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Author Topic: Marvin  (Read 29213 times)
Darthvadar
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« Reply #25 on: November 16, 2009, 05:30:55 AM »
Good on you, Petey!....

You're the dog's danglies!!!!!.... ;D

You're SO right!... Hanging around the hosp would drive a saint to sin... It's not a real enviornment.. We do SO much better in our own homes... Watching our own TV, eating our own fod, sleeping in our own bed, etc...

I have given the same answer as you when a doc scared Mum... Pluse a few choice words added!... People like that are bullies, pure and simple!... Just because he wasn't getting his own way, he was throwing the toys out of the pram!...

The very best of luck to you and Marvin... Keep fighting the good fight!...

Keep us unformed, and keep the flag flying!...

God bless...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
billybags
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« Reply #26 on: November 16, 2009, 05:42:32 AM »
Petey, You are to be applauded.  :bandance;   :bandance;  Bravo for sticking up to the Doctors. :bandance;   :bandance;    Bravo for having the balls to say "enough is enough " :bandance;   :bandance;   It sounds like Marvin is doing ok, I am so pleased. Dont forget to get a little you time other wise you will fizzel out and that's no good is it.



Edited: Fixed smiley error - paris, Moderator
« Last Edit: November 16, 2009, 07:23:53 AM by paris » Logged
willowtreewren
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My two beautifull granddaughters

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« Reply #27 on: November 16, 2009, 06:13:09 AM »
Petey,
Once again you demonstrate why you are an INSPIRATION to all of us! Especially me!

I love you for what you do and how much you accomplish and for what an outspoken, strong advocate you are for the man you love!

I know your decision to get the hell out of the hospital was the right one! There is NO WAY that Marvin could improve on a 3x/week tx. No way!

Keep up the good work. Get some rest when you can. And know tat I'm sending so many hugs.

 :grouphug; :grouphug; :grouphug;

Aleta
PS. My support over the past month was so little. I wish I could have done more.  :waving;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cariad
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« Reply #28 on: November 16, 2009, 12:29:40 PM »
Rock on, petey!   :2thumbsup;

I don't think a team of professional speech writers could have written a more intelligent, brave and effective response than yours to that doctor. Hopefully that guy will think twice before bullying the next caregiver.

Cheers for you and Marvin!

 :cheer:  :cheer:  :cheer:
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #29 on: November 16, 2009, 01:21:26 PM »
Go the mule!!!
Well done Petey - I always say just being in a hospital makes you sicker, so I think you've done the right thing.  And as you say, you know his needs better than a doc. 
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Sunny
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Sunny
« Reply #30 on: November 16, 2009, 02:32:52 PM »
Marvin is a lucky man to have you Petey.
With a lot of hard work, hopefully Marvin will regain much of his strength. It may take a while, but with the two of you working together he will do fantastic. I will be thinking of you both and wishing Marvin a quick recovery.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Jean
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« Reply #31 on: November 16, 2009, 11:57:04 PM »
Petey, you are one AWESOME woman. Good, good good for you for letting that butthole Dr. have a piece of your mind. Well Done!!!! Good luck to both of you.
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One day at a time, thats all I can do.
kitkatz
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« Reply #32 on: November 17, 2009, 09:57:18 PM »
You and Marvin have your work cut out for you in his recovery. Good luck and God speed!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #33 on: November 17, 2009, 11:26:07 PM »
Sorry petey I haven't kept up on FB or here on Marvin. That doc is a true idiot and glad he is not one of my doc's, allthough he sort of sounds like one who goes along with my transplant doc's bedside manners and thinking.

Then when you said "They also said they had never had someone do bloodwork at home and send it to them.", wth, don't they have experience with home health nurses who do the same thing? I have had home health nurses from my transplant hospital and other agencies take blood and then take it in to the local hospital along wiith an order and have it tested with no problem. "IDIOTS, IDIOTS I say!" (forgot what movie that's from)

2 months in the hospital for PT! Holly Cow, look at what jbeany has gone thru in less time and we can do better on our own.

Keep improving Marvin!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Des
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« Reply #34 on: November 19, 2009, 05:35:09 AM »
Yeah!

Good for you both!!!! I think with more people like you a lot of "it has always been like that" will dissapear of the earth.... it just irks me when that is the reason.

Keep it up!!!! Hope he gets better and better and betterer (like my kids use to say) 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Darthvadar
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« Reply #35 on: November 19, 2009, 05:55:03 AM »
Hi Petey...

Any news???...

Love to you and Marvin...

