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Author Topic: Waiting for a confirmation call - may have a kidney/pancreas today!  (Read 50784 times)
kimcanada
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« Reply #225 on: September 12, 2009, 03:35:36 AM »
OMG JBeany  what you have been through!

Please get better NOW we miss you and need you  :pray; :cuddle;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #226 on: September 12, 2009, 12:44:00 PM »

I spoke to the ICU nurse this morning but Janel was asleep at the time.

I ordered a balloon bouquet from IHD for Janel, hopefully it will be delivered tomorrow.

 :bestwishes; :bestwishes; :bestwishes;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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My two beautifull granddaughters

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« Reply #227 on: September 12, 2009, 05:07:24 PM »
Thank you, Karol!

What a dear you are.

Jbeany, we want you to be up and at 'em very soon!

 :grouphug; :grouphug; :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #228 on: September 12, 2009, 08:13:56 PM »
 :clap; :clap; :clap; THE  :bestwishes; :bestwishes; :bestwishes;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
KICKSTART
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In da House.
« Reply #229 on: September 13, 2009, 10:04:18 AM »
Anymore news? I hope no news is good news as they say . :grouphug;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
kitkatz
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« Reply #230 on: September 13, 2009, 11:46:14 AM »
I hope all is going well now.  Yay!  For a transplant!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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« Reply #231 on: September 13, 2009, 01:55:22 PM »

I just had a great conversation with Janel! They've moved her to a regular room from ICU - so that's a good sign! She has had 2 surgeries for bowel blockage/leakage but it looks like that's working out ok. She has not had any solid food for a long time, and is still on IV fluids. Her creatinine has gone down and she's hoping to make more urine over the next day or so. She's very swollen so they did dialysis yesterday, but today she'll get a large dose of Lasix, which should help. She said to tell everyone hello and "I will be back!" It looks like she won't be out of the hospital anytime soon so if you'd like to send her a card let me know I and I will give you her info. She got our balloon bouquet today and thanks everyone, for the prayers too - she says - keep your fingers crossed!
 :yahoo; Get well Janel!!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #232 on: September 13, 2009, 02:18:25 PM »
 :yahoo; Janel. Thank you so much karol. I have been so worried about her. Those bowels problems are the bee Jesus to get rid of. I keep praying.  :pray;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Wattle
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« Reply #233 on: September 13, 2009, 07:13:01 PM »
That is wonderful news.   :cheer: :cheer:

I am   :pray; :pray; :pray;    she continues to move forward.  Get well Janel.   :-*    :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Jessmomto3
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Logan's mom!
« Reply #234 on: September 13, 2009, 07:33:32 PM »
Saying prayers that she is well soon and home! 

Lasix is an awesome drug.  Logey had to have quite a bit of it to kickstart his kidney.  His kidney was a bit shellshocked to go from a 19 year old to an 18 month old. 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
kellyt
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« Reply #235 on: September 13, 2009, 07:37:12 PM »
 :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
charee
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« Reply #236 on: September 13, 2009, 09:30:03 PM »
 :bandance; Great news keep on getting stronger Janel
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Chris
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« Reply #237 on: September 13, 2009, 10:50:42 PM »
Glad she is doing better. :2thumbsup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #238 on: September 14, 2009, 07:15:04 AM »
Yay! Jbeany!

 :cheer: :cheer: :cheer: :cheer:

Stay on this road to recovery!  :clap; :clap;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #239 on: September 14, 2009, 01:11:06 PM »
I'm send jbean a card tomorrow. I tried to get something funny and the one that's perfect is more meant for a male due to picture of him being in a gown. :o
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #240 on: September 14, 2009, 01:21:38 PM »
I sent one today. I make cards as a hobby and hers is just for her!  :2thumbsup;

Anything to help her gain strength and get back on her feet!

Go, Jbeany!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #241 on: September 14, 2009, 01:35:24 PM »
Graphics I can do, words I can not unless smart  :sir ken; comments  :rofl; :rofl;

Forgot they had software to do that. Wish Shoebox greeting cards had that..
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jbeany
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Cattitude
« Reply #242 on: September 16, 2009, 05:37:13 PM »
Hi everyone, I talked to jbeany today, she is still very weak but hanging on.  She still has about 50 pounds of water weight on her.  The doctor said that she will be feeling weak for about 2 weeks and then should start to pull out of it.  Other than that there is nothing new.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
kimcanada
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« Reply #243 on: September 16, 2009, 05:39:23 PM »
Awww poor her... please keep telling her that we all are praying for a speedy recovery and can't wait for her to get back to us!!  Is that "normal" for a double transplant to carry so much fluid?
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Chris
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« Reply #244 on: September 16, 2009, 05:39:55 PM »
Thanks for the update.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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Gender: Female
Posts: 6928


My two beautifull granddaughters

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« Reply #245 on: September 16, 2009, 06:10:06 PM »
 :bestwishes; :bestwishes;

 :grouphug; :grouphug; :grouphug;

Get better soooooooooon.

We miss you, Jbeany!
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
jbeany
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Cattitude
« Reply #246 on: September 18, 2009, 04:03:26 AM »
Hi everyone.  I talked to jbeany yesterday and she had a great day, at least as great as it could be.  The nurses had her up and walking.  She has had all dialysis ports removed.  Her water gain is still going down and kidney function is still improving.  All things considering a great day.  Just wanted to post some good news for a change!!!!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
willowtreewren
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My two beautifull granddaughters

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« Reply #247 on: September 18, 2009, 04:48:45 AM »
 :clap; :clap; :clap; :clap;

Good to hear!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #248 on: September 18, 2009, 04:53:24 AM »
I (and so many others) have been waiting to hear about these little signs of improvement.  Foreign tubes and such being removed is always good.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Meinuk
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« Reply #249 on: September 18, 2009, 07:47:59 AM »
Thank you for the updates, and the good news.  Hopefully every day will be another step forward.

Thinking of you JB!
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
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