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Author Topic: Waiting for a confirmation call - may have a kidney/pancreas today!  (Read 50786 times)
willowtreewren
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My two beautifull granddaughters

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« Reply #200 on: September 10, 2009, 10:40:56 AM »
Jbeany, I'm sending all the healing thoughts I can muster for your speedy and COMPLETE recovery.

 :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;

Please, please get better and bring your strength and humor back to IHD!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kellyt
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« Reply #201 on: September 10, 2009, 10:48:27 AM »
I wish for you peace and sweet dreams while you rest and recover, jbeany.  We miss you and look forward to your return!!!    :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
cherpep
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« Reply #202 on: September 10, 2009, 12:07:07 PM »
Saying extra prayers for jbeany.  May God be with you all and give you the strength you need. 
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Zach
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"Still crazy after all these years."
« Reply #203 on: September 10, 2009, 12:20:18 PM »
 :-*
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Meinuk
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« Reply #204 on: September 10, 2009, 12:29:56 PM »
Thinking of you and wishing that there were more I could do.  Your strength had helped us so much over the years. You can do this. Rest and heal.  We need you.

Love,

Anna
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
thegrammalady
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« Reply #205 on: September 10, 2009, 01:45:42 PM »
my prayers are with you.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #206 on: September 10, 2009, 02:36:24 PM »
I'm so glad to hear things went smoothly last night! Peaceful is good!! Thank you so much for the updates.  :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Jill D.
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« Reply #207 on: September 10, 2009, 07:02:35 PM »
Sending love and prayers to Janel..
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Epofriend
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This is what happens in Vegas!
« Reply #208 on: September 10, 2009, 07:26:43 PM »
Jbeany and family, we are praying for your rapid recovery.

 :grouphug;

Rolando and Alene
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vandie
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« Reply #209 on: September 10, 2009, 07:49:40 PM »
Sending you only positive thoughts.  You are loved.
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Life is the journey, not the destination.
_________________________________________
I received a kidney transplant on August 4, 2007.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #210 on: September 10, 2009, 07:54:55 PM »

Thank you Epofriend for your help tracking down JBeany.
I just spoke to the hospital.
The news is better tonight. Our girl is stable right now and has improved since yesterday.
Thank God!
I hope every hour is better and better.
JB - we love you - stay strong!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MIbarra
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Stopping to smell the bluebonnets
« Reply #211 on: September 10, 2009, 08:14:46 PM »
I'm so glad to hear things are going better. I just read the bad news on this thread.

I'm saying a prayer tonight that things get even better and she recovers quickly!
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Cadaver transplant April 29, 2007
RichardMEL
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« Reply #212 on: September 10, 2009, 09:49:57 PM »
Well done sherlock Karol!!!

encouraging news about jbeany!! Wishing things improve rapidly so she can get better and home to her pining kitty !!! (just remember she must not go near the litter!!!)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
willieandwinnie
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« Reply #213 on: September 11, 2009, 04:32:04 AM »
 :pray; JB. I'm praying and sending good thoughts to you. Thanks okarol.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #214 on: September 11, 2009, 04:34:18 AM »
 :grouphug; :grouphug; :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Des
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« Reply #215 on: September 11, 2009, 04:42:31 AM »
I am thinking of you... constantly.

My whole family are praying for you...

Get well SOON!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Rerun
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Going through life tied to a chair!
« Reply #216 on: September 11, 2009, 06:34:15 AM »
So what do we think happened?  Did they nick the bowel??

                          :Kit n Stik;
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Mizar
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« Reply #217 on: September 11, 2009, 06:54:54 AM »
Saying a Prayer Today for Jbeany.
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jbeany
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Cattitude
« Reply #218 on: September 11, 2009, 07:18:35 AM »
Just received an update.  She is in very good spirits this morning and doing better.  She has a bit of a fluid problem that they are now working on.  But she is still stable and fighting all the way.  The docs say another few days in ICU for her and then hopefully back to a normal room.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Des
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« Reply #219 on: September 11, 2009, 07:23:52 AM »
glad to here.....

She is having a rollercoster ride, huh?....... send her my love.
« Last Edit: September 11, 2009, 10:36:38 AM by Des » Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
willowtreewren
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My two beautifull granddaughters

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« Reply #220 on: September 11, 2009, 08:02:20 AM »
 :grouphug; :grouphug; :grouphug;

I'm so glad things are looking up again.

Thanks for keeping us informed.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #221 on: September 11, 2009, 08:14:47 AM »
We love any little bit of progress and good news.  She is on all our minds daily and someone is always praying for her.  Thank you for sharing with us.  You can tell how worried we all are.  We love her!!    :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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WWW
« Reply #222 on: September 11, 2009, 09:05:13 AM »
That's good to hear about jbeany  :2thumbsup;

Rerun this problem is known to happen with a kidney and pancreas transplant because the bowels are moved around, somewhat taken out to connect the pancreas and kidney and then put back in. They won't allow us to eat until the bowels start making sounds and you, well pass gas and have a bowel movement (hard to do when your cleaned out preop and then put on a liquid diet after a few days post op. However a nick is still possible, but go to wonder what they were paying attention to at the time to do that. I wish I asked for pictures of mine, but didn't think of it at the time.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
thegrammalady
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« Reply #223 on: September 11, 2009, 12:46:14 PM »
very glad to hear things are going better.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
monrein
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Posts: 8323


Might as well smile
« Reply #224 on: September 11, 2009, 01:37:20 PM »
I loved reading the words "normal room".
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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