willowtreewren
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« Reply #25 on: August 26, 2009, 05:21:52 PM » |
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As hard as the waiting is here, I can hardly imagine what it must be like for you! Please, please, please, I want you to get this transplant!
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.
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Melissa
Jr. Member
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Gender:
Posts: 88
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« Reply #26 on: August 26, 2009, 05:22:13 PM » |
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Sending lots of luck!
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Zach
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« Reply #27 on: August 26, 2009, 05:40:08 PM » |
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment. I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology."
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Chris
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« Reply #28 on: August 26, 2009, 05:56:51 PM » |
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She must have went in I am hoping since no word yet. Well that's what I'm hoping for her
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year -glaucoma and surgery for that -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999 1st Dialysis - July 4, 1999 Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009 Knee Surgery 2010 2011/2012 in process of getting a guide dog Guide Dog Training begins July 2, 2012 in NY Guide Dog by end of July 2012 Next eye surgery late 2012 or 2013 if I feel like it Home with Guide dog - July 27, 2012 Knee Surgery #2 - Oct 15, 2012 Eye Surgery - Nov 2012 Lifes Adventures - Priceless
No two day's are the same, are they?
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RichardMEL
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« Reply #29 on: August 26, 2009, 06:21:36 PM » |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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willieandwinnie
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« Reply #30 on: August 26, 2009, 06:59:48 PM » |
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Oh, I had to check before I go to bed. I am really praying that since JB hasn't posted since this afternoon that she is on her way to a new kidney.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Sunny
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« Reply #31 on: August 26, 2009, 07:08:46 PM » |
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Praying for you. Hope things go your way.
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Sunny, 49 year old female pre-dialysis with GoodPastures
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lola
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« Reply #32 on: August 26, 2009, 07:15:34 PM » |
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charee
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« Reply #33 on: August 26, 2009, 08:00:03 PM » |
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Just caught this wow hope its your turn JB hope to hear soon
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Home Hemo 18 months Live donor transplant 28th October 2008 from my beautiful sister Royal Prince Alfred Sydney Australia
Live donors rock
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jbeany
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« Reply #34 on: August 26, 2009, 10:44:07 PM » |
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This is jbeany's ex-hubby, she is on her way for the dual transplant and wanted me to update everyone. I'll post more as soon as I hear some news.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
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okarol
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« Reply #35 on: August 26, 2009, 10:59:48 PM » |
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OMG OMG OMG ! Thank you so much for the update! We will be here waiting for any news - please tell her we love her!
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Des
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« Reply #36 on: August 26, 2009, 11:03:18 PM » |
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This is jbeany's ex-hubby, she is on her way for the dual transplant and wanted me to update everyone. I'll post more as soon as I hear some news.
GREAT NEWS! I hope all goes well!!!! I hope God keeps you safe so that you are back here SOON! THIS IS SOOOOO EXCITING.!!!!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa PKD Jan 2010 Nephrectomy (left kidney) Jan 2010 Fistula Started April 2010 Hemo Dialysis(hate every second of it) Nov 2012 Placed on disalibity (loving it)
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Pam
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« Reply #37 on: August 26, 2009, 11:17:10 PM » |
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Jess21
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« Reply #38 on: August 26, 2009, 11:35:26 PM » |
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Hospitalized w/ renal failure- Nov. 2007 Diagnosed w/ ESRD w/ unknown cause- Jan 2008 Lower arm AV Fistula created- March 2008 On IL transplant list- Oct. 8th, 2008 On WI transplant list- June 25th, 2009 Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
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kellyt
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« Reply #39 on: August 26, 2009, 11:38:29 PM » |
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I just saw this post jbeany! I'm very happy and excited for you! Take care! I can't wait to hear all about it! My thoughts and prayers are with you and the donor's family!!!
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
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YLGuy
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« Reply #40 on: August 27, 2009, 12:21:32 AM » |
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Definitely in my prayers.
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kimcanada
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« Reply #41 on: August 27, 2009, 02:49:29 AM » |
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OH MY FREAKIN GODDDDDDDDDDDDDD Jbeany you are in my thoughts!
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monrein
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« Reply #42 on: August 27, 2009, 03:51:28 AM » |
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Pyelonephritis (began at 8 mos old) Home haemo 1980-1985 (self-cannulated with 15 gauge sharps) Cadaveric transplant 1985 New upper-arm fistula April 2008 Uldall-Cook catheter inserted May 2008 Haemo-dialysis, self care unit June 2008 (2 1/2 hours X 5 weekly) Self-cannulated, 15 gauge blunts, buttonholes. Living donor transplant (sister-in law Kathy) Feb. 2009 First failed kidney transplant removed Apr. 2009 Second trx doing great so far...all lab values in normal ranges
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Romona
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« Reply #43 on: August 27, 2009, 04:37:23 AM » |
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This is making my cry! I can't wait for the updates!
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willieandwinnie
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« Reply #44 on: August 27, 2009, 04:48:23 AM » |
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« Last Edit: August 27, 2009, 04:52:05 AM by willieandwinnie »
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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pelagia
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« Reply #45 on: August 27, 2009, 04:48:44 AM » |
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this is fantastic I'll be keeping you and the donor's family in my thoughts and prayers today.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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willowtreewren
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« Reply #46 on: August 27, 2009, 04:57:00 AM » |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.
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del
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« Reply #47 on: August 27, 2009, 05:15:13 AM » |
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Don't take your organs to heaven. Heaven knows we need them here.
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Meinuk
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« Reply #48 on: August 27, 2009, 05:38:02 AM » |
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JB!! You'll be in my thoughts all day. I can't wait to read all about it. Considering all the changes that you have faced in 2009 moving, moving again, having to go in center - this is the biggest one yet! Best wishes for a smooth and speedy recovery! Anna
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lola
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« Reply #49 on: August 27, 2009, 05:59:30 AM » |
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