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Dialysis Discussion
Dialysis: General Discussion
up date its been a while
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Topic: up date its been a while (Read 2803 times)
MandaMe1986
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up date its been a while
«
on:
September 22, 2009, 08:52:51 AM »
So last night I went to my dads house for football. First time I have really seen him sense he has been back. He is feeling better, looks so much better. Lets go over a list of events with him.
*Spent a little over a week in ICU in NJ. Found out his left artery in his heart is completely gone. He needs to meet with a cardio doc to see where we go from there. The infection took him down pretty hard, but seems to be all good now.
*4 days after he received home, we got a call from his Dialysis unit and they had to rush him to the ER cause he was having another heart attack. They are pretty sure his potassium bottomed out and that was what caused this one, but still kinda up in the air. I think at this point doctors are kinda pulling at strings cause they don't know. And won't know for sure until he gets off his butt and makes an apt with the cardio doc.
*2 days after that his wifes sister died. She was hit by a car in Va. So even tho my dad wasn't in any shape to travel he took off to Va for the service and they brought her ashes back here for a service here. Along the way missed two D treatments.
His wife is on the verge of a mantle brake down. First she was worried about my dad not making it out of ICU and within a week her sister. I feel so bad. I'm frustrated, and I feel bad that I am. I know I am being selfish in terms of my father. But I want him to take care of himself. And he isn't and won't as long as his wife is sick. But she needs and has every right to be sick too. I don't know this has just been a month of hell.
Aside from all the stress on my end. My immune system has switched from attacking my kidneys to attacking my joints, in so has triggered my fybromialyga. So been in a lot of pain and haven't been sleeping all that well. So depression has kicked in. It has just been no fun lately.
So yeah there you have it. Just a little update. Haha.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
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kimcanada
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Re: up date its been a while
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Reply #1 on:
September 22, 2009, 08:59:58 AM »
WOW Manda you have a full plate...
I know that what works for me when my world around me is seeming to fall apart is this... There is only one way for things to go...UP
I hope your dad realizes that he is the only one that can help him, and I hope your step mom gets it together for hre sake and your dads.
Please keep us posted, and remember things change fast so hang in there Miss Manda
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monrein
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Might as well smile
Re: up date its been a while
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Reply #2 on:
September 22, 2009, 09:03:59 AM »
Glad to finally hear from you but I wish things weren't such a struggle right now.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
bette1
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My dear daughter
Re: up date its been a while
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Reply #3 on:
September 22, 2009, 09:31:08 AM »
So sorry for all that you and your dad are going through. Glad to hear from you. Here's a hug
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant #2 5/24/10
Jean
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Re: up date its been a while
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Reply #4 on:
September 22, 2009, 09:48:22 AM »
So sorry Manda, just hope it gets better for you and soon.
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One day at a time, thats all I can do.
KICKSTART
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In da House.
Re: up date its been a while
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Reply #5 on:
September 22, 2009, 11:27:44 AM »
Sending you a
, i hope from somewhere you find the strength to deal with all this. Is there no one you can lean on ?
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: up date its been a while
«
Reply #6 on:
September 22, 2009, 11:38:09 AM »
Thanks for sharing with us, even though the experiences are painful. You IHD family is with you all the way.
And please be assured of my caring thoughts and prayers
Continue to let us know how things are going, so we can share it with you.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
willowtreewren
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My two beautifull granddaughters
Re: up date its been a while
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Reply #7 on:
September 22, 2009, 12:52:13 PM »
I know you are worried about your dad, Manda. And that is hard on YOU! It seems that when it rains it pours and you are in the downpour right now.
Take care of yourself.
We are here to listen and help when and however we can.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
Romona
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Re: up date its been a while
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Reply #8 on:
September 22, 2009, 01:15:39 PM »
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
Re: up date its been a while
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Reply #9 on:
September 22, 2009, 03:07:58 PM »
Missing you Manda. Hope things improve soon.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
kitkatz
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Re: up date its been a while
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Reply #10 on:
September 22, 2009, 03:10:51 PM »
That sounds like a full plate you have had.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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