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Dialysis: Home Dialysis
Again... an infection. This time I'm armed to fight.
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Topic: Again... an infection. This time I'm armed to fight. (Read 4712 times)
Restorer
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Again... an infection. This time I'm armed to fight.
«
on:
September 01, 2009, 08:08:42 PM »
So, I woke up on Monday with a bit of a pain in my side, and I checked the "pillow" in the drain line and it looked a little cloudy. So I called my PD nurse and he had me put in some fluid and come in 2 hours later to get it cultured. At the clinic, I did an exchange with a bag spiked with two antibiotics (Ancef and Fortaz, if you're interested), and the drained fluid was fairly cloudy.
I already had an appointment for my monthly labs today, so I went back, got my labs drawn and everything, and then got trained to put my own antibiotics into the bags. I left with a big sharps container full of supplies, a box of large syringes, a box of Betadine pads, and a box of gloves.
I'm supposed to put antibiotics in every bag I use - the 1.5L manual bag I use in the evening, and both 5L bags I use at night - and to change my cycler settings so I'm doing a last fill of 1000 ml and carrying that all day.
As soon as my culture results come in over the next day or so, I'll probably be told to stop using one of the antibiotics, as right now it's a combination of two wide-spectrum antibiotics to nuke anything I might have. Once that's figured out, I can start doing more targeted therapy with either the gram-positive antibiotic or the gram-negative one. Unless I have something weird that's not susceptible to those...
Now I have to do the semi-nervewracking process of spiking all the bags every night, starting with reconstituting the antibiotics.
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Matt
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wasabiflux.org
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Dialysis Calculators
3/2007
Kidney failure diagnosed
5/2010
In-center hemodialysis
8/2008
Peritoneal catheter placed
1/2012
Upper arm fistula created
9/2008
Peritoneal catheter replaced
3/2012
Started using fistula
9/2008
Began CAPD
4/2012
Buttonholes created
3/2009
Switched to CCPD w/ Newton IQ cycler
4/2012
HD catheter removed
7/2009
Switched to Liberty cycler
4/2018
Transplanted at UCLA!
Rerun
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Going through life tied to a chair!
Re: Again... an infection. This time I'm armed to fight.
«
Reply #1 on:
September 01, 2009, 08:46:46 PM »
Sounds like you've got a handle on it. Good catch!
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Des
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Re: Again... an infection. This time I'm armed to fight.
«
Reply #2 on:
September 02, 2009, 02:33:02 AM »
Is peritonitis a comon occurance?
Ignore the above question..... I just saw it asked on another post.
I hope you caught it early.
«
Last Edit: September 02, 2009, 02:34:59 AM by Des
»
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
Re: Again... an infection. This time I'm armed to fight.
«
Reply #3 on:
September 02, 2009, 03:13:30 AM »
If you've not had any abdominal pain it looks like you caught it in time. Well done!
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Ken
billybags
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Re: Again... an infection. This time I'm armed to fight.
«
Reply #4 on:
September 02, 2009, 05:32:53 AM »
Poor you, how many times have you got infections. Scary hope all is well soon.
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Darthvadar
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Re: Again... an infection. This time I'm armed to fight.
«
Reply #5 on:
September 02, 2009, 06:08:37 AM »
Best of luck getting on top of the infection, Restorer....
Keep chin as well as feet up...
May God bless and protect you...
Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Restorer
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Re: Again... an infection. This time I'm armed to fight.
«
Reply #6 on:
September 02, 2009, 11:08:22 AM »
Ken, I did have abdominal pain.
When I woke up to see the cloudy fluid, I already had a pain in my side, and it got slowly worse all day. It started to get a little better just before I went to bed, after I had done one exchange with antibiotics.
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Matt
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wasabiflux.org
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Dialysis Calculators
3/2007
Kidney failure diagnosed
5/2010
In-center hemodialysis
8/2008
Peritoneal catheter placed
1/2012
Upper arm fistula created
9/2008
Peritoneal catheter replaced
3/2012
Started using fistula
9/2008
Began CAPD
4/2012
Buttonholes created
3/2009
Switched to CCPD w/ Newton IQ cycler
4/2012
HD catheter removed
7/2009
Switched to Liberty cycler
4/2018
Transplanted at UCLA!
Restorer
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Re: Again... an infection. This time I'm armed to fight.
«
Reply #7 on:
September 02, 2009, 08:21:49 PM »
Oy, my first night of doing the whole thing. Four vials to mix up, three bags to spike. Hopefully tomorrow I'll hear which bug this is so I can halve the number of vials and syringes I have to use. It took me 45 minutes to do it all.
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Matt
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wasabiflux.org
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Dialysis Calculators
3/2007
Kidney failure diagnosed
5/2010
In-center hemodialysis
8/2008
Peritoneal catheter placed
1/2012
Upper arm fistula created
9/2008
Peritoneal catheter replaced
3/2012
Started using fistula
9/2008
Began CAPD
4/2012
Buttonholes created
3/2009
Switched to CCPD w/ Newton IQ cycler
4/2012
HD catheter removed
7/2009
Switched to Liberty cycler
4/2018
Transplanted at UCLA!
sico
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wheres my bike gone?