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
dwcrawford
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Getting the heck out of town.
« Reply #36 on: November 19, 2009, 06:00:37 AM »
Hi Petey... remember me?  I hope everything is getting just a little better everyday.  Stay strong.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
petey
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« Reply #37 on: November 21, 2009, 11:36:28 AM »
Each day brings a little more improvement for Marvin.  I actually worked Thursday and Friday (got his nephew and his sister to "babysit" him so I could go to school).  His speech is perfectly normal, and the "droopy" that was at first present in his mouth and left eye is completely gone.  Left arm is probably about 80-85 % back to normal and shows more strength and more control every day.  Left leg is much, much better -- walking, getting up out of the chair/bed, etc.    He could walk without the walker, but we're still using it "just in case."  This morning, Marvin wanted to get in the shower; the "bird baths," he said, just weren't getting it.  With help from me, he was able to step over into the bath tub and stand while he showered.  First "real" shower in two weeks, and he said it felt wonderful!  (Don't think I've been letting him go around dirty -- his baths for the last two weeks involved a pan like you get from the hospital, lots of washcloths, and my doing all the "bathing.")  After his shower this morning, he even stood at the sink to shave -- he doesn't like the way I've been shaving him.  I expect that in time (how much time, I don't know), he'll make a full recovery.

I always thought that being a caregiver for a dialysis patient was tough -- but it's nothing like being a caregiver for a stroke patient.  WHEW !!  This is a job!
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willowtreewren
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« Reply #38 on: November 21, 2009, 11:45:28 AM »
Petey, you are a wonder. And sometimes I'm sure you wonder where you get the strength!

This is great to hear. Like you, I'm sure that Marvin will recover 100% because you are there helping him each step of the way.

Just think how much better he is because you came home.

I hope you can take a little breather this weekend. You need it.

Hugs to both of you.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #39 on: November 21, 2009, 03:33:10 PM »
Sounds great Petey.  With that kind of improvement already, I'm sure he'll be back to his usual self soon.  Hmmm - you might like him quieter!!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
monrein
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Might as well smile
« Reply #40 on: November 21, 2009, 03:42:31 PM »
Glad to hear that things are improving.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Mizar
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« Reply #41 on: November 21, 2009, 03:46:53 PM »
Your Story, reminded, Me of what Happened, when My Husband, was first Hospitalized, with Complete Renal Failure. After being in the Hospital for Five Weeks, ( He was now, sitting in a Chair every Day, watching TV and going Crazy ) a Doctor, pulled me into the Hall and said, " We would like to Move Him to another Floor and do " Diet Therapy " on Him and He would be there for another Month!
I made a Split Second Decision and told them " No, that would Kill Him "  I know My Husband, they don't.  Three times in the Last Three Years, for different Conditions, I have had Doctors, call Me at Home, late at Night and say " We need a DNR Decision, from You, right now " It's Difficult, being a Patient Advocate, Especially, when You are doing it Alone. I Respect Doctors, so Much, but they Read Charts, they don't Live with the Person. You know what Your Husband needs and in what Environment, He will Thrive best.
Prayers to You and Marvin Tonight.
We are still doing good here!  Hold Your Ground, on Decisions, You think are right!
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Chris
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« Reply #42 on: November 21, 2009, 07:43:14 PM »
Great News Petey, I hope you see that dumb :sir ken; doc and show how much progress YOU have done WITHOUT him! :2thumbsup;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Zach
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"Still crazy after all these years."
« Reply #43 on: November 21, 2009, 09:39:40 PM »
 :2thumbsup;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
pelagia
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« Reply #44 on: November 22, 2009, 06:12:43 AM »
 :boxing; keep up the good work!  :2thumbsup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #45 on: November 22, 2009, 12:05:07 PM »
Glad Marvin's progress continues to move forward   :2thumbsup; 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
dwcrawford
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Getting the heck out of town.
« Reply #46 on: November 22, 2009, 12:09:39 PM »
Wonderful news, Marsha.  Here's hoping every else is better too.
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Darthvadar
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« Reply #47 on: November 22, 2009, 12:14:07 PM »
Petey...

You're the best.... Marvin's lucky to have yo... There again, so are we!...

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
petey
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« Reply #48 on: November 22, 2009, 02:04:58 PM »
Since we came home from the hospital on Nov. 13, Marvin has only been out of the house once -- to go to his GP's office.  Today was different.  After his shower (which tired both of us out), we rested a few minutes, and then we went OUT.  We got something to eat (drive-through at Kentucky Fried Chicken for him, but I don't like chicken all that much, so a Sonic burger for me) and had a "picnic" in the car.  Then, we rode around the country side, looked, and talked.  I stopped at Belk's to get a few things, and Marvin stayed in the car.  We rode around some more.  I stopped at the grocery store (Marvin stayed in the car and text messaged me the whole time I was in the store..."Get some grapes,"  "Don't forget a loaf of bread," etc.).  Then we rode around some more.  We got back home after about 2 hours and got Marvin back in the house.  Marvin said, "That's probably the worst date we ever went on," and I said, "No, it was probably the BEST one!"

Now, it's time to put him on the machine.  Good day today.

Quote from: dwcrawford on November 22, 2009, 12:09:39 PM
Wonderful news, Marsha.  Here's hoping every else is better too.

Yes, Dan, most of my life is better now.  I'll have to catch you up on everything later.
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kristina
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« Reply #49 on: November 22, 2009, 02:32:14 PM »

Great news, Marsha!
I am glad for you both,
best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
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