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Author Topic: For okarol  (Read 2385 times)
billybags
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« on: October 16, 2009, 03:36:29 AM »
I would just like to say, a big thank you for all these interesting things you post for us. You work very hard to keep us informed, it is appreciated. :cheer:
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Des
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« Reply #1 on: October 16, 2009, 03:40:42 AM »
me too!

I can't wait to read the next one. Sometimes I battle to keep up though.

Thanks!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Rerun
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Going through life tied to a chair!
« Reply #2 on: October 16, 2009, 05:50:18 AM »
Karol, you are a very good detective.  Where do you find this stuff?  You are also very motivated to keep digging until you help me or someone else.  Thank you ! 

                               :flower;
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #3 on: October 16, 2009, 08:16:18 AM »

I appreciate the good thoughts. I love to search - it's like a puzzle!
 :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jean
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« Reply #4 on: October 16, 2009, 08:21:27 AM »
Happy that we have you to do all of this for us.  :cheer: :cheer: :cheer:
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One day at a time, thats all I can do.
Zach
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"Still crazy after all these years."
« Reply #5 on: October 16, 2009, 08:27:56 AM »
okarol, you're the greatest!

 :-*
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Darthvadar
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« Reply #6 on: October 16, 2009, 10:18:29 AM »
Well done, Karol... :bow;

You're the business!... :bandance;

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
paris
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« Reply #7 on: October 16, 2009, 10:20:20 AM »
I love reading the articles and being one step ahead.  I would never find these articles if Okarol didn't post them.  Thanks for all your dedication to kidney disease.  You help many every day.    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
peleroja
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I have 16 hats, all the same style!
« Reply #8 on: October 16, 2009, 03:16:15 PM »
I concur.  I get lots of good things to print and hand out to our Kidney Beings.  Thanks bunches!
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monrein
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Might as well smile
« Reply #9 on: October 16, 2009, 03:19:42 PM »
No disagreement here!  In fact whenever I come across something through my own looking about, usually I've already read it here.
 :thx;  Okarol.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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