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Author Topic: Waiting for a confirmation call - may have a kidney/pancreas today!  (Read 50788 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #150 on: September 03, 2009, 08:18:35 PM »


No update and once again - a member that I have no contact info for.  :banghead;

JB - come here!!  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kimcanada
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« Reply #151 on: September 04, 2009, 03:09:08 AM »

People you better give OKarol your info orrrrrrr ellllseeee~~~!!!!!!   :boxing; :boxing; :boxing;
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paddbear0000
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« Reply #152 on: September 04, 2009, 06:40:55 AM »

wonder how many days you have to stay in after a transplant?
That is a hard one toanswer kim since we are all different. The docs told me 3 days, but ended up a week and half due  to problems developing from breathing tube, the meds, ect.

Hopefully JB won't have to much trouble and will be out soon.

Only 3 days for a kidney/pancreas transplant?? My transplant centers both told me at least a week!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
jbeany
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« Reply #153 on: September 05, 2009, 10:56:50 AM »

Here's the latest update.  The past few days have been very rough.  Thursday she started having a lot of pain.  So much in fact that she could barely speak.  The docs started poking and prodding around, taking way tooooo long for our comfort but that's normal I guess.  By the time yesterday rolled around she was in ICU with BP problems.  After an emergency surgery yesterday afternoon the docs had fixed a leak and repaired a kink in the bowel.  She is still in ICU but recovering.  Her BP is still up and down like a roller coaster.  All the docs here have been GREAT.  We're all keeping our fingers crossed.  Her pain is under control now and she is improving.  Now that things are more settled we'll make sure the updates are more frequent.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

willieandwinnie
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« Reply #154 on: September 05, 2009, 11:05:22 AM »

 :pray; Thank you so much for the update. I pray that JB will turn the corner soon. Let her know that we are thinking of her and will continue to pray the doctors get her fixed up.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
willowtreewren
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« Reply #155 on: September 05, 2009, 11:39:34 AM »

Oh, my! I hope this takes care of everything and Jbeany will be up and at it soon.

Please let her know that her IHD family is thinking about her all the time.

 :flower; :flower;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #156 on: September 05, 2009, 12:24:12 PM »

I had a feeling there might be a problem. Poor girl - I hope they have resolved the pain.  :pray;

Thank you for the update. We really miss our girl!

I would love to send her a card - please PM me with an address when you can.Thanks.

{{{HUGS}}} JB!!  :grouphug; :grouphug; :grouphug;
« Last Edit: September 05, 2009, 12:25:17 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #157 on: September 05, 2009, 02:12:22 PM »

Sorry to hear about jbean. Can understand why there might be a kink after they told me what they do to implant the pancreas and kidney. I'm not found either of the wait and see logic when something bad is going on especially when  there is technology available.

Hope jbean feels better soon  :2thumbsup;
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
lola
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I can fly!!!

« Reply #158 on: September 05, 2009, 06:47:23 PM »

JB sorry to hear things have been rough............. :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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glitter
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« Reply #159 on: September 05, 2009, 06:49:39 PM »

sorry its been so rough for her- but am ecstatic that she got the transplant and is improving!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #160 on: September 05, 2009, 07:47:35 PM »

Jbeany, get better soon! We miss you!   :grouphug; :grouphug; :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
RichardMEL
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« Reply #161 on: September 06, 2009, 03:48:42 AM »

we sure do!!

That would have been very worrying about her pain(specially going on for so long while they figured out what to do) then going into ICU with the bowel problems etc.. yikes.... fingers crossed this is just life's way of making things "interesting" and she will be back on track in no time!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
rose1999
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« Reply #162 on: September 06, 2009, 05:07:50 AM »

so pleased that you have had your transplant and praying for a full recovery for you. xxx
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jbeany
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« Reply #163 on: September 06, 2009, 07:25:48 AM »

Here's the latest.  Her BP has started to level off and her heart rate is coming back down to a more normal range.  Today they are going to try taking her off the heavy duty pain meds and onto something that will make her a little less loopy.  So slowly but surely we're getting there.  Took a few steps back but are moving in the right direction once again.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #164 on: September 06, 2009, 10:12:08 AM »

 :pray;  :pray;  :pray;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #165 on: September 06, 2009, 11:31:29 AM »

That's good to hear.  :grouphug;
Logged

********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
willowtreewren
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My two beautifull granddaughters

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« Reply #166 on: September 06, 2009, 12:09:56 PM »

Yes! No more backward steps, just moving forward from now on!

 :flower; :flower;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kimcanada
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« Reply #167 on: September 06, 2009, 12:25:48 PM »

Oh good news, sometimes I forget that a transplant is a huge deal, with all its up and downs, please send all our love and prayers to your sister, I am sure you are having a week yourself, watching a loved one going through pain is one of the hardest things in the world to do.  :cuddle;
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Chris
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« Reply #168 on: September 06, 2009, 04:42:55 PM »

That's good news, no need to do the hokey pokey in the hospital or is it the whatootzee.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
pelagia
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« Reply #169 on: September 06, 2009, 08:47:39 PM »

thinking of you  :flower; and hoping you are on the path to a fast recovery  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Wattle
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« Reply #170 on: September 06, 2009, 09:02:08 PM »

 :pray; :pray;   We are all on the Rollercoaster with you JB. 

 :pray; :pray;    :grouphug;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
charee
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« Reply #171 on: September 06, 2009, 11:11:35 PM »

thinking of  you JB :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Romona
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« Reply #172 on: September 07, 2009, 01:56:15 PM »

 :grouphug; I hope you have a speedy recovery.
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jbeany
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« Reply #173 on: September 07, 2009, 02:09:33 PM »

Things are looking better.  She has been stable enough to move from ICU back to a normal room.  Other than that not much new.  She was having a little trouble breathing but the docs said it was from the fluids from the surgeries.  They have her on meds to help with that.  We're all rooting for her!   :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Chris
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« Reply #174 on: September 07, 2009, 03:09:02 PM »

I hope this is her last move to a room there. She has been through enough already. We diabetics are sure a complicated bunch and don't like make things easy do we?  :sarcasm;
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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