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Author Topic: PD  (Read 3575 times)
jpearce
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PD
« on: September 15, 2009, 03:27:39 PM »

I get to go to my assessment for PD Oct 7, any advice on uestions I should be asking or things to look out for?






EDITED: Moved to home dialysis/PD section-kitkatz,Moderator
« Last Edit: September 15, 2009, 07:47:20 PM by kitkatz » Logged

diagnosed lupus - June 2007
Lupus nephritis resulting in dialysis- Jan 2008
On the waiting list for transplant May 2009
LightLizard
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« Reply #1 on: September 15, 2009, 03:32:12 PM »

yes. look out for midgets with attitude.
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #2 on: September 15, 2009, 08:22:16 PM »

Have you already decided what side the catheter is going on?  Depends on what side of the bed you sleep on.  Ask about extraneal bags and how soon you can start using them.  I think they sometimes don't like using them until they know how you go with the normal ones. 
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
KICKSTART
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In da House.

« Reply #3 on: September 16, 2009, 08:33:21 AM »

Yes pick which side you want it on , which feels best for you, also the height eg below your waistband. As for questions , there will probably be loads you want to ask when you start PD  and i would say you will be better off if you want honest opinions to ask on here!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
spacezombie
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Melissa: ESRD since 1992, transplant June 10, 2008

« Reply #4 on: September 16, 2009, 10:36:43 AM »

Yes pick which side you want it on , which feels best for you, also the height eg below your waistband. As for questions , there will probably be loads you want to ask when you start PD  and i would say you will be better off if you want honest opinions to ask on here!


I agree! I always had docs wanting to put the PD cath too high for my liking so I'd argue so that it would be below my waistband. Whatever your preference is!
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
*kana*
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« Reply #5 on: September 16, 2009, 06:21:38 PM »

Yes pick which side you want it on , which feels best for you, also the height eg below your waistband. As for questions , there will probably be loads you want to ask when you start PD  and i would say you will be better off if you want honest opinions to ask on here!


I agree! I always had docs wanting to put the PD cath too high for my liking so I'd argue so that it would be below my waistband. Whatever your preference is!

Thats funny because I insisted that it be above my waist band.  The nurses all commented on how nice it was that the surgeon finally put it up high.  Mine is about an inch above and over from my belly button.  It doesn't rub on my pants being it is so high.

 It is difficult to know your preference if this is your first PD cath.   
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
peleroja
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I have 16 hats, all the same style!

« Reply #6 on: September 17, 2009, 08:30:35 AM »

When I had my first PD catheter put in, the doc made all kinds of designs on my chest and abdomen, then sat me up and all his pretty designs disappeared.  He told me he couldn't put my exit site in my abdomen, but offered me a presternal catheter.  It comes out about 1 inch to the right of my left breast.  I got so used to it that when I had my second catheter inserted I asked for another presternal one.  I like having it "up close and personal."
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girliekick
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« Reply #7 on: September 17, 2009, 10:49:48 AM »

Yes pick which side you want it on , which feels best for you, also the height eg below your waistband. As for questions , there will probably be loads you want to ask when you start PD  and i would say you will be better off if you want honest opinions to ask on here!

I agree ask here completely with kickstart.   I love the surg that put my cath in and he advised me to choose above or below the waistline. I chose above, almost belly button height. But as I have gained a lot of weight since I have to choose pants that dont aggravate my exit site. I wish I had chosen a lil higher.  Im happy to answer any questions I can, good luck!

Girl
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-Christmas '03 get news of esrd
-June '08 start hemo
-Thanksgiving '08 pd surg
-Feb '09 Stop hemo and manual exchanges
... start cycler
Setp 3 '09 On UNOS list (27th b day)
Dec 09 peritonitis
jpearce
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« Reply #8 on: September 17, 2009, 10:57:38 AM »

thank you all for the advice. will let you know how things turn out.
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diagnosed lupus - June 2007
Lupus nephritis resulting in dialysis- Jan 2008
On the waiting list for transplant May 2009
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