It's so .... YOU !!!  muuuuuuhaha!
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willowtreewren
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« Reply #59 on: December 11, 2009, 04:47:31 AM »
Oh, Petey,

You are going to AMAZE them at Duke!   :cheer:

I would love to see their faces when Marvin WALKS in! Yeah!  :clap; :clap; :clap;

You are wonderful. Many hugs and  :bestwishes;

 :grouphug;


Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Darthvadar
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« Reply #60 on: December 11, 2009, 04:49:24 AM »
Great news, Marsha....

Fantastic to hear that Marvin's doing so well....

Love...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #61 on: December 11, 2009, 10:26:06 AM »
 :clap;  Glad Marvin is improving.  I know you don't know me but I fel like I know you having rad some of your posts.    Rob
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
kellyt
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« Reply #62 on: December 11, 2009, 01:18:07 PM »
 :2thumbsup; :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
petey
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« Reply #63 on: December 12, 2009, 03:50:45 AM »
Good check-up with the Infectious Disease doctors yesterday at Duke.  They took Marvin off the IV antibiotics (Daptomycin) that he had been getting for the last almost-five weeks.  Took out his PICC line.  Switched to a less-strong antibiotic (Zyvox) -- oral -- for two additional weeks "just in case."  Doc said we made the right choice to do everything at home (IV antibiotic, physical therapy, etc.) -- like we hadn't already figured that one out.  Doc said Marvin was a "walking miracle" and hugged us both.  They drew a couple of gallons of blood for study and cultures and made us another follow-up in two weeks.  (Through this whole thing, Marvin is the "guinea pig" for a research study at Duke on how to handle home hemo patients who need IV antibiotics and choose to do it at home as opposed to having to go back in-center temporarily.  Our hope is that it will help someone else like him down the road who needs the same treatment.)

Marvin managed the three-hours-up-and-three-hours-back trip just fine!!  He wanted to carry his walker and his cane because he wasn't sure which he would need.  The walker never made it out of the trunk!!!!! He used his cane just for balance and "just in case."  We stopped for supper, and when we finally got home, I was pooped -- but Marvin still had some energy!  I went to bed early, and he stayed up until about 11.  The man is amazing!!!!
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Darthvadar
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« Reply #64 on: December 12, 2009, 03:59:10 AM »
Great news, Marsha....

Great to have Marvin doing so well at Christmas... What a great gift!...

I'm crossing my fingers that Mum will be well this Christmas... Don't even want to consider the possibility of a repeat performance of last year's!....

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Chris
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« Reply #65 on: December 12, 2009, 03:46:17 PM »
Glad the doctor somewhat admitted he was wrong. :2thumbsup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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« Reply #66 on: December 12, 2009, 04:57:23 PM »
I am posting from my iPod but wanted to let you all know that I am THRILLED.
 :2thumbsup;

Give that man a big happy hug.
 :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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« Reply #67 on: December 12, 2009, 05:18:11 PM »
 :2thumbsup; Yay Marvin - good news!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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« Reply #68 on: December 12, 2009, 06:07:00 PM »
 :yahoo;  Go Marvin!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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« Reply #69 on: December 13, 2009, 07:08:17 AM »
Great news Marvin. :thumbup;
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paris
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« Reply #70 on: December 13, 2009, 08:20:57 AM »
Good for Marvin and his strong spirit   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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del and willowtreewren meet
« Reply #71 on: December 13, 2009, 11:23:34 AM »
 :yahoo; Good for Marvin!!!  Any treatment that can be done at home is better done at home. Hospitals are a nesting place for viruses and everything else!!!  Plus people usually do better in their own environment.
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Don't take your organs to heaven.  Heaven knows we need them here.
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« Reply #72 on: December 13, 2009, 04:52:21 PM »
...went to church this morning, came home and "piddled" around the house, and then went out for supper with friends.  Another good day.  I see Marvin improving daily.  He has not used his cane AT ALL today!! Yippee!
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willowtreewren
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« Reply #73 on: December 13, 2009, 06:13:31 PM »
Whoo Hee!  :2thumbsup;

In no time that man will be running!  :clap;

The two of you are wonder workers.  :yahoo;

Wonderful, wonderful!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
petey
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« Reply #74 on: December 23, 2009, 03:26:35 PM »
Another check-up today at Duke.  The doctor said the last three sets of cultures showed the MRSA was gone.  All lab work was perfect!!  She said Marvin looked GREAT -- inside and out!!  She discontinued all antibiotics and released him.  We don't have to go back unless we need her again!! :yahoo;  :yahoo;  Then she looked Marvin in the eye and said, "You beat it -- the infection, the stroke, everything -- and you did it in record time.  I wasn't sure you'd beat it at all, but you've done it in six weeks.  You are a miracle!"  Made Marvin feel so good (and I was feeling pretty good about it, too).  On the way home, we agreed that this was another hurdle, another valley, another crisis we had jumped and survived.  We know sometime down the road there will be another, and another, and another -- but for now, we've survived this one.  And, right now, that's pretty damn good!
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