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Author Topic: Waiting for a confirmation call - may have a kidney/pancreas today!  (Read 50795 times)
glitter
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« Reply #75 on: August 27, 2009, 05:24:58 PM »
 :cheer: :cheer: :flower; :flower; Happy Day!!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
jbeany
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Cattitude
« Reply #76 on: August 27, 2009, 06:25:06 PM »
Okay here's the latest.  She's out of recovery and in her own room.  SHE IS PEEING!!!!!!!  As much as you can through a tube anyway.  She's still really out of it, docs said she needed tons of rest.  Probably wont know more until tomorrow sometime.  Thank you all for your support, as soon as I talk to her in person I'll tell her that her IHD family sends thrie best!  God bless you all.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Romona
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« Reply #77 on: August 27, 2009, 06:27:36 PM »
Wonderful news!
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MIbarra
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Stopping to smell the bluebonnets
« Reply #78 on: August 27, 2009, 06:33:41 PM »
It was so wonderful to hear about this great news! I hope everything continues to go perfectly!  :flower;
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Cadaver transplant April 29, 2007
willieandwinnie
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« Reply #79 on: August 27, 2009, 06:34:48 PM »
 :yahoo; I can go to bed with a sigh of relief. Thank You.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Adam_W
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Me with Baron von Fresenius
« Reply #80 on: August 27, 2009, 06:36:07 PM »
 :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; Oh I'm so happy!!!!  :bandance; :bandance; :bandance; :bandance; :bandance; :bandance;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Chris
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« Reply #81 on: August 27, 2009, 06:37:54 PM »
Wonder if we can send e-cards to her or messages thru the hospital? Can't remember JB's real name, but if someone knows, look to see if we can send somethingto her from the hospitals website.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #82 on: August 27, 2009, 06:53:31 PM »
Thank you, thank you for keeping us up-dated. Many hugs to Jbeany!

 :grouphug; :grouphug; :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #83 on: August 27, 2009, 06:54:36 PM »
    I am sure she will see all of this is just a few days.......  We are all very happy for her.....  Its these stories that helps us new people find hope.....

             Way to go JBeany
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #84 on: August 27, 2009, 07:02:25 PM »

I don't know what hospital she's in.  ???
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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« Reply #85 on: August 27, 2009, 07:03:11 PM »
 :cheer: :flower; :flower; :flower; :flower; :flower; :flower;


Great News!!  I am so happy JB got the two together. Not only does it mean no more dialysis.... NO MORE DIABETES woooohoooo!

A new life is being   :cuddle;     :grouphug;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
RichardMEL
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« Reply #86 on: August 27, 2009, 07:04:19 PM »
HOORAY!!! Another IHD successful transplant!!! I'm so wrapped!!!!!


 :bow; :bow; :bow; :bow; :bow; :bow;
 :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
cariad
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What's past is prologue
« Reply #87 on: August 27, 2009, 07:07:13 PM »
Quote from: okarol on August 27, 2009, 07:02:25 PM

I don't know what hospital she's in.  ???

Karol, someone (her ex, I think) mentioned UofM, which I assumed was University of Michigan in Ann Arbor.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
KT0930
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« Reply #88 on: August 27, 2009, 07:38:50 PM »
So happy for you JB!! This is the best news I've heard all week!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Pam
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« Reply #89 on: August 27, 2009, 07:45:20 PM »
Her first name is Janell don't know the last name. She is in U of M  Ann Arbor.
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skyedogrocks
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Rob showing off his pot of gold!
« Reply #90 on: August 27, 2009, 07:48:12 PM »
WOOOHOOOO Way to go Jbeany!!!!!!  Soooo happy for you.  Kick butt in the ICU and get home quickly!   :bandance; :bandance;
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
thegrammalady
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« Reply #91 on: August 27, 2009, 07:54:42 PM »
fantastic, best news i've heard all week!!!!!
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Bill Peckham
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« Reply #92 on: August 27, 2009, 08:19:06 PM »
Quote from: cariad on August 27, 2009, 07:07:13 PM
Quote from: okarol on August 27, 2009, 07:02:25 PM

I don't know what hospital she's in.  ???

Karol, someone (her ex, I think) mentioned UofM, which I assumed was University of Michigan in Ann Arbor.

She might be closer to Minnesota.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
pelagia
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« Reply #93 on: August 27, 2009, 08:30:31 PM »
I can't think of anything to say except: :flower; :cheer: :yahoo; :2thumbsup; :bandance; :bestwishes; :clap; :-* :) :thumbup; :wine;  :bandance; :pray; :bow; :beer1; :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Chris
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« Reply #94 on: August 27, 2009, 08:45:17 PM »
I can't remember what she has said in chat to where she is located and what hospital she listed at. Should have took notes in chat ??? :oops;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Rerun
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Going through life tied to a chair!
« Reply #95 on: August 27, 2009, 08:53:16 PM »
PTL!   :pray;

Great News!  Thank you (who ever you are) for letting us know about our JB!

                               :flower;
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Jess21
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« Reply #96 on: August 27, 2009, 09:52:31 PM »
Quote from: Chris on August 27, 2009, 08:45:17 PM
I can't remember what she has said in chat to where she is located and what hospital she listed at. Should have took notes in chat ??? :oops;
She lives in Michigan, so what Cariad said!
 :bestwishes; :bestwishes; :bestwishes; :bestwishes;
Logged
Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #97 on: August 27, 2009, 09:59:27 PM »
Well, more specifically what town/area in order to get a general idea of what hospital is 4 hours away.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jean
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Posts: 6114
« Reply #98 on: August 28, 2009, 12:08:06 AM »
Oh how awesomely wonderful for you jbeany. Praise God, we are all so happy for you.
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One day at a time, thats all I can do.
monrein
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Might as well smile
« Reply #99 on: August 28, 2009, 04:02:09 AM »
I was waiting to hear she was peeing.   :yahoo; :flower; :yahoo;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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