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Author Topic: Want to share your experience with ESRD? My questionaire for my book.  (Read 3374 times)
Lillupie
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wedding 12-10-11

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« on: October 27, 2009, 04:45:46 PM »

For many of my posts, I have mentioned that i am writing a book in hopes of reaching out to other people with Kidney Disease so that they are not alone. I am hoping that others who get exposed to my writing, can read others' experiences with kidney disease, and can relate, as well as those can get somewhat of an understanding of what it is like to go through this disease/lifestyle. I have been working on this project since early this year. I am determined that our voices will be heard.
 I just have a few rules: YOu Dont have to answer every single question. I know there are a lot of questions, but onmly answer those that you feel stong or compelled to answer,
And please use a false name!
Read the first page first.
I left an attachment. If you want me to e-mail you, please just pm me.

Opps. I am sorry. You can send it to me through my e-mail, Lillupie@earthlink.net

 :bestwishes;    :cheer:     :flower;
Lisa
« Last Edit: October 28, 2009, 12:34:47 PM by Lillupie » Logged

Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
kitkatz
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« Reply #1 on: October 27, 2009, 05:13:45 PM »

I have taken your questionnaire and am working on it.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
billybags
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« Reply #2 on: October 28, 2009, 12:53:05 AM »

Down loaded your questioneer, how do I send it back to you? Or where do I send it too?
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Poppylicious
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WWW
« Reply #3 on: October 28, 2009, 08:30:17 AM »

I'm going to print this off for my Blokey ... I don't know if you'll get it back, but a couple of the questions might help him get everything down about how he's feeling.  I'm sure he's keeping a lot of feelings and emotions hidden, and to be able to write about his experiences so far might help him thrash everything out in his head.  Hope that's ok!   
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
peleroja
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I have 16 hats, all the same style!

« Reply #4 on: October 28, 2009, 09:30:00 AM »

Ok, I'm done, where do I send it?
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Goofy
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« Reply #5 on: October 28, 2009, 11:33:40 AM »

How do you access the attachment?
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lizabee
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« Reply #6 on: October 28, 2009, 01:06:20 PM »

Saved it and am working on it, will email you.
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Stoday
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« Reply #7 on: October 28, 2009, 06:36:59 PM »

How do you access the attachment?

Click to the right of the green paperclip, just under her signature
« Last Edit: October 28, 2009, 06:38:26 PM by Stoday » Logged

Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
RightSide
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« Reply #8 on: October 29, 2009, 05:35:34 PM »

I emailed you my responses.

You should have gotten them by now.
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Lillupie
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wedding 12-10-11

WWW
« Reply #9 on: October 30, 2009, 10:01:34 PM »

Thank you. Are you on other websites that i am on as well?
Lisa
 
I have taken your questionnaire and am working on it.
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
kitkatz
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Posts: 17042


« Reply #10 on: October 31, 2009, 08:32:58 PM »

I am PMing my answers to you.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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