Re: Again... an infection. This time I'm armed to fight.
«
Reply #8 on:
September 02, 2009, 09:06:16 PM »
Thats no good Restorer. I hope it doesn't get any worse and you get better soon.
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Brad
"Got myself a one way ticket, going the wrong way" - Bon Scott
6/11/08 diagnosed with ESRF, dialysis that day
HD and PD
8th of April 2010 Live kidney transplant from my father.
Restorer
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Re: Again... an infection. This time I'm armed to fight.
«
Reply #9 on:
September 02, 2009, 09:31:52 PM »
I forgot to mention: the pain went away completely yesterday. Today I feel a little better, but I seem to have some minor joint/muscle pain that I typically get when I get sick. The way these antibiotics cleared up the pain, I'm optimistic that they'll be really effective at getting rid of the bug altogether.
Except that whenever I get an infection, my UF goes way down. Now I'm retaining a little fluid, and it's making me a little uncomfortable in the mornings - mild headache, feeling bloated and puffy.
«
Last Edit: September 02, 2009, 10:04:45 PM by Restorer
»
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Matt
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wasabiflux.org
-
Dialysis Calculators
3/2007
Kidney failure diagnosed
5/2010
In-center hemodialysis
8/2008
Peritoneal catheter placed
1/2012
Upper arm fistula created
9/2008
Peritoneal catheter replaced
3/2012
Started using fistula
9/2008
Began CAPD
4/2012
Buttonholes created
3/2009
Switched to CCPD w/ Newton IQ cycler
4/2012
HD catheter removed
7/2009
Switched to Liberty cycler
4/2018
Transplanted at UCLA!
KICKSTART
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In da House.
Re: Again... an infection. This time I'm armed to fight.
«
Reply #10 on:
September 03, 2009, 08:17:28 AM »
I hope you are soon feeling back to your old self
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Darthvadar
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Re: Again... an infection. This time I'm armed to fight.
«
Reply #11 on:
September 03, 2009, 10:46:33 AM »
Feeling any better today, Restorer???....
Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Restorer
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Re: Again... an infection. This time I'm armed to fight.
«
Reply #12 on:
September 08, 2009, 04:56:16 PM »
Feeling completely normal again. Pain's gone, bags are clear, not feeling bad at all.
Today I went to pick up more antibiotics (the results from the culture came back no growth, so we still don't know what I had/have, so I'm stuck on the full 21-day course of both antibiotics), and I got my labs back (which were taken the day after I reported the peritonitis). My phosphorus, for the first time ever, is actually in range! 5.1! Unfortunately, my protein was down (albumin 2.9), so it might have been due to me feeling bad and eating less, rather than effective treatment. Regardless, I'm gonna keep doing what I'm doing and hope it stays low. My hemoglobin is also a bit low (9.5), which is to be expected with an infection. I got another shot of EPO today to try to boost it up.
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Matt
-
wasabiflux.org
-
Dialysis Calculators
3/2007
Kidney failure diagnosed
5/2010
In-center hemodialysis
8/2008
Peritoneal catheter placed
1/2012
Upper arm fistula created
9/2008
Peritoneal catheter replaced
3/2012
Started using fistula
9/2008
Began CAPD
4/2012
Buttonholes created
3/2009
Switched to CCPD w/ Newton IQ cycler
4/2012
HD catheter removed
7/2009
Switched to Liberty cycler
4/2018
Transplanted at UCLA!
george40
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Re: Again... an infection. This time I'm armed to fight.
«
Reply #13 on:
September 08, 2009, 05:00:07 PM »
Im glad you made it through! Great fight you put up!
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8/2000 - Diagnosed ESRD / Hemo begins with perm cath
1/2002 - Transplant No. 1
4/2006 - Transplant failed due to CMV virus/ Back to Hemo
11/2008 - Moved to PD Modality
9/2012 - Transplanted!
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
Re: Again... an infection. This time I'm armed to fight.
«
Reply #14 on:
September 11, 2009, 04:19:04 PM »
Well done Restorer you won.
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Ken
Wattle
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Re: Again... an infection. This time I'm armed to fight.
«
Reply #15 on:
September 13, 2009, 05:55:09 AM »
I am glad you had your eye on it and followed through with the treatment.
Infections are a pain in the
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
dwcrawford
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Getting the heck out of town.
Re: Again... an infection. This time I'm armed to fight.
«
Reply #16 on:
September 13, 2009, 11:15:19 AM »
Just reading about your problem Restorer... So sorry but really glad you handled it so well. Good Job.
Now you can get back to what you do best... Teaching us about food. lol Really, we have to start working on your audition for Food Network...
How did your haircut turn out?
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Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
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