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Author Topic: If there is a god  (Read 5129 times)
KICKSTART
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In da House.

« on: October 28, 2009, 12:17:55 PM »

Please let him be with me tomorrow.  Im sat here scared and alone and going out of my mind. Monday night i got a bit of stomach ache , so mentioned it at dialysis yesterday. To cut along story short they did a pd exchange on me and ran the sample through urgent. My pd cath is still in. It came back ive got a massive infection but they dont know what yet. They gave me emergency IV antibiotics and gave me tablets to bring home. Then today i had to go to the other hospital (the crap one) to see the doctor. I understood my tube had to come out and so arranged to get my mum here to sit with the dogs for a while , because i was told you went in to have it removed am and got home pm. Anyway this urgent appt , had to wait as when i got to hospital the doctor was on his lunch break ! So after waiting for an hour i finally saw him and he has terrified me. His words were 'tube out or its stairway to heaven ', im so upset , im so scared, im so lonely. You all know me ,so my first priority is my dogs  so i ve got my mum looking after them , i just dont care about me anymore , i dont think i can take anymore , but i cant leave my babies , i feel like im in hell. They are going to operate on me tomorrow under a general and have to get all the infection out. He wont say what my chances are because they dont know what infection it is. At best he says im going to be in a week and at worst ...well. Please pray for me , i wanted to make this post , i just hope its not my last.
Thankyou to everyone whose been there for me , i love you all. a very frightened KS xxx
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
okarol
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« Reply #1 on: October 28, 2009, 12:21:55 PM »


KS - we are here for you and I hope all goes well. I am sorry about this, it sounds very scary but hopefully they'll take good care of you.  :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paul.karen
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« Reply #2 on: October 28, 2009, 12:25:13 PM »

Im sorry but so many of your doctors seem so careless and heartless.  I mean really take it out or die??
I ques the good news is you know what is causing you pain and they are going to fix it.

I will pray for you to get well fast.
And dont worry you will be here to take care of your pups for a LONG long time KS.
It is the sad doctors that put so much fair into you for no good reason.  No wonder your a bag of nerves.  No fault of yours but the fault of your doctors IMO.  What BAD bedside manners this doctor has.

See you very soon.
P&K
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Curiosity killed the cat
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Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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paris
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« Reply #3 on: October 28, 2009, 12:28:50 PM »

Surrounding you with so many prayers and good thoughts.       :grouphug;       So very sorry you are going through so much.  It is scary.  I wish your doctors had more compassion.   We love you and will be waiting for your next post.   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
billybags
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« Reply #4 on: October 28, 2009, 12:35:30 PM »

Ok, It sounds like the doctor was frightening you and that is not good. Yes, you need to have your tube out, they will give your peritoneal a good rinse to clean it out. When Alan had e-coli they had to try 3 different antibiotics to get one that worked. it did take more than a week. Yes, you will be ill, but stop thinking about seeing your God yet. He is not frigging ready for YOU yet. I think you would give him a bloody headache (only joking KS) Do they know what has caused the peritonitis yet? Its nice your mum is there with you, at least you can relax a little and not worry to much about the dogs. KS please stay positive, we are all thinking about you, you will get through this.Hugs and kisses. Shit you may have to give up smoking for a week.
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Darthvadar
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« Reply #5 on: October 28, 2009, 12:45:58 PM »

KS....

I wish you the VERY best of luck with this!.... That doctor was a thoughtless £$%&!!!....

Your babies are in good hands with your mum... You just look after YOURSELF now!... It WON'T be your last post... You're made of stronger stuff than that, as we've all been witness to recently!...

Take care my friend.... Keep the faith.... Know that I and everyone on the site are here, thinking of you....

May God bless and protect you!.....

Darth...
« Last Edit: October 28, 2009, 01:18:44 PM by Darthvadar » Logged

Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
lizabee
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« Reply #6 on: October 28, 2009, 12:59:11 PM »

What an a$$ that Dr. is! I honestly don't think they really think before they speak.  Many positive thoughts and prayers coming your way. I will add you to the pray list at my church this Sunday, their prayers are very strong!  Best of luck to you!
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Restorer
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« Reply #7 on: October 28, 2009, 02:03:43 PM »

From all I've seen you write about your doctors, they all seem to be so melodramatic. If I were a doctor, I would never tell someone "tube out or die." I might say something like, "get this treated or risk dying" but only if they were refusing to get treated at all. I had peritonitis that wasn't treated properly, and came back three times after the first time, but no one ever told me I was in big trouble or even needed to have my cath out.

Since you're no longer on PD, maybe it's best to have your catheter taken out. I hope the antibiotics they prescribe work for you. I don't know how they've concluded it's a "massive infection" if they don't even know what bug it is.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
KICKSTART
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In da House.

