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Author Topic: Prayers for my sister  (Read 12032 times)
Jill D.
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« on: October 24, 2009, 09:13:41 AM »
My sister, who so selflessly donated a kidney to me, recently found out that she has melanoma in her eye. It is wrapped 3/4 of the way around her optic nerve, so she will be having surgery next month at the University of Michigan to remove her eye. They are 90% sure that the cancer is contained but won't be sure until they do the surgery. Apparently when this type of cancer spreads it goes to the lungs and liver, and praise God both are cancer free and healthy.
Please keep her in your prayers - her name is Terri and her surgery is on November 20.
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
okarol
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« Reply #1 on: October 24, 2009, 09:54:04 AM »
 :pray; Prayers being sent Jill. I am so sorry to hear this. She is an amazing woman and I pray she gets through this ok. Love and hugs for you and your family.  :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!
« Reply #2 on: October 24, 2009, 11:31:53 AM »
Will keep Terri in my prayers. :pray; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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paris
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« Reply #3 on: October 24, 2009, 11:52:11 AM »
Jill, I am sorry to hear about Terri.  She will be in my prayers daily. She is an amazing, strong woman. Just like you are.  Please let her know that people she will never meet are praying for her.   :cuddle;   Love to you  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sunny
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Sunny
« Reply #4 on: October 24, 2009, 01:03:37 PM »
I'm so sorry to hear about this. I hope they caught the cancer in time to prevent any further complications. She is in my prayers.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
kitkatz
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« Reply #5 on: October 24, 2009, 07:25:41 PM »
I hope your sister is well in spite of the challenges.
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Mimi
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For any who do not like me I use - prayer.
« Reply #6 on: October 25, 2009, 12:16:18 AM »
Awwww Jill I hate to hear this.  I have had so much trouble with my eyes (glaucoma amd macular degeneration) that I know what a panic it feels like.  I will keep your sister in my prayers for a good
outcome for the surgery.
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it is putting out the lamp because the dawn has come.
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« Reply #7 on: October 25, 2009, 05:57:36 AM »
So sorry to hear of your sister's present challenge, after such a selfless action for your benefit.  My caring thoughts and prayers are with her (and your family).  Please let her know that there is an entire international community rooting for her. :grouphug; and wishing her well.
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I LOVE  my IHD family! :grouphug;
cloud393
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« Reply #8 on: October 25, 2009, 04:55:27 PM »
You & your sister are both in my prayers.  I'm so sorry about all the problems.  Wishing your family well.
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May you live as long as you want and never want as long as you live.
Jill D.
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« Reply #9 on: October 25, 2009, 08:35:54 PM »
Thank you so much - I know I can always count on my IHD friends, and it is comforting to know that prayers are being said for her all around the world!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Rerun
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Going through life tied to a chair!
« Reply #10 on: October 25, 2009, 08:41:53 PM »
Jill I have a friend with Melanoma on her foot.  It is bad stuff,  so your sister is in my prayers.  I hope and pray it is contained. 

Keep us posted.                :pray;
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Darthvadar
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« Reply #11 on: November 13, 2009, 06:34:22 AM »
Thinking of you and Terri...

Is there any news???...

God bless..

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
pelagia
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« Reply #12 on: November 13, 2009, 05:25:36 PM »
I'll be keeping your sister in my thoughts and prayers.   :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Jill D.
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« Reply #13 on: November 13, 2009, 08:20:40 PM »
My sister's surgery is on November 20. She just wants to get this behind her...
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Chris
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Posts: 9219


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« Reply #14 on: November 13, 2009, 10:36:14 PM »
Sorry to hear Jill. It will take sometime getting use to for her. Speaking from my experience of being blind on one side, she maybe easily startled when coming up on her blind side and then into her visual field. Her hearing on that side of blindness may also become more acute to sound over time. It will be scarey at first land takes time to adjust.

Hope she does alright and the cancer has not spread.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #15 on: November 14, 2009, 12:22:42 AM »
 :pray; Love and prayers for your sister and family.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #16 on: November 14, 2009, 11:07:47 PM »
Thinking of you and your family.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
monrein
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Might as well smile
« Reply #17 on: November 15, 2009, 04:42:19 AM »
Thinking of you and Terri and hoping all goes well on the 20th.  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Jill D.
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« Reply #18 on: November 22, 2009, 05:01:11 PM »
My sister's surgery went off without a hitch. Everything went as expected and as we hoped. The surgeon removed her eye and removed the cancer, which was all contained and had not spread. She is back home recovering with a pressure patch on her eye. In 6 - 8 weeks she will get her prosthetic eye. Thank you everyone for your prayers!!!
Logged
Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Rerun
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Gender: Female
Posts: 12242


Going through life tied to a chair!
« Reply #19 on: November 22, 2009, 05:06:50 PM »
I'm glad it is over and she can heal.  Those eyes look pretty real.  They even move.  Not much comfort.

                    :grouphug;
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Chris
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« Reply #20 on: November 22, 2009, 05:57:34 PM »
That's good news Jill
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
Administrator
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #21 on: November 23, 2009, 12:11:36 AM »
 :grouphug; :grouphug; :grouphug; Thank God.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jill D.
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Posts: 848
« Reply #22 on: December 03, 2009, 03:25:48 PM »
My sister is doing AWESOME! She actually taught her aerobics class 2 days after her surgery! She is so amzingand PRAISE GOD she is cancer free!! :bandance; :bandance;
Logged
Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Mizar
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Posts: 548
« Reply #23 on: December 03, 2009, 04:28:24 PM »
Wonderful News Jill.
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paris
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Posts: 8859
« Reply #24 on: December 03, 2009, 05:56:30 PM »
You and your sister are both inspirations.  So glad to hear she is doing well.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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