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Author Topic: Waiting for a confirmation call - may have a kidney/pancreas today!  (Read 50796 times)
monrein
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Might as well smile
« Reply #175 on: September 07, 2009, 03:16:01 PM »
Sorry to read about the ups and downs and especially the extra surgery.  Thinking of you jbeany and would also love to send a card if possible.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
glitter
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« Reply #176 on: September 07, 2009, 03:42:03 PM »
Everytime I think of jbeany- it brings a smile-  :clap; :clap;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
willowtreewren
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My two beautifull granddaughters

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« Reply #177 on: September 07, 2009, 04:11:50 PM »
Yea! More good news. JB, we are eagerly awaiting your return to IHD.

Get all the way better soon!

Keep peeing!  :flower; :flower;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
vandie
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« Reply #178 on: September 07, 2009, 04:52:45 PM »
Oh JB.   One step at a time.   Take time to heal.   You have been through the ringer.
xoxo
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Life is the journey, not the destination.
_________________________________________
I received a kidney transplant on August 4, 2007.
Jill D.
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« Reply #179 on: September 09, 2009, 04:44:55 PM »
Hang in there jbeany! I will keep you in my prayers for a steady recovery.  :cuddle;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
jbeany
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Cattitude
« Reply #180 on: September 09, 2009, 07:11:35 PM »
Now is the time that jbeany's family is asking everyone to keep her in their thoughts.  Jbeany went in for another surgery today.  When the docs got in there they found that a part of her bowel has collapsed and leaked inside her.  They removed the damaged bowel and flushed her out the best they could but she is septic and in ICU.  The docs said that the next 48 hours are extremely critical and are touch and go.  She needs to make it through the next 2 days and then she has a chance.  I'm sorry for bringing the bad news.  PLEASE pray for her.  She's fought too hard for too long for it to end like this.  I will update everyone as soon as I hear more about her condition.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Chris
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« Reply #181 on: September 09, 2009, 07:18:33 PM »
Sorry to hear and am hoping she pulls through.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
monrein
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Might as well smile
« Reply #182 on: September 09, 2009, 07:25:20 PM »
Oh how I hate reading this news.  Jbeany, please know that I'll be thinking of you as hard as I can tonight and sending my strongest positive thoughts your way.  We need you back.   :( :'( :(
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #183 on: September 09, 2009, 07:31:08 PM »
Oh JB! This is terrible news!! You are in my thoughts and prayers for sure!  :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
cariad
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What's past is prologue
« Reply #184 on: September 09, 2009, 07:56:34 PM »
Oh, this is heartbreaking!

I am thinking of you, jbeany, and know that you can feel all of IHD pulling for you with everything we have.

 :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #185 on: September 09, 2009, 08:25:05 PM »
OMG I cannot bear this.
Please Janel - please get better.
« Last Edit: September 09, 2009, 08:44:27 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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« Reply #186 on: September 09, 2009, 09:34:53 PM »
 :pray; :pray; :pray; :pray;

Oh Janel please dig deep and find the strength to get through this.    :grouphug; :grouphug; :grouphug;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Adam_W
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Me with Baron von Fresenius
« Reply #187 on: September 09, 2009, 09:44:30 PM »
Oh,....I don't even have words right now because I'm so worried  :'(. She is in my prayers  :grouphug;

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
YLGuy
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« Reply #188 on: September 09, 2009, 09:45:48 PM »
She is definitely in my prayers.  :pray;
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cookie2008
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« Reply #189 on: September 09, 2009, 10:39:42 PM »
 :grouphug;   You are in my prayers






Edited: Fixed smiley error - paris, Moderator
« Last Edit: September 10, 2009, 07:57:05 AM by paris » Logged
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
charee
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« Reply #190 on: September 09, 2009, 11:05:50 PM »
thinking of you :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Des
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« Reply #191 on: September 10, 2009, 01:11:25 AM »
I pray that God holds her safe and warm and that God gives her family strength and hope.

Please know that my thoughts are with you.

Love
D
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
skyedogrocks
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Rob showing off his pot of gold!
« Reply #192 on: September 10, 2009, 05:50:12 AM »
Janel - Our thoughts and prayers are with you.  Be tough girl, pull through this.   :cuddle; :grouphug;
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
jbeany
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Cattitude
« Reply #193 on: September 10, 2009, 06:17:01 AM »
It brings tears to my eyes to see how caring her IHD family is.  I talked to her sister this morning who had just talked to the nurse.  She said that Janel had a quiet restful night and appeared to be stable.  The doctor doesn't make the rounds till later.  I should know more this evening.  Her sister asked if the ones worrying about her could have some drugs too!  Janel is the strongest person I know, we're thinking positive and can't wait for her to come home, besides her kitty really misses her.....  I'll post again tonight with more news on her condition.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
monrein
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Might as well smile
« Reply #194 on: September 10, 2009, 06:25:40 AM »
Quiet nights are good news at this point.  Thanks for the update.   :grouphug;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cariad
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Posts: 4208


What's past is prologue
« Reply #195 on: September 10, 2009, 06:27:46 AM »
Once again, thank you for the update.

I checked IHD early this morning because I was so worried about jbeany. This is a relief.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
willieandwinnie
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« Reply #196 on: September 10, 2009, 06:40:16 AM »
OMG, I am praying like crazy, I have lived this with my hubby and it breaks my heart. All prayers are going to JB.  :stressed;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #197 on: September 10, 2009, 07:43:38 AM »
My caring thoughts and prayers are with Jbeany all the way. :grouphug;  I am expecting good news.  Thanks so much for giving us updates.  We need to hear how she is doing.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Chris
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« Reply #198 on: September 10, 2009, 08:02:05 AM »
That's good news and that she is making wise crack jokes  :2thumbsup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Bill Peckham
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Posts: 3057


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« Reply #199 on: September 10, 2009, 10:37:56 AM »
Thinking of you jbeany. Stay strong.

 :grouphug;
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
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