« Reply #8 on: October 28, 2009, 02:49:22 PM »

Sat here , bags packed , off at 5am ,the cruel sods have rung me up and said they want me to do 4 hours of dialysis before i go down to theatre. They are not saying its Peritonitis , just i have a massive white blood count and till they open me up they dont know whats going on in there. Maybe the doctor did terrify me to make sure i wouldnt back out. I wouldnt have done anyway , i was quite prepared to have my tube out. The only problem i have is my mum can only stay till monday , because then my brother goes in for an operation so she needs to get home for her dogs. I think part of my sadness is , if they keep me in for a while i will have no visitors , silly isnt it ? My head is all over the place tonight , even though ive been given this news im sat here in no pain, no vomiting, not even a temprature , it doesnt add up. Ive been busy all night preparing for tomorrow. Surely they would know if it was peritonitis ? Or do they just say to everyone you have massive infection ? It doesnt add up , but my god im a scared. Hoping im back soon. KS x
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Maker
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« Reply #9 on: October 28, 2009, 02:51:54 PM »

KS, I'm so sorry this is happening to you  :'(  I just said a prayer for you that God will guide the Dr.s who are treating you and that you will have a total healing and be back with your precious dogs very very soon!  I understand your love for your dogs, I feel the same about my kitties.  We will all be anxiously waiting to hear good news from you!!
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- Lori

33 years old
Diagnosed February 2007
Started In-Center Hemo October 2009
Trying to qualify for a living donor transplant

"I can do all things through Christ who strengthens me"  Philippians 4:13
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« Reply #10 on: October 28, 2009, 03:06:11 PM »

KS, Our prayers are with you.  Remember you really are not alone.  Anyone of us would watch your puppies(your babies) unfortunately we are so seperated by many miles.  Think of the many visiitors you will have,albeit in spirit.  Let us all know when you are up and running again.  GET WELL SOON!!
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RightSide
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« Reply #11 on: October 28, 2009, 03:11:58 PM »

I wish you all the very best.

You'll be in my thoughts.  Please keep us posted.

I know from your other posts that you're a fighter.  You don't take things lying down.  And studies have shown that it's patients like you who have the best treatment outcomes.  I'm confident that will be the case with you again this time!

BTW:  This is why I couldn't choose PD.  I am allergic to two big classes of antibiotics--the penicillins and the cephalosporins, as well as a possible allergy to Clindamycin.  If I get a life-threatening infection, there aren't a lot of antibiotics left they could try on me.  So I want to live free of any and all catheters.
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Slywalker
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« Reply #12 on: October 28, 2009, 05:41:25 PM »

KS - good luck.   :grouphug;   I'm sure everything will be fine.   I really can't believe what a jerk your doctor seems to be.

We're all sending you postive energy!!!!!!

 :grouphug;
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looneytunes
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« Reply #13 on: October 28, 2009, 07:16:06 PM »

KS, it's ok to be scared.  Just know that we are all praying for you. Though we can't be with you physically, we are in spirit.   I'm looking forward to seeing a post from you soon saying that all is well.   :grouphug;
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« Reply #14 on: October 28, 2009, 07:40:26 PM »

KS I'll be praying for you, but you are right.... not feeling sick and no temp...  that doesn't seem like a massive infection to me.  Don't panic.  Just get the tube out.           

                                                                 :pray;
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glitter
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« Reply #15 on: October 28, 2009, 07:52:08 PM »

I will be thinking of you- please get well and come back to us.  :grouphug; :grouphug; :grouphug; :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
calypso
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« Reply #16 on: October 28, 2009, 08:26:31 PM »

I hope everything turns out ok Kickstart. One thing I don't understand is how you got peritonitis if you weren't using the catheter or doing any exchanges? You said you were off PD right?
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"The very powerful and the very stupid have one thing in common. Instead of altering their views to fit the facts, they alter the facts to fit their views ... which can be very uncomfortable if you happen to be one of the facts that needs altering.
-Doctor Who, "Face of Evil"

"The trouble with the world is not that people know too little, but that they know so many things that ain't so." - Mark Twain

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us and fam easter 2013

« Reply #17 on: October 28, 2009, 09:09:33 PM »

Hi kickstart, i just this second got to be a member here (as a caregiver actually) and did so because of just today reading your post..  I just had to come on and wish you well tomorrow, and send prayers of peace and healing and prayers for your drs tomorrow to work with Gods guidence.  Sending hugs of comfort too, and wish i was close to care for your dogs.. Even hubby agreed with that one!!  Please keep in touch.. We'll be waiting to hear from you.  Gods blessings with you, boswife, (who will be introducing myself probably tomorrow when i have some energy)..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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« Reply #18 on: October 29, 2009, 03:55:46 AM »

Oh KS, I'm thinking of you.  If I knew where in the UK you were I would do my utmost to visit you/find some way of letting you know I'm thinking of you.  I hope that everything goes as smoothly as it possibly can and that the doctors are a tad more compassionate with you. 

*waggles angry fingers at doctor for being such an idiot*

*hugs* x
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- wife of kidney recepient (10/2011) -
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Everything was beautiful, and nothing hurt.
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« Reply #19 on: October 29, 2009, 05:58:16 AM »

Wishing you the very best!
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
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Life's a bitch and then you go on dialysis!

« Reply #20 on: October 29, 2009, 06:11:03 AM »

Kickstart I'm thinking of you and hope you make a full recovery. :cuddle;
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Ken
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« Reply #21 on: October 29, 2009, 06:33:36 PM »

Are any of the British people on IHD anywhere near Kickstart?  Is there anyone who could give a hand with the dogs and/or visit Kickstart?
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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« Reply #22 on: October 29, 2009, 06:48:38 PM »

I hope everything goes okay and you get better quickly.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #23 on: October 29, 2009, 07:18:58 PM »

Keeping you in my thoughts! :grouphug;
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« Reply #24 on: October 29, 2009, 07:52:02 PM »

Are any of the British people on IHD anywhere near Kickstart?  Is there anyone who could give a hand with the dogs and/or visit Kickstart?

Have you any idea whereabouts in the UK she lives? Unlike yours, her profile locates her only as "UK".
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
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