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Author Topic: Waiting for a confirmation call - may have a kidney/pancreas today!  (Read 50787 times)
willowtreewren
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My two beautifull granddaughters

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« Reply #25 on: August 26, 2009, 05:21:52 PM »
As hard as the waiting is here, I can hardly imagine what it must be like for you!

Please, please, please, I want you to get this transplant!

 :thumbup; :thumbup; :thumbup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Melissa
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« Reply #26 on: August 26, 2009, 05:22:13 PM »
Sending lots of luck! 
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Zach
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"Still crazy after all these years."
« Reply #27 on: August 26, 2009, 05:40:08 PM »
 :-*
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Chris
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« Reply #28 on: August 26, 2009, 05:56:51 PM »
She must have went in I am hoping since no word yet. Well that's what I'm hoping for her  :2thumbsup; :thumbup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
RichardMEL
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« Reply #29 on: August 26, 2009, 06:21:36 PM »
oh wow oh wow oh wow oh wow!! !!!!!! This is potentially awesome!! JB has waited long enough this is a fantastic surprise and my fingers and toes are crossed for her!!!! wow!! We've had a lull in IHD transplants lately so this is potentially great news!!!!!

I too am bouncing around after reading this.. just what I needed as I prepare for yet another D session and hoping it is not as bad as the last... I have a smile on my face(both from the thought of JB getting a transplant and that I'm bouncing around with a bunch of IHD women and that thought sounds kind of fun to me  >:D).

Hoping for awesome news ASAP!!!!!!!!!  :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
willieandwinnie
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« Reply #30 on: August 26, 2009, 06:59:48 PM »
Oh, I had to check before I go to bed. I am really praying that since JB hasn't posted since this afternoon that she is on her way to a new kidney.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Sunny
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Sunny
« Reply #31 on: August 26, 2009, 07:08:46 PM »
Praying for you. Hope things go your way.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
lola
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I can fly!!!
« Reply #32 on: August 26, 2009, 07:15:34 PM »
JB can't wait to check on u in the A.M. :bandance; :bandance; :bandance; :bandance;
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charee
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« Reply #33 on: August 26, 2009, 08:00:03 PM »
Just caught this wow hope its your turn JB hope to hear soon :yahoo;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
jbeany
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Cattitude
« Reply #34 on: August 26, 2009, 10:44:07 PM »
This is jbeany's ex-hubby, she is on her way for the dual transplant and wanted me to update everyone.  I'll post more as soon as I hear some news.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #35 on: August 26, 2009, 10:59:48 PM »
OMG OMG OMG ! :cheer: :cheer: :cheer:
Thank you so much for the update!
We will be here waiting for any news - please tell her we love her!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #36 on: August 26, 2009, 11:03:18 PM »
Quote from: jbeany on August 26, 2009, 10:44:07 PM
This is jbeany's ex-hubby, she is on her way for the dual transplant and wanted me to update everyone.  I'll post more as soon as I hear some news.

GREAT NEWS!

I hope all goes well!!!!

I hope God keeps you safe so that you are back here SOON!

THIS IS SOOOOO EXCITING.!!!!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Pam
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« Reply #37 on: August 26, 2009, 11:17:10 PM »
 :clap; :clap; :clap; jbeany
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Jess21
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« Reply #38 on: August 26, 2009, 11:35:26 PM »
 :thumbup; :thumbup; :thumbup; :thumbup; :thumbup;
 :clap; :clap; :clap; :clap; :clap; :clap; :clap;
 :yahoo; :yahoo; :yahoo; :yahoo; :yahoo;
 :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup;
 :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
kellyt
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« Reply #39 on: August 26, 2009, 11:38:29 PM »
I just saw this post jbeany!  I'm very happy and excited for you!  Take care!  I can't wait to hear all about it!  My thoughts and prayers are with you and the donor's family!!!    :beer1;     :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
YLGuy
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« Reply #40 on: August 27, 2009, 12:21:32 AM »
Definitely in my prayers.
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kimcanada
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« Reply #41 on: August 27, 2009, 02:49:29 AM »
OH MY FREAKIN GODDDDDDDDDDDDDD  :pray; Jbeany you are in my thoughts!
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monrein
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Might as well smile
« Reply #42 on: August 27, 2009, 03:51:28 AM »
Oh wow!  Jbeany this is exciting stuff!  So many of us thinking of you and praying for you, for the doctors and for the family that made this possible.  Lots of love and thanks jbeany's ex for the update.  :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #43 on: August 27, 2009, 04:37:23 AM »
This is making my cry! I can't wait for the updates! :clap;
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willieandwinnie
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« Reply #44 on: August 27, 2009, 04:48:23 AM »
 :pray; Praying all is good for our JB. Thank you for updating and tell her to pee-pee-pee. We will keep praying and thinking of her.  :yahoo;  :cheer:  :bandance;  :clap;
« Last Edit: August 27, 2009, 04:52:05 AM by willieandwinnie » Logged
"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #45 on: August 27, 2009, 04:48:44 AM »
 :yahoo; this is fantastic  :yahoo;

I'll be keeping you and the donor's family in my thoughts and prayers today.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willowtreewren
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My two beautifull granddaughters

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« Reply #46 on: August 27, 2009, 04:57:00 AM »
Tears of joy!  :flower; :flower; :flower;

 :beer1;

 :grouphug; :grouphug; :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
del
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del and willowtreewren meet
« Reply #47 on: August 27, 2009, 05:15:13 AM »
Great news jbeany!!!  :yahoo; :thumbup; :thumbup; :thumbup; :thumbup; Hope things go well!!!   :cuddle; :bandance; :bandance; :bandance;
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Don't take your organs to heaven.  Heaven knows we need them here.
Meinuk
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« Reply #48 on: August 27, 2009, 05:38:02 AM »
JB!!

You'll be in my thoughts all day.  I can't wait to read all about it.  Considering all the changes that you have faced in 2009 moving, moving again, having to go in center  - this is the biggest one yet!

Best wishes for a smooth and speedy recovery!

 :grouphug;

Anna
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
lola
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I can fly!!!
« Reply #49 on: August 27, 2009, 05:59:30 AM »
 :bandance; :bandance; :bandance; :bandance; :flower; :cheer: :yahoo;
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www.caringbridge.org/visit/ottomachado